I'll be starting entyvio in a couple weeks, my first biologic. good luck!...
I started to flare about a month ago, having increased urgency and blood. I would go to the bathroom and pass gas and pink mucus. I couldn't trust a fart, because I was scared id have an accident. I...
I have been back on the lialda (2 a day) for sometime nowi will try to up it to 4 for a little while. I will also try doing the mesalamine emenas every night for a while and see how that goes. I feel...
Hello, I hope everyone is staying safe from covid-19. Last time i was on here I was complaining about tinnitus and lialda. I tried to stop taking lialda for a month to see if it would help. it didn't...
Hey Ipoop, In Lialda the salicylic acid would be what causes tinnitus. I wouldn't start a different 5-ASA that has the same ingredient. Salicylates have been known to cause tinnitus for sometime,...
Lialda has always made me slightly dizzy and gave me headaches since I began the medication. I don't remember ever having a headache in my life before I started Lialda, it was like a whole new...
Damn, 30 years of tinnitus, I am sorry to hear that. From what i understand about tinnitus, it goes away for a majority of people. I have also heard personal accounts from friends who had it for a...
Hello Healingwell Fam, Its been a while since I've been on here, although I have continued to check in here and there. Overall, I am doing pretty well with my UC. Since my diagnosis I have calmed my...
Thank you, I explained the reason why earbuds are not effective. However, I will try listening to the video. 42 minutes though, i don't know if I can listen for that long...
Thank you for taking the time to read my post and for your comment. I will make an appointment to a psychiatrist I think . I had been using ear plugs, but they were kind of ineffective, making the...
Hello, I have always had difficulties with my sleep. Sometime I felt like I could not let go of a particular thought and it would keep me up late into the night until i finally let it go and could...
Your story sounds a lot like mine. 2 years now, i've learned there are going to be some good and some bad days......
I know i get shortness of breath..sometimes i think its anxiety related...
GSP got it a year ago, hes badass...
I had some internal hemorrhoids found on my 2nd colonoscopy, but they were small. Id say the pain in my abdomen is like a 4 or 5 but very consistent. I read on someone else's post today and thought...
Thank you, I am trying not to get discouraged, I know its only been two months of treatment so perhaps I just need more time. I am still using the enema and suppository, I've gotten pretty...
I have been on Pred for over two months and am almost done with my taper, Starting 10mg tomorrow. . Although i only go to the bathroom 1-2x a day, I told my GI i am still having symptoms. My stool is...
Well I am not an expert, and i think that UC should be a condition treatable by medical marijuana. But I think the fact that Crohns can occur anywhere in your digestive tract makes it more serious...
Typical day, wake up 7:30AM and have a soft BM, no urgency or blood, pop a canasa and go to work. Pretty normal day, besides stomach noises and abdominal pain. Then i usually have another BM as soon...
Touche, prednisone is a steroid/immunosuppressant. I have just become used to that term being used for drugs like 6MP, Aza, methotrexate, etc. I will monitor my rash thing, but it looks like its...
Okay, I am going to send my doctor a message about it. It doesn't really hurt, it just looks red and almost like a cluster of little cuts, and I am positive I did not scratch myself on anything...
I am a little freaked out because I woke up today with a quarter sized rash on the top of my hand. I have been tapering pred from 40mg and have gotten down to 20mg the last couple days. I am also...
I have been taking Rowasa Enemas every night for a couple of weeks now and i rarely see anything in the morning. I retain them the entire night, and when I go to the bathroom when I wake up, or...
Oh man, so glad to hear a success story. I have been reallllly struggling the last year and cant seem to get any kind of control with my first flare ever, its quite depressing. Good to hear there is...
Before I was diagnosed and my GI thought I had IBS , He suggested IBgard. Did nothing for my abdominal pain/cramps. I did give me minty burps. They are pretty expensive, so I have not tried them...
Wow, it is a shame how the healthcare system can bone some people here in America. Not going to lie I wasn't the biggest advocate for free healthcare until i got sick, I cant imagine having to deal...
