For most people it goes away. For a minority it never goes away because the imbalance that pred causes in the body remains permanent. Usually a kidney function thing....
It won't work, of course. They keep trying to create technological solutions to a disease that is constantly changing. Immune system + gut microbiome = constant change Modern medicine won't ever cure...
CBD oil helped my body relax, gave me more energy, helped me sleep better at night. Did zippo for my inflammation, and I took high doses (50mg+)....
Entyvio worked for me for exactly 14 months and then failed....
CMV is hard to diagnose. The colon biopsies have to be taken from a site where CMV is active. The antibody test is a good standard to see if CMV is anywhere in the body. It's a pretty nasty virus :(...
If they are GMP standard, then they are checked for heavy metals....
Childhood abuse and PTSD can certainly shape your stress response, which we all know is related to UC....
When it comes to UC, I think anti-depressants are only symptom management. This disease is destabilizing to the neurochemistry, and it's traumatic on top of it. If your symptoms of depression are...
I had severe joint pain, so bad that I could not get out of bed without assistance. My left leg and left hip were locked by pain. I had a severe fully body blood rash that was violently itchy,...
I find driving in the car is always hard because my body is at more of a 90 degree angle and it compresses my abdomen a bit. Driving is also stressful, which causes problems. The only time I...
I didn't miss the point, you missed mine. The research trials almost always have altruistic scientists and researchers spearheading the research, but it's all couched in end-product creation,...
IBD is most likely pathogenic in origin, with the immune system being exhausted and dysregulated as a result. There may not be one pathogen but several, and leaky gut along with high histamine are...
Bowel prep can have a healing effect because it purges all the excess junk. Bowels have a lot of folds in them which gather stuff over time. There can be food particles in there that are days or even...
I've not found naturopaths terribly useful. I have a couple who are friends, one who has been in the business for 15 years. His breadth of knowledge is amazing, yet his clinical efficacy rate is not...
Warmer weather definitely makes me worse, much like saunas do. When you have inflammation you're already running hot. Plus, if you have a detoxing problem in your body, adding heat will speed up all...
Funny you're posting this. My doctor just mentioned it the other day when I sought her out for anti-depressants. The study found that the only anti-depressants that work very well are mirtazapine,...
They're mostly legit. The risk is dependant upon the kind of medication you're looking for. If it's a really common one then it's likely to be fine. If it's rare or hard to get one, then they will...
Oh! About changing toothbrushes... another good point is to wash your toothbrush, with soap. I do this every night before I brush my teeth. Just use a bit of plain hand soap (not scented and no added...
Probably has to do with the methylation and transulfuration cycles in the body, all of which have enzymes that run on trace minerals.... which nuts are full of. If the detox pathways in the body and...
Sorry I didn't mean to be such a bummer, I know you were excited. I have just been in the medical research profession for years now, in addition to having to research my own health problems. Medical...
My routine is that I brush and floss, and then rinse with 2% peroxide. I buy 33% at Whole Foods and dilute it 1 part peroxide to 11 parts pure water (not tap) to make 3%, then I might cut that in...
You can't replicate flora relationships in a pill. To do that they'd have to be growing all the flora together in a biofilm colony, which is not possible in a lab, which is why FMT is still the best...
It won't work, of course. Oral probiotics have a very low success rate for IBD across the board. Even natural ferments have a higher success rate. It was predictable though that after they banned...
I don't know what it's like for other people, but where I live it's next to impossible to access mental health resources if you don't have extended health benefits. I have been on a waiting list for...
When I first developed IBD and had a minor flare, taking 4 capsules of turmeric every day stopped it, and even reduced my food allergies.... but I did notice that if I got a cut it would bleed like...
The test is run by Otakaro Pathways. Here is their website: https://www.otakaropathways.co.nz/ Follow the instructions on the testing page. You'll need a doctor or a lab who can take your blood and...
