Hi Jane! I would love to know if the increased fiber helped to improve things! My notes also said there was excessive looping and that even the manual pressure on my abdomen didn't work. Yikes! Guess...
Thanks, DB! This was my 3rd or 4th colonoscopy. Was never told of this before and they were always able to get to my cecum. However, this was my 1st colonoscopy since my pregnancy......
Hi Quincy! Well, he used the term "redundant." I looked back at the report and it says that they couldn't pass the scope through even despite changing the length of the scope etc and also using...
Thanks iPoop! I was really surprised they couldnt get through! I go to David Rubin so if he can't do it, no one can! I must be pretty twisted up....
Hi all! It's been a long time since I was last here! I'm 36 and currently in remission (YAY!!!) with Remicade every 6 weeks. Well, I had a colonoscopy on Tuesday and the doctor wasnt able to get...
Congratulations!!! I flared while pregnant, but mostly because I stopped taking my meds (stupid, stupid, stupid!). Everything ended up just fine, but I had to go on Prednisone at 6 months prego. So,...
Hi all! It's been awhile for me because I have been totally in remission since starting Remicade! Yay! I get it every 6 weeks. After my last two infusions though, I have been experiencing nausea for...
Nope. None if those!...
So, I've been on Remicade for almost a year now and just last week was in the sun for the first real time (yay for busy new parenthood issues!). We had field day at my school and I was out all day...
Hmmm thanks for the info, all! Hoping that the test turns nothing up. I have never been anemic so I don't really know what it would feel like. Just have weight loss, fatigue, and some bruising. All...
Thanks ipoop! Didnt have any blood work done prior to him ordering this. It was done right along with my CBC and everything else yesterday. I guess we'll see! I have fatigue, but I thought it was...
Hi all! My gi ordered a blood test for ferritin yesterday along with all my regular blood work and Remicade antibody test. Looked it up and it's sort of test for anemia. Is this a routine test for us...
Thanks Ipoop. I am on an every 8 week schedule. I am in remission now so I guess I'm more worried about building antibodies than I am about having symptoms return quickly. Hopefully, this will work...
So, I have been told many times that remission is actually what causes hair loss. If you are flaring, your body puts your hair into a resting state to conserve energy. When you are healthy again, new...
Hi all! So, I was supposed to get my infusion on Monday. However, we switched onto my husband's insurance and my infusion had to be cancelled due to a processing delay. Now, I am not available to get...
And today I noticed a little bit of that tell tale mucus. Pooptastic!...
Thanks Katmom and iPoop. I will definitely keep track of it and also ask about that antibody test...never knew about that!...
Nope...have to change that! Whoops!...
Hi all! It's been awhile for me! I hope that everyone is doing well. I've been busy with baby who is almost 6 months old now! I'm back with a quickie question. I'm on Remicade now...have been for a...
Thanks, guys! Probably going to get it next week. Next infusion is this Friday....
Hi all! I have not been on here in awhile because 1) Remicade seems to be working and it's been pretty smooth sailing here! Aside from a little occasional blood, I'm great! and 2) My now 4.5 month...
Hi all! I think it's time to make a switch. I am getting major attitude when I have questions and I'm tired of it. I don't need snobbery...I just need some help sometimes. Who would you suggest in...
Absolutely. GI said it's safe for baby...didnt mention anything about risks to me. Ped is just pushing the importance of this vaccine. I guess we're going to do it...reluctantly. Hope I don't get...
Thanks, totes! Yes, I started Remicade post pregnancy so I was told that it's safe for him to receive the Rotavirus vaccine in that sense. I hate that this poses a risk to us though, but was told by...
Hi all! I have a perfect little two month old boy who is scheduled to receive his first Rotavirus (live oral) vaccine this Wednesday. I just read that the parents can catch Rotavirus through baby's...
Hi all! So after letting the fear get to me, I had cancelled my first Remicade infusion. I finally heard back yesterday from a fellow at my docs office who discussed the risks and benefits with me....
