Agree with everyone else here, but in my experience the Budesonide did....... nothing. Started a flare and they tried to keep me off pred, this drug did zero. But it was a rapid and awful flare. Good...
HI, Sorry to sort of 'repeat' , as I saw a thread on this in June. But I am several months into Xeljanz, and very likely have associated psoriatic arthritis (pain in back, sausage fingers etc....
Hi, I was in a hideous almost year long flare after about 16 years of relative calm (some small flares), this one brought on by awful antibiotic. Nothing controlled it til Xejanz 10 twice a day, I...
I agree with the Poopmaster, no need to taper and ok to do a short burst, my GI has recommended same for some instances (not often). Agree also on the immodium, give yourself some reassurance and...
Xeljanz here, My doc at U of Chicago said to definitely get the booster. Actually just did it yesterday. As an aside, also must have the 2 Shingrix vaccines,,,,one down,,,,one to go. Not to scare...
Hello all, I'm into about my 4th month of Xeljanz, thank God it worked. And have shown up with pretty elevated liver enzymes. I have, in fact, cut back on wine consumption just to be kind to my gut,...
Hi, had ZERO luck with this at the start of a flare, went right to pred after 2 weeks, but mine turned out to be a really horrible flare. It is a different class than pred, with less side effects so...
Eight month flare. Humira fail Stelara fail Day 4. Xeljanz. Actual poop. Miracle …happy to answer any questions I haven’t gotten my blood work back but the doctor did tell me to expect a large spike...
I’ve been on mesalamine for the whole 16 years usually the prednisone would pull me out of a flare but this one was a goner. So I am off the Lialda. And full-time Xeljanz, not combined w any...
Hi, doing better and actually,,,,,,,without the med. I couldn't pick it up for a couple of days and I was already better cutting back on the diet. I think what everyone is saying is right, non...
I think I either posed this ? or answered it after I saw the doc, but my GI and my Derm strongly suspect I now have psoriatic arthritis. It is not uncommon to have aches and pains during a flare, my...
Doc prescribed Anusol suppositories for 10 days. Does not seem overly concerned but does not like the fact that I was this sensitive this far into treatment He is one of those doctors that is not a...
I certainly hope you’re right. Or that the Xeljanz is able to overcome it. But it’s pretty distinctive. Laying low for a while obviously. I just figured by week seven I should be able to branch out a...
Hi everybody. I posted previously I was doing extraordinarily well on Xeljanz. Now in week number seven and do for my week eight evaluation. I have been feeling so good I have returned to eating...
UCyousee, I am doing GREAT! I literally had improvement in FOUR DAYS after flaring for months. I was amazed. I guess I'm just about into week 5 and really no issues. It did give me a whopping...
Hi all, DX with psoriatic arthritis during a flare of ulcerative colitis, am now on third biologic (XELJANZ) that is finally controlling the gut. How long do folks see the drugs kicking in for the...
I am not taking it now, I had an AWFUL reaction. But my Walgreens was out and said at least 6 week backlog. I found it at Meijer (mid west chain). So yes, sounds like something is going on in the...
40 mg is the standard beginning point for prednisone for a flare, sorry your son is so young! Obviously consult with your doctor on any feedback you receive on this board, EVERYONE IS DIFFERENT. If...
Ugh, sorry to suggest this UC girl, but I just developed the same thing. 8 month flare, humira fail, stelara fail, now on Xeljanz (ummmmm possibly working!!!!) And WHILE I was on humira and stelara...
100% yes from my GI. I am 51, but he said anyone in his practice on Xeljanz needs the shingles vaccine, and Shingrix in particular. I am finishing week one. And I have my second Covid end of April,...
Thank you!...
Hi Ms, I just joined this group a few minutes ago and now see your post. I'm in the same spot, UC for 16 years, no issues, then MASSIVE flare up and for the past 3 months feel like someone has beaten...
Hello, 51 yo female with history of ulcerative colitis, (I'm on their forum), and heading towards an associated dx of psoriatic arthritis. Thought my horrendous aches and pains were from Humira /...
Hi team, 8 month flare, failed Humira, failed Stelara, starting Xeljanz next week under the care of the head of GI at the University of Chicago, feeling hopeful. I've searched previous posts, many...
Just an update - Rx was delayed, out of stock so just started taking it Thursday (today is Sunday); did NOT get the enteric coated even though specified to doc; and OMG. Old Hat......the nausea is...
Thx - I put stronger in quotes to avoid the confusing way she explained it to me, sounds basically like a different mechanism to address the same issues that mesalamine does. Also, she said stop the...
Hi team, 7 month flare here, failed Humira, heading to 2nd dose of Stelara next week ----- I see some moderate improvement here at 7 weeks, should I be happy with that? I thought Stelara should show...
Welcome to the club and SO SORRY for you, but with very little excecption - prednisone is your answer. I am almost done tapering after being on since August, many on here much longer. And yes, it...
Hi team, Always meeting when we are at our lowest, eh? Quick survey here and request for help: Started Stelara 3 weeks ago after failing Humira. 7 month flare. And I am improving! Only issue, as with...
I had my first infusion 3 weeks ago after failing Humira TOTALLY for 10 weeks (I actually got worse). No issues at infusion and after 7 months of flaring, ughhhhh, I am seeing improvement! Am also...
Hi, First off, good luck! I was diagnosed 16 years ago, very lucky, no issues. Major flare 4 years ago, currently in WORST flare ever. Failed Humira after 10 weeks and still on pred (since Aug 1)....
Nothing in between 20 to 10 drop, again, on advice of Endocrinologist. But popped back up to 15 and will taper at 5 or 2.5 per per instruction. I would think at this point in Humira, and still on...
Hello all, Week 9 of Humira with almost no real improvement, still urgency / frequency. Blood and D had stopped until step down from 20 to 10 of pred, then blood returned, no D though..... (rapid...
Yes, my current flare is like this, lots of blood. Moderators will chime in, but usually the rectum / lower part of gut that gets hit first and is the last to heal so you are very "friable", meaning...
Just got in for this afternoon! I think when they hear Humira they work you in - thank goodness....
Hi all, Week 8 of Humira, improving from AWFUL flare (could not get into doc for two months due to COVID and another month to get approved for Humira, so I was insanely inflamed). Very slow...
100% I know right BEFORE I start flaring that I am bleeding in my lower colon / rectum. Always first to come and last to go. I get a horrible lower back ache that is not alleviated by tylenol etc,...
Sorry for the delay, yes, mine was 5 every TWO weeks, to 25, then 5 /week. Still in the woods here so probably a couple of days in hospital for IV 'roids. Was good for several days then we had a huge...
Thanks iPoop, as always. Consulting again today, GI said weekly Humira (again next shot nov 4) til I'm really controlled, but got a call from the "preferred pharmacy" saying every other week order....
51 yo fem, dx 16 years ago, well controlled for most part -------worst flare ever, still fighting. Was improving, FINALLY, started Humira, and on 40 mg pred and steroid enemas, okayed by doc to start...
Agreed, left side, preferably with right leg bent over the left (left side decubitus position) - provides most complete coverage of the area you're trying reach. Can use a smallish pillow in between...
I had the same experience with steroid enemas during a HORRIBLE flare. I think I was just so inflamed that anything going up there was going to cause more irritation. Am heading into Humira this week...
If I'm in a flare, nothing "really matters" when it comes to diet, within reason (bowl of jalapenos not recommended). In fact, I find if I have a cup of coffee or two in the AM it "blows out" my...
Hi CC, Yes, re-starting steroid enemas to address localized inflammation. And have the mesalamine ones as well. Yes, tested for c diff, neg x2, just this week, full panel of fecal, TB, hepatitis, etc...
Hi all, 51 yo female, DX 16 years ago, 3 major flares and this one did it. Had an out of the blue kidney stone (no history - I posted about this a month or 2 ago) and was placed on Levaquin...
Budesonide did nothing for me at all - had to head to pred....
Hi again, per my 'virtual appointments' with the GI she is heading towards Humira but obv we will discuss options. This has been my worst flare ever. Very picky. Will go days feeling really well and...
Ok, thanks everyone!...
So , in flare one month, already tapering from 40-30 mg pred. Have 3 naturo path friends that SWEAR by colloidal silver for inflammation reduction (before there were antibiotics, etc, there was...
Hi again, yes I think the only change was removing "citrate" or similar from the formula, seemed to be an issue? Still waiting on Sep 29 appointment (flare , END OF JULY!) to evaluate. Took me from...