Thanks John. That’s reassuring. Keith…that sounds awful! I’ll be sure to log my symptoms to make sure I don’t go through the same thing. Fingers crossed I can tolerate humira....
Hello! I’m back on the forum after enjoying 7 years of remission with the help of remicade. At my recent routine colonoscopy I showed mild inflammation but my GI still considered it remission. A week...
I was beginning to build up antibodies. So they added imuran, moved my infusions from 8 weeks to 6 weeks and voila remission again. It’s now been 3 years since that and not a single drop of blood or...
I haven’t posted in a very long time...but for a good reason. I’m off enjoying life and forgetting about UC. I was in the hospital for 4 weeks faced with this decision. Biological or surgery. They...
Yep, I was on mirilax daily for a year. My mother has been on it for 7 years due to diverticulitis. Both under directions of our doctors. So I’d say it’s generally acceptable for daily use. Helped me...
Thanks everyone! I think continuing with living life like before I had the disease is key to my mental well being. Considering I was inches from getting my colon removed and stuck in a 3 month flare...
Had my colonscopy last week... still in remission! BUT after the biopsy came back yesterday nurse called. Dr still considering me healed and in remission but there was microscopic inflammation. See...
Great info. I’ll keep you posted on my progress and decision. I’m tempted to stay on just to get a 4 year break from colonscopies!...
Thanks DB, that actually makes sense. So since I hit remission now imuran s only role is to keep me from building up antibodies and to do this it doesn’t require a high dosage?...
Thanks John...good info. Let’s see what my biopsies look like and I’ll decide from there....
Hi all! Like many out there in remission I haven’t posted in a while. First, the good news...I just had my 3rd clean colonscopy and still in remission counting on almost 3 years. Given this, and...
The best news about the savings program is it goes towards your deductible and out of pocket max since the hospital/dr office reports it as paid by patient to insurance company. It’s a godsend for...
My wbc count comes back low about 1-2 times a year. My old doctor had me take a break for 2 weeks and then check blood again, then went back to original dose. My new doctor doesn’t seemed concerned...
Next time do the Gatorade/ mirilax prep. You don’t need a prescription for it....
So glad to hear from you! Wishing you continued healing!...
About 7 days after my remicade infusion I get slightly constipated for a day or 2. I use mirilax and it’s really easy to tolerate and only loosens stool slightly. I only need to use it for 3-4 days...
It’s weird for me after 4 years that I’m still finding foods I could eat before uc are now bugging me. Just this month I noticed I can’t eat eggs. They give me awful gas, pains, and bloating. Like...
It took me about 1 year to get my dosage, frequency and other supporting meds right before remicade worked completely. I had to increase from 8 weeks to 6 week intervals and add imuran. Since you...
I’d call your GI office. I was under the impression because it is a live virus vaccine it is not recommended for those on biological. I had shingles last year and asked about the vaccine....
My mom has been on mirilax nightly for 5 years and my friends toddler took it for a year. I don’t believe there is any long term ramifications with stool softeners....
I think your doctor is right...sounds like what I have with hemorrhoids. If blood is only apparent after wiping and accompanies hard stools. Did internal hemorrhoids show up on the colonoscopy? I’ve...
Begin the treatment. Whether you treat it or not, you will have this disease the rest of your life. By not treating it you risk worsening symptoms and increase your chances of colon cancer later in...
I had a large amount of Endo removed from my colon in 2 separate surgeries and didn’t experience much pain with bowel movements. If I am constipated Or have trapped gas do have some pretty steady...
About 1 year into my remicade infusions I had a small flare. I treated it with steroids and added imuran. It was much shorter and less intense than any of my flares prior to remicade. Here I am 2...
I wouldn’t necessarily consider it flaring but flares are very individual. Some have constipation, others diarrhea with mucus and others all blood. Typically a flare is urgent, increased frequency,...
That’s great news! Even better news that you now know you have a doctor that replies from vacation. 😄...
When I suspect Hemmorhoids I take a small dose of miralax for a few days to see if that helps alleviate symptoms. If you are straining less it puts less pressure down there. Any blood always has me...
Alan, Constant bleeding means you are flaring. Your goal is remission. Remission is absence of all symptoms. The longer you can maintain remission, the better your chances for not getting cancer....
You probably won’t hear many responses from people in remission and that’s merely because we rely upon this forum so much for support when we are sick and then we hit remission and we quickly get...
Is she currently taking any prednisone? I had a flare once that was worse at night and it helped to do a split dose of prednisone. It sounds like she is just waiting for humira to start working. The...
My husband who doesn’t have uc had urgency and horrendous diarrhea from tamiflu. I’d wait a day or 2 past the time you end tamifl and see what happens. After 2-3 days you’ll want to reevaluate....
Congrats!!!! I’m not sure about the other meds. I know for me once I started remicade I dropped all of my other meds at once but I was flaring at the time. I’m guessing if you were in those meds when...
Yes you can take them. I was prescribed and took Prilosec for a year but recently switched to Pepcid....
First, make sure to schedule a follow up with your doctor so that you can start treatment. Your GI may be waiting for pathology results before starting any medications but you’ll definitely want to...
Those are very pretty missing results. Congrats and I hope it continues to help you improve!...
I had panic attacks for a few years about 10 years ago. I recommend books by Lucinda Basset including “from panic to power” that book along with some hormone adjustments helped me a lot. I know how...
It always takes a bit longer for me so I take the 2nd dose 2 hours prior to scheduled time. You don’t want to take it too early as the intent is to have 2 distinct clearings....
So glad you opted for surgery! Keep us posted on recovery!!...
I agree that seems subpar. If you really want to stay with her for her qualifications maybe check to see if they have a my chart system for email. I have much quicker and better results via my chart...
Sounds like a hemorrhoid to me. You can ask your doctor for some hydrocortisone suppositories although you may have to go through a rectal exam first....
I would seek out a rheumatologist. I had what they thought was drug induced lupus and a positive ANA. But when I saw the rheumatologist they did more in dept blood testing and concluded I had a false...
I developed uc right after I quit smoking and traded cigarettes for vaping. I still vape and get the same amount of nicotine. So I would say vaping is not the same..I have no plans to quit vaping as...
I second the possibility of IBS. I recently had my colonoscopy and swore the results would be bad due to some creeping symptoms. But to my surprise doctor said it was cleanest he'd seen of all my...
I had very few side effects after starting imuran. When I increased my dosage I had a few weeks of a loss of appetite and that was it. I also want to mention that while we all strive to be symptom...
There's really no way to tell if that's a flare for sure but it certainly makes me think something is going on. Have you had a colonoscopy lately? That's the sure fire way to see what's going on...
I can't imagine he would take you off remicade but he may be able to pinpoint something else causing it. I have had some lupus effects from remicade and my doctor thinks staying on remicade outweighs...
I'm usually foggy for a day or 2 after infusion but I haven't noticed anything beyond that. Have you talked to your doctor about it?...
Wishing you the best song lady! You are truly an inspiration to keep on with exciting adventures despite this awful disease. You seem to just take life by the reins and live it to the fullest. I...
Well said ladies and gentlemen. All of the above 😀...
I have an excuse to avoid other people's cooking if I hate it. "Oh I'm sorry I can't eat your fruitcake, ulcerative colitis" and I can leave boring parties early without being a jerk. "I'm just not...