If true, very relevant to IBD. https://www.nytimes.com/2019/03/12/health/immune-system-allergies.html...
[quote="If it is true then our symptom observations after eating certain food could be very misleading. "] Wholeheartedly yes on this IMHO. Some foods cause an immediate reaction, others seem to have...
Oligadar I don't agree with your assumption that diet is a "cure" for UC, merely a viable peripheral treatment. I do agree with your conclusion: [quote="It means that it will be very difficult to...
Hi John, I enjoy exchanging ideas with you so in regards to [quote="Certainly some would wager that diet restores healthy bacterium and makes you feel better as a result. Don't think the occasional...
Poopydoop, I totally get your point of view. On the "not trying hard enough" judging, that is not me at all. Playing around with diet on our own can actually cause much more harm than good. But I...
Many prominent people on this forum are at least somewhat dismissive of diet being a key component of managing IBD, because in their own experience it didn't seem to make any difference what they...
Well said Mark!...
Hi Anna, I just wanted to chime in for moral support. I have been off the UC meds for about 3.5 years and very stable for 2.5 years, with some details in my profile. My colonoscopies have gotten...
Hey John (iPoop), your comment: "I think defining a disease based on its symptoms (and not underlying cause) is a kinda bad idea that causes this", is so on the mark! Of course, that is just where...
Great find Mike!...
Sorry to hear about the set back. But 7.5 years in remission is great. Are you thinking about doing FMT treatments again?...
I think what annoys me about the idea of calling these surgeries a "cure", is that it seems to be used as a "legislated medical opinion" that keeps many very sick people with UC from getting social...
Hi Sinmiedo, if you don't mind me asking what dosage(s) are you taking and have you found an optimal time to take it for best sleep and avoiding lethargy?...
Just a few studies that make me think MK-677 isn't a gimmick, but I am not advocating for anyone else to use it. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2757071/...
Hi Sinmiedo, I have decided to give MK-677 a try and just wanted to see if you are still using it successfully?...
Yes, I have UC and IBS-D. It was only in recent years that I figured out through trial and error and genetic testing that I have food sensitivities (histamine and fructose intolerance) that were the...
I made my own suppositories with coconut oil quite a while back. It didn't seem to make a significant difference....
I have followed Qu Biologics for a long time and I hope other drug companies will take a similar approach to treat IBD. I have my fingers crossed that their Crohn's and UC trials will show efficacy,...
Ewa, don't beat yourself up about trying to find something that might help you. Anything worth doing in life takes persistence and usually multiple failures. I had cupboards full of failed attempts,...
Hey John, uBiome does a fecal swab test that makes things simple. I have been with them for a while so I don't know if they still do this, but for me, they take what they can get from my insurance...
Hi Ewa, BPC 157 is a peptide that has an underground following, but it is not something a doctor would know about so no surprise you have not heard of it. There is a lot of discussion about BPC 157...
I have tried BPC 157 from the patent holder so I know it is the real deal. It has helped me with soft tissue injuries like a torn meniscus, thru subcutaneous injection. I have used it orally too, and...
I did some research on MK677 (ibutamoren) a while back and it is something I wanted to try to put on some muscle and weight. But it is an anabolic, so MK677 should be avoided if you have or had...
Beave, I would be happy to give a sincere answer. But I don't think you have any real interest in hearing it with an open mind, so why waste my time. Since moderators don't seem to want to curb your...
Hi IrishGuy, I am actually a bit surprised that your GI was not even interested that there is a parasite, but hard to say more without details. I have worked with many GI's over the years that do...
Certain forms like magnesium citrate are actually used to treat constipation, so it may be a question of finding a form of magnesium that doesn't upset your stomach. I use chelated magnesium. But it...
I share your caution/concern on the downside of medications. I recall Humira having a 17% remission success rate after one year for UC, so I don't find that very encouraging. However, it is usually...
I mostly take 1 per meal because of cost. But I do step up the dosage up to 2 per meal before/after heavy exercise....
Just my 2 cents, but I try to avoid multi-ingredient supplements, otherwise you are left with your situation, not knowing what might have triggered your flare. For me, curcumin with BioPerine Black...
While I understand some of the cynicism people on this forum have (and rightly so) these hostile replies are obnoxious. I see no reason to doubt the sincerity of the initial post....
IamCurious, thank you for posting the link to this article on phages. It was a great read and I am hoping there is a product ready for market soon? Best, Barry...
I haven't taken it but I have researched it a lot. I think you can get more info and personal experience on an IBS-D forum. I do know it can be rough on the gut so your taking 1/2 doses at first...
To the question: "We all try probiotics and antibiotics with varied levels of success. What else would be an option?" Well, maybe antivirals at the right time followed by the needed probiotics. The...
Hi Linda, It looks like you are exploring your options carefully and doing a great job I might add. All the candidate treatments you are considering may be helpful including the Bile Acid Resins. But...
Hi Samantha, You are right about it getting harder to lock down UC after having it for years. In my case if I knew, what I know now 10 years ago, I would be a more comfortable remission, as I would...
Neither of these 2 supplements ring a bell as helpful for UC?...
I am a bit unclear on what you are saying. Are you all clear on just pathogenic bacteria? Do you have good bacteria and what does Ubiome say about the overall population?...
Yes, but let me add that there is this lock and key deal that goes on with all the various specialized T-Cells in the body that fight various invaders. The QBECO SSI is referred to as a vaccine. And...
Actually iPoop, I think the treatments are quite different, though I hope others might comment more on Qu Biologic's approach. In the approach above they have created a probiotic mix called SER-287,...
I just wanted to comment that I had severe UC for years and then colon cancer. Only then did I fully dedicate myself to alternative treatments. I personally totally believe in diet and supplements...
Slippery Elm is soluble fiber so if you are taking slippery elm, you are not stopping the fiber.[/quote] True, but to quote from the following article https://www.organicfacts.net/slippery-elm.html:...
I don't know your diet or whether you are taking fiber? When I have flared in the past, I stop fiber, blend my low fiber food I have cooked to make porridge and use slippery elm powder which I drink...
I would be drinking slippery elm a few times a day to relieve inflammation and allow stool to pass more smoothly. That should allow time for the Isatis Cooling to do its thing (if it does work for...
This is slightly different but on the same wavelength. You might want to investigate Helminthic Therapy for treating UC or any autoimmune disease....
I have fructose malabsorption issues too. If you suspect you do have fructose issues you should research what foods are high in fructose because there are some surprises, like certain spices and many...
"How was your knee pain like? Sharp, dull aches, burning? Did you have it just when walking/exercising or even at rest?" I do play sports like tennis so many times there is an exertion factor but not...
I am currently using N-acetyl glucosamine, which has helped my joint pain (knees especially) and UC simultaneously. I have also successfully used a highly bioavailable curcumin without pepper like...
There's another active thread here: https://www.healingwell.com/community/default.aspx?f=38&m=4011548 you might want to look at. It is hard to tell whether food sensitivities may trigger those of us...
I take GI Hist Support for my issues with histamine. I have a feeling this is something that would help a lot of people with IBD. A simple test is to eat fresh cooked meals while avoiding high...
Great response by Imagardener as usual in regards to the insoluble fiber. Psyllium and slippery elm are great, but finding the perfect amount from my long experience is impossible. Things like...