I never insulted anyone with an ostomy. I have strong opinions about it, mostly relating to my bodily sovereignty, but I don't have anything against ostomates. Every time I shared my opinion about my...
Usually a combo of medication and lifestyle approaches helps... like diet modification. Some people achieve remission from lifestyle changes alone but their case was either mild or they might've just...
Hi, Sorry to hear about your struggles with UC. Do you remember how much black seed oil you were taking and how many times per day?[/quote] I remember reading at the time that a table spoon in the...
They should test you for neutrophil cytoplasmic antibody, MPO-ANCA, PR3-ANCA, as well as an ANA test. Hair falling out on the head is a relatively common thing from prednisone use but hair falling...
I never singled out people who wanted surgery or who have had surgery. My beef is with modern medicine, not the patients who are innocently trying to navigate a horrible hell disease. I just said...
The common reasons for restless leg are low hemoglobin, low iron, poor iron transport, or low B12 and B-complex. Ask your doctor to do blood work for hemoglobin, ferritin, transferritin and B12. Some...
I don't want to turn this into a "Convince Connor that surgery is an OK thing" thread, ok? We all have a right to self-determination. It's not a self-pity party. I will not accept judgment from...
I don't have a link handy but the miscarriage rate is elevated, especially if the woman with UC has extraintestinal complications already. However, from what I can recall, the risk is not hugely...
I lived a very full life in my 20's. Traveled a lot, learned languages, got education. Had I known that those were going to be my best days, I would have done things differently. I would've kept...
My brother in law really pushed black seed oil on me when I first flared. I finally caved and tried in when other methods weren't working. For most of us, the first major flare is the scariest...
Barto... the disease is very personal. We all go through different phases with it. The denial phase is really strong for some people. It was for me. In my opinion, the shorter the denial period, the...
I've had UC for 5 years and have not been working for the last 2 of those. I enter periods of relative remission where I'm healthy, fit, normal weight, no bowel symptoms... and then the rug gets...
There have been many different things that have helped me exit a flare, most of which never worked twice for some reason. The typical UC medicines have *never* stopped a flare for me. It has only...
The first year I flared and then got through it, I started to re-flare again. A friend had made elderberry syrup from fresh elderberries and I thought what the heck, I've got nothing to lose. It...
I got neuropathy in my hands and feet during my first flare because I was deficient in B12, folate and B vitamins. Ask his doctor to prescribe methylB12 2000mg, methylfolate 1mg, and B complex forte....
I just can't digest legumes well for the life of me. I've tried everything. I just turn into farty, bloated mess. The only time I'll eat black beans at this point is if they're cooked to death and...
I'm in Canada and I got government permanent disability status for having UC. Here they don't withhold it if you haven't tried surgery. Eligibility is based on your severity, not on what treatments...
Thanks for the info Mike. If the SOD/MAP theory is true, then why would AMAT work for most people? It either clears the bacterium or it suppresses it into permanent dormancy. I suppose antibiotics...
I have read some reports of herpes causing UC in people who received analingus from someone infected. Aside from that, if you already have an ileostomy then it's unlikely that herpes would affect...
The only thing available right now that can kill MAP is anti-MAP therapy... you have to use a combo of antibiotics. Humanpara.org has all you need to know. The most studied 3 antibiotics are...
The skin on my arms is getting noticeably thinner from using prednisone. You can see all the veins, even on the top. It's only been a few years of intermittent use but it's already happening. If I...
Yes, colonoscopies can cause flares, but you have to wait a while to know if it's just irritation from all the prep and biopsies, or you're actually flaring. My flares from colonoscopies usually...
Thanks very much for this very thoughtful response. I like it, and yet I must admit I come away from it unclear. "Helpers" makes it sound like you do think there is an IBD personality type...
We've talked a lot about this in the focus groups. IBD patients tend to be helpers. They take on a lot of other people's problems and they have high empathy. A lot of people have initial onset...