I didn't hear back yet...almost a week. I am at 10mg now so it's pretty low amount. I'm glad to hear that they are scoping you before deciding to go to a biologic. I think it's better to be...
I saw that too, but figured that a fellow, nurse, or someone could contact me. I'm just not happy that I am even dealing with any of this now. I have never hated UC more in my life than I do now. I...
So I had cancelled my appointment for last Friday's infusion and had emailed my doc with my concerns. I was contacted immediately by his nurse who said they would be in touch that day...still haven't...
So sorry that you are dealing with this too! The real issue for me right n is that I'm feeling good so it's very hard for me to rationalize starting a biologic at this point. I don't want to do it...
Thanks notsosickly. I would love to see if I can get off of prednisone and go back to just Lialda, Canasa, and Uceris foam. I'm wondering if the pregnancy was what made me flare to begin with and...
Thank you all so much for your comments. I had my post op appt today for my csection and discussed this with my obgyn as well. He suggested contacting my GI and explaining my thoughts...always a good...
Thanks to all for the info and support! And thanks iPoop for the statistics...very helpful. Does anyone know anything about the risk of melanoma? This is something that really worries me. Somehow, I...
Hi all! Some of you know that I just had my first baby two weeks ago so some of this may be due to post prego hormones messing with me. However, I'm freaking out over starting Remicade this Friday. I...
Hi there! Thanks for checking in, notsosickly! So, baby decided to arrive a few days earlier than the scheduled csection and was born at 2:14am on Friday, May 6th (still via csection). He is AMAZING...
Hi all! I am 39 weeks pregnant, scheduled for a csection on Monday, on prednisone, and I've had an upper respiratory infection all week. FUN TIMES! Anyway, I was put on amoxicillin which seems to be...
Hi Dikid! It sounds like this could be the start of a flare, but it's great that you have an appointment coming up to discuss it either way. Are you having urgency with the blood? Sending good...
Hi GC! I am a 2nd grade teacher with 34 students and no helper. Luckily, I find that when I am busy at school, I have less urges and emergencies. There's something about having no time for poop that...
Hi there! Thanks for checking in!! I am still here and super pregnant! Lol. As of now, the csection is still on for May 9th. Part of me wonders if things will happen earlier though! I am continuing...
I guess that this is how the universe works. Within a few hours of this post, I got a call back from my doctor. Turns out that it is now being suggested that I postpone my first infusion until after...
Hi all! I'm set to start Remicade this Friday. It will be my first biologic plus I'm 8 months pregnant. So, I have some questions about the drug itself as well as my current prednisone dosage (how it...
I am 8 months pregnant with our first right now and, while I was in remission at the start, I ended up flaring. My best advice is that UC is unpredictable and to just go for a baby when you can....
I think that my husband and I would kill each other. Lol. I do also spend a ridiculous amount of time on my hair though in addition to IBD. Best of luck! It's temporary!...
I really cannot thank you all enough for the positive vibes, advice, and success stories! I'm feeling much more confident about starting Remicade! My first appointment is next Friday. Then, I'll have...
Thanks!! I was told that the steroids would indeed start being reduced more after the loading doses. Have to admit that getting off of pred was a major motivator here :-)....
I just got a call from the infusion center and am now set to start Remicade next Friday (3 weeks before my scheduled c section date with NOW our one and only baby). So I will have a dose next Friday...
Thank you all for the amazing words of wisdom! This has been quite the whirlwind! I think I am going to go for it...I thought long and hard, read all of your advice, and slept on it. I DO NOT want to...
Thanks. I am definitely feeling "stuck" now. Either flare continually or go onto Remicade this pregnant and deal with the risks of that. I definitely need to do something for relaxation! Love the...
So, the proposed plan for me is to start Remicade now...at nearly 8 months prego. My immediate reaction was "no." I'm sure my doctor just loves me now. I know that I need this flare to end, but I...
Sorry to hear that you had a lackluster experience! I am a patient there (Dr. Rubin) and have had nothing but amazing experiences, so maybe it depends who you see. After reading your comments though,...