My pharmacy told me the manufacturer will be on backorder for Apriso until at least April. Looks like I'll be switching meds. I tried Lialda a few moths ago when my insurance changed, but I didn't...
I know this is an old old thread, but of particular interest to me. Does anyone else have thoughts or comments on how pregancy affected their UC? I definitely think pregnancy caused my first "real"...
Hi there! Its so hard to say what the loose stools are coming from. For me, I DO feel like my Delzicol(mesalamine) MAY cause somewhat looser stools. I also know that my UC also causes looser stools...
AGH! Trapped gas is the worst. One of the more annoying symptoms of my UC. Definitely dramatically improved when I got the inflammation under control. I vote enemas, too, though for me it too oral...
Slippery elm is known to contain salicylates. I believe Marshmallow root is not. Mesalamine is chemically related to salicylic acid and aspirin. I imagine for those who respond well to those types of...
I used the men's room today, too!!! I sure hope things start evening out for you when you try the trial med thingy. You struggle has been such an eye opener and an inspiration. We are warriors. I...
I'm pretty disappointed in the mockery of this post. thanks iPoop for shedding some light. Here are some related links: There is IgA in the urine:...
Everything Quincy said!...
I would take bleeding into the toilet and having accidents weekly over the joint pain. HAPPILY. I agree with Quincy that you should have the joint pain assessed by a physio or chiro. It will be...
I bled like that for six months and ended up anemic. It wasn't horrible, but definitely a weird fog about me for a while....
CHICKEN BROTH!! With chicken and carrots, sometmies rice in it. Winter squashes also seem to be okay. So good. Protein is good and low fiber foods....
Both Turmeric and Boswellia have known gastrointestinal side effects, but not for everyone and not always significant. As UC-ers, and HealingWell frequenters we all know everyone reacts to things...
This topic is a personal and profession of mine. Not only do I have joint pain from UC, but I also treat musculoskeletal disorders for a living. Here is my personal take on it: There are a couple...
I have migratory arthritis associated with my UC. It began about 8 months into first developing UC. It presents mostly in my peripheral joint but has landed in my neck before. Worst 2 weeks of my...
The elemental diet for SIBO is typically VERY effective at reducing gas. When I'm in a UC flare I have tons of gas, no matter what I do. That said, there may be some 'die-off' symptoms you're...
I cant open the RIT link :'(...
wouldn't it be nice if they warned us about those kinds of reactions BEFORE hand? Especially since we UC'ers tend to be hyper-vigilant and kinda freaked out by any new or unusual sensations/symptoms...
Hi there, It hurts me to hear a young girl has to go through UC, let alone such pain. For me, I experience severe debilitating joint pain which moves from joint to joint as it pleases. Always only...
Hi All! :) I'm in the market for better insurance. I figured the best place to get some feedback regarding health plans and ulcerative colitis care. I'd love to read some rants and some raves about...
for veggies, I second baby food. there are some GREAT ones in packets at places like whole foods. They're really helpful for when my gut is still in sensitive mode, and they make great on-the-go...
The inflammation and tenesmus (involuntary, non-productive straining) make me feel constipated. Anything that's inside feels stuck, but I can't really remember having a hard stool that was hard to...
Believe it or not, digital clubbing is associated with IBD, though far more recognized as a presentation of cardiovascular disease. I was surprised to learn that, myself....
okra can affect serotonin levels (namely increase them). I know there have been studies regarding UC and gut mucosal levels of serotonin. Cant recall at the moment the results of the studies though...
The first advice I ever got from posting on Healingwell.com was to seek a counselor to help me through things. I brushed it off until this very day. After a month of toying with the idea of...
Thanks so much for the info!!!! Anything to stop these "joint flares" Literally ANYTHING! It is so hard to avoid an accident when I can hardly hobble to the bathroom in time. The pain is more...
I just started taking Delzicol today. I was pretty resistant to taking anything at first but decided I'd go for it. Risk of side effects no longer outweigh the risk of losing myself to this disease....
I'm pretty convinced at this point that this is a huge factor in my personal ebbs and flows....
Beave! Mic drop. You nailed it. 100% It's reasonably impossible to REALLY know what causes things to change with this condition. It's so much more convenient to think, "oh it's because I ate this,"...
No worries, ihatepoopibg. As usual there is something for everyone. Hopefully you find some consistent sleep soon. It can be a challenge when deprived. As a business owner, teacher, consultant and...
Go to the doctor. It's ok. They've seen it all. They'll tell you what they're gonna tell you and it's gonna be fine...
For the belly/booty skin: I agree, dry the area well after showers. Also, break open a capsule of probiotics and use the powder in the areas you use the rubbing alcohol. I know it sounds strange but...
Some research has shown Metformin to reduce Tumor Necrosis Factor Alpha. TNF has also been thought to be associated to the inflammatory process of IBD...
Personally, all my symptoms began when I quit smoking marijuana. Didn't go near the stuff for a year until symptoms got really bad. I'm back to 1 hit every other day, and within a week of starting...
Thank you all so much for the feedback, unfortunately there have been some serious malfunctions between my doc, my insurance company, and the pharmacy. Should have meds sometime next week. Will be...
The only thing that has dramatically helped me is 1 small hit of marijuana before bed every other night, WAY less gas/mucus/urgency at night. Puts me and my bowels to sleep for the night. (That said,...
Chaywanprash has a lot of Vit C (from the main ingredient Amalaki fruit), as well as adaptogen herbs like Ashwagandha/Shatavari... It crossed my mind this morning, actually that it could be...
Thanks imagardener2. Very helpful advice. I appreciate it. I just went to pick up prescription and found out that the meds haven't been auth by insurance yet and would cost $340 oop, so I have to...
Yes that's the only one. I guess I also forgot to mention I do not have any pain. I have had several significant joint flare ups. July 2016 left thumb metacarpophalangeal joint, then left hip joint...
So.. part of this is going to be me venting my little story. I've read and a lot of posts on this site, and written a few. At the time my doc suspected UC per colonoscopy, but now it's official. I...
I never had symptoms before a bad stomach flu (7 days of serious diarrhea, only puked once, but was SO nauseated for about 15 days total). I must admit I had some bowl habit changes before the...
I also have mild UC. I also notice what looks like bloody tissue in the the toilet at times. Slightly like my intestines are bloody and sloughing off. Interestingly on my colonoscopy a couple weeks...
Yes, John. It is most commonly used as a kind of pre-workout supplement....
Has anyone had success with following an Ayurvedic diet or taking traditional Ayurvedic herbal preparations/Pancha Karma treatments? A couple promising (though short term) studies I found:...
Yes and yes. Sometimes I get so bloated it's hard to breathe. Also, the most recent stool sample I turned in had whole sunflower seeds in it. Looked at it, thought to myself: well I guess they'll...
Wonderful to hear about your success. As an Ayurvedic Specialist (the traditional Indian medicine modality which fathered the popularity of Turmeric as a medicine), I was always taught that taking...