Times are hard but I think I can afford 5 bucks. I also am not sure if I am anywhere close to biologics in terms of the bottom up approach. So far I have been on Lialda 4.5g a day, rowasa nightly,...
"$17,000 and insurance paid about $8,000" "Stelara injection was billed at $43,232.03 and my insurance paid $20,071.32" "When my GI office did Remicade in-house they billed it at $6,400.00, and...
People on here have had a lot of success with enemas. They also contain 4000mg of mesalamine as opposed to the 1000mg in canasa, and reach a bit higher in the colon...
Personally, I got my first flare after i stopped smoking weed (still flaring). At first i thought i was having some kind of withdraw, but I realized it was more serious. I had a fecal calprotectin...
I am still experiencing a ton of abdominal pain, which is consistent throughout the whole day, although I am not having any other issues (Frequency/Urgency). I have done no diet modification, so I...
Hey Matsukichu, Im sorry your husband is dealing with this, I am kind of wondering the same thing. All of my symptoms have basically gotten much better since I started 40mg prednisone taper, yet I...
I think it would be silly for a GI to label it IBS when there is still an elevated level of inflammation... That's just my opinion. Especially if he was still able to see it with his naked eye. Now...
Ok Patience it is then. Thank you. I will try to watch my diet. I will mention, during my first colonoscopy in July 2017, I was basically in the same place as I am right now in terms of symptoms. The...
Thank you for the welcome lol I have trouble accepting any IBS bologna, because I never had a single stomach issue before this, so I attribute any pain or diarrhea to UC, wish this doc would be more...
Hello, So I have been tapering from 40 mg of Prednisone since being diagnosed in February. This upcoming Monday I will drop down from 20mg to 15mg and so on each additional week. I guess Ive been...
My symptoms all started a few weeks after I quit weed. However, I often smoked it in tobacco leaf so cant say for sure if it was the Marijuana or tobacco, regardless, cessation of smoking seems to be...
I am definitely and anxious and self conscious person, I always worried a lot. I believe there is some connection with UC and anxiety, but it has to do with a combination of many different factors. I...
I agree, physiologically it will always be on the back of my mind. No offense taken, i would just like to see some formed stool lol. I guess my biggest issue was just feeling sick everyday, not...
Thank you for your reply!...
The Number of Bowel Movements and Urgency was never really the biggest issue. During the worst part of my current flare, which is now controlled (i guess), i was going about 4-6 times. I suspected a...
Hello Everyone, I am relatively new, but I have been on these boards for the last year as I was trying to figure out what was wrong with me and got some great advise. First off, I learned you can...
My Ulcerative colitis flares also start after i smoke for some time and then quit. This time i really will try to quit for good. Have you ever picked up the habit again, since you say it helps the...
Hey pro, Im in the same boat. Diagnosed yesturday, my entire colon was inflamed and had ulcers . I was surprised, although i had my suspisions for the last 9 months i thought i might have left side...
This is what i read Pros: The use of immunosuppressants and biologicals especially in patients with CD has decreased the rates of surgery and hospitalizations, indicating that there is a group of...
This GI is pretty by the book so i think he will go with the small stuff first. However a friend of mine with chrons said ramicade saved his life , as well as larry nance jr. I think im personally...
So after my coloscopy this upcoming friday i think i will finaly get an answer to whether i have chrons or Ulcerative colitis. Im leaning towards chrons since i am going 4:6x a day with only...
Thank you everyone, rifaxamin it is! 2 weeks three times a day. I'll check back to let you all know how it goes. Eleanor, i dont think my insurance would cover a pill cam at this point with all the...
Thanks nice cup of tea. They didnt see any ulcerations via colonoscopy nor MRE, which my GI said is prefered scan for IBD. And more accurate than a pill cam, althoufh he gave me the option of either...
Hello everyone, im back! Hope your all feeling fin. I Just had a fecal calprotectin test done that was slightly elevated -180 Doctor recomendend an MR enterography which came back normal. If you look...