Metronidazole did not work for me at all. Yep, that's correct. That is my thought. Either that, or it's severe dysbiosys. I did have a little blood at the very beginning, but not much, and it went...
A few of you have been following my threads about going to Mayo Clinic and stumping them with the fact that my UC responds positively to Vancomycin and Augmentin, despite continually testing negative...
I'll barge into this discussion and remind everyone that the *ONLY* medications that have ever worked for my Ulcerative Colitis are Vancomycin and Augmentin. Mayo Clinic is baffled, because I test...
MarjieKay -yeah my symptoms usually start returning about a week after cessation. I can't be on it forever, although I know some people are kept on it for very long periods of time (months to over a...
I was talking about this in one of my other threads about the microbiota, but it got too convoluted and I think people stopped following it. But I feel like this is super important, so I'm really...
Letter to my 30-year-old self: "Hi, it's me. I hope you're doing a lot better than I am right now. After a year and a half of failing every med under the sun, life is abysmal. It would be great if I...
That is really interesting iPoop! My Mayo Clinic doctor suggested that I try mesalamine again in addition to the vancomycin...but I haven't added it yet because I *think* I had a bad reaction to both...
No one?...
10 days into Vanco 250mg 4x a day and my BMs are solid for the first time in three months. (Which was the last time I was on Vanco.) My urgency has vanished. Still having significant cramping, but I...
Hi everyone. My Mom has had RA for about ten years now. She got on a pretty good regimen that included low dose methotrexate and 5mg prednisone. Unfortunately about two years ago she stated getting...
I'm now creeping up on 12 hours without even the urge to have a bowel movement. My colon has been quiet. All of this, despite the fact that I spent all day today stressing out waiting to get word...
The Vanco my doctor gave me is less than half the strength of what I took the other four times, so not quite the miraculous turnaround I usually see, but nonetheless my cramps have completely...
I did treat with probiotics before, during, and after. Google fu won't find the answer, but it can help find possible answers that can be put into practice for real results. I went to Mayo Clinic...
I think what's causing me to go back into dysbiosis following antibiotics is probably the fact that I have dysbiosis in the first place: if my good guys don't outnumber my bad guys before...
Ah yes, agreed. My hypothesis is that there must be a quintessential bacteria that was wiped out, allowing the bad guys to flourish. My thought is that this may be why many cases of both IBD ave IBS...
I'm pretty confident dysbiosis is the cause, at least in my case, and I'd bet in many others. Someone suggested above that taking away the dysbiosis alone wouldn't undo the damage caused by UC, but I...
Omg this article is me. This journal highlights the connection between the gut microbiome and the brain-gut axis: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4340328/ As most of you know, I was...
Worst case scenario is, your UC goes into clinical remission but you have zero improvement of your symptoms whatsoever, and the rest of your life is a nightmare because you're chained to a toilet...
My UC got much better on amoxicillin....
Any suggestions from anyone?...
I would die if I ate that. :(...
He has not, maybe I'll give it a shot....
It seems biologics are in the exclusion criteria for those studies. :(...
I'm not positive it would help, but I'd love to try home FMTs. The trick is finding a healthy individual who I'm comfortable asking for their poop....
Well IF it's a matter of dysbiosis and not pathogenesis, until somebody can give me a road map for re-establishing the proper bacterial colonies, I don't have much of a choice. I've already done...
Yeah I have considered the possibility that my microbes may just be horrifically out of whack. But if that's the case how on earth am I supposed to fix it when we don't even know what the microbiome...
Yes that's correct, I had no inflammation last scope 2 months ago (with the exception of some minor inflammation in my rectum), but I do now throughout my colon. I can't recall which degree he called...
I had my 3rd colonoscopy in under a year Monday, and they also did an endoscope this time. Endoscopy looked fine, but it didn't go very far into the small intestine. Unfortunately he said my...
Thanks for all of the personal testimonies guys, it helps me feel better if this is the route we have to take. I'm getting some horror stories about ostomy bags from people in communities on...
So I'm getting my third colonoscopy in under a year tomorrow (ugh), and I've noticed a pattern: after my initial first couple of bowel movements after drinking the prep drink, for the rest of my...
I've tried a ton of probiotics to no avail. I've also tried Xifaxan to no avail, which is for SIBO. I'm convinced that my problem is pathogenic in nature (either due to bacteria, fungus, or...
Yeah my urgency is insufferable. I don't know that I would even call it just 'urgency,' because it's not just my rectum that's causing it: the cause is that my entire colon from cecum to rectum...
Having to literally run to the restroom 15 times a day because I will poop my pants if I don't find a toilet in under 10 seconds after I get my first warning. All I want to do is to be able to walk...
Very interesting! I guess I haven't looked into Jpouches enough. I just assumed that if I had to remove my whole colon, there was no hope for not getting an ostomy. What are some reasons people...
I've tried budesonide, and a ton of other stuff. My issue is not inflammation. My inflammation is gone due to the Remicade. My issue is relentless uncontrollable diarrhea. I'm getting my first...
My GI has no idea why I'm still having symptoms either. Which is why he gave me the 'IBS' diagnosis. I'm pretty certain surgery would eliminate my problems, because my only problem is that I have...
I feel like I may be approaching the point of wanting a colectomy and bag. I'm in clinical 'remission' from Ulcerative Colitis due to Remicade (confirmed via colonoscopy and blood test), but I still...
Doesn't it?...
I'm actually getting my first endoscopy next week. Along with my third colonoscopy in under a year, ugh....
I've had these symptoms every day for a year and a half now. (Except when I was on Vancomycin.) My GI 'diagnosed' me with 'IBS,' which is really just a bull diagnosis, because 'IBS' is another way of...
Ugh, is there any way to tell now that I'm on Remicade? Pretty pissed that this whole time, the other meds I had been taking may have been working and we didn't even know it....
I am in clinical remission confirmed via colonoscopy, meaning I have no active inflammation, my mucosa is intact, and my biopsies and bloodwork show that my colitis is 'dormant.' I have all the same...
Keep in mind I'm in 'remission' from UC, but none of my symptoms have improved at all. I'm almost positive my issue is bacterial. I improve to compete normalcy on Vancomycin immediately. There's no...
Since I'm still having all the exact same symptoms I've always had even though I'm in 'remission' from UC, how do we know all the medications I tried before resorting to Remicade didn't work to...
Could a chronic infectious process not cause 'chronic colitis?' It does the same thing: repeated inflammation and healing cycles....
Does a biopsy that comes back as "chronic colitis" mean Ulcerative Colitis? I'm still trying to hammer down what's wrong with me. My GI says that a "chronic colitis" biopsy can only mean ulcerative...
Add another failed IBS medication to my roster: Lomotil made me *exponentially* worse. Just like Imodium did. It paralyzed my colon for six hours, but after that it was like I took colonoscopy prep....
Well I'm IBS-D, so I can't relate to the constipation unfortunately, but whenever I my colon decides it's time to get it out NOW and I'm not near a restroom, I have to fight against my colon which is...
Please tell us what your infections are. I'm convinced my problem is bacterial in nature, because every time I've been put on Vancomycin I become completely normal within 24 hours of the first pill....
I sure hope you're right. I've already tried a few meds for IBS to no avail....