My son started Remicade almost two years ago when he was 10. It worked immediately after the first dose (literally by the time we were home from the infusion center). However, we had a little trouble...
Check with your insurance company on the difference in copay if you get 90 day supply versus 30 day. For my son, a 90 day supply of lialda has an $80 copay total. For a 30 day supply the copay is...
A couple of things that can save you some time. My son takes his premeds (Tylenol and Benadryl) before we get to the infusion center. They won’t start the infusion for at least 30 minutes after they...
Well, I guess it depends on how bad your symptoms are and what you are willing to do to combat it. I certainly understand your desire to use natural means but if you are really suffering, I would...
Of course it can get better. It can take time, everyone is different but you can definitely reach remission. It may take some time to figure out the right medications and dosage and possibly the...
Just FYI, my son's levels were checked after the second dose and were good, but it wasn't working despite it working for about 10 days after the first dose. We increased frequency to 4 weeks and the...
Any thought of increasing the dose of Remicade to 10 mg/kg? My son had good but inconsistent results from Remicade. We increased the dose (and added a few others meds) and it was a huge improvement....
I checked my son's GI on that website. She was paid $135 over the time period covered (3 or 4 years I think). Not a fraction of enough to cause any type of conflict. It is a pretty cool site. Of...
I wasn't trying to imply you or anyone else was second guessing my decision. Hell, I've second guessed my decision countless times. I was just trying to give the perspective of someone who had to...
My son's doctor doesn't see any of the money from the Remicade infusions. That's done at and billed by the infusion center/hospital. I would imagine that's the way it's done most places. The entity...
I had to make the decision being discussed here; whether or not to put my son on Remicade. I can't say it was easy and I went back and forth on it. He was very sick at the time. I know it's easy to...
You can see very quick results with Remicade. Often times the same day. My son was very sick and was massively improved by the time we got home from his first infusion. It took a couple more...
My son had blood dripping like you said you experienced. Canasa stopped it literally over night. It only works for the very end of the bowel and rectum, but if blood is dripping, that's where it's...
My son saw immediate results after his first infusion but it only lasted about 10 days. It wasn't until the third one that it lasted. You might leave there feeling much better if you're lucky....
Check to see what the cost is for a three month supply. My son's Lialda had a $240 copay for one month but a total copay of $80 for a three month supply. Ridiculous I know, but its worth checking...
A couple things I do for my son's infusion. I give him the Tylenol and Benadryl before we leave the house for the infusion center. You need at least 30 minutes after taking these before they will...
I'm sure voters will. It's exactly what happened in 2010, although the other way. And then again in 2014. "Leaders" like Nancy Pelosi and Harry Reid took it on the chin. Just as many people disliked...
That amount is very high. My son's most recent treatment, last month was billed at $15k but the approved amount (the amount my insurance actually paid the hospital) was $7k. This is for the double...
My son has been on Remicade for about 9 months. He hasn't lost any hair. He's on a double dose every six weeks. I've never heard of hair loss being a side effect. •••corrected every six months to...
I think the argument would be that middle class people are doing it on their own dime. If someone on food stamps has enough money for non-essentials, particularly for vices, maybe they don't need as...
How can healthcare be free? That truly would be amazing....
One has nothing to do with the other. I was merely making a response to the statement put forth earlier that physicians may choose not to participate in a nationalized health care system. I think...
Under a single payer system you would see an increase in concierge medicine, especially for top level specialists. That would be an unintended and unfortunate consequence....
I agree with everything you said, but that wasn't my point. My point was that the poster whom I quoted (naturalcures) stated the other posters aren't doctors and it's important to listen to your...
Im very sorry to hear about what happened to your brother. And of course you're correct about ipoop not being a credentialed doctor. Where you loose me though is that ipoop was just letting the...
Canasa, a suppository, has worked very for my son to stop bleeding. It worked almost immediately. He's on Remicade too, but was having some bleeding. Canasa stopped it....
I understand that you might be worried but 5'8" at 16 isn't that bad. It's probably pretty close to average. The only drug for UC or Crohns that I've heard can stunt your growth are steroids. Enemas...
My son has had no problem staying on his swim team. You'll run again....
Keep in mind that this site skews heavily toward people with more complex cases. Someone with UC that takes lialda or some other medication, goes quickly into remission and stays there is much less...
My son has been on it for almost two months. As far as I can tell, he hasn't had any side effects. At least he hasn't complained of any....
If you spent 19 days in the hospital, I would think your case is serious enough to want to start a biologic. I guess you could try a suppository first....
You can also buy iron supplements over the counter. They aren't expensive....
Mail Handlers is under Aetnas network. I believe Aetna bought them. Check on a three month supply of the suppository that worked for you. You can just call and they will tell you how much 3 months...
Slightly off topic but if you have Mail Handlers insurance, check on the copay if you order a three month supply of your meds. I have Mail Handlers (I work for another agency but can get it) and my...
While there is an increase risk of cancer from it, it's still very low. My son is doing well on Remicade. We've had to adjust the dose and interval a few times, but overall it has worked great for...
Just so I'm clear, I never put my son back on prednisone after it stopped working. He had his third Remicade dose right after and it worked immediately (but that was after the second dose of Remicade...
It sounds like the Remicade and/or Prednisone is working. It's not always magic. One dose, boom remission....
Often times Remicade works immediately. It did for my son initially but only for several days. But not always. Prednisone only worked for him for 10 days too. Then Remicade worked again for a couple...
I'm certainly no expert but you haven't even completed the loading doses of Remicade yet, let alone trying a higher dose. It's only been 3 days of the medicine. Wouldn't the next step be at least...
Remicade can work very quickly, so he might see almost immediate results from an increased dose. My son is having his dose increased in an effort to get it to last longer. Your boyfriend is at the...
I'm also a parent of a son with what is probably UC (that or Crohns). But my son is much younger (10). Thanks to the medicine we have been graced with, he's living a normal life for a 10 year old...
My son has been on remicade since late September. It's worked very well for him. A couple of the infusions didn't seem to work completely and we had to keep the intervals at 4 weeks. We've uped the...
I guess it would depend on if it's brought to market by a US or foreign company. That would be who funded it. Pharmaceutical companies in the US are products of a free market, capitalistic system....
Putting aside for a second that many US companies heaquarter abroad due to lower corporate tax rates, I am curious as to which single country is responsible for more medical advancements than the...
I really wasn't trying to get you upset. I was just pointing out that one of the positives of our flawed healthcare system is that it does produce a lot of medical advancements. More than any other...
I'm not saying great advancements don't come from other countries as well but are you actually debating that the US doesn't produce the most?...
I certainly don't think Americans discovered everything and of course medical advancements would go on without the US but there is no way around the fact that in the past several decades at least (so...
I think the US healthcare system leaves a ton to be desired. My first post in this thread was about how screwy my copay system is ($200 for one month or $80 for three month supply?).It's just that I...
I guess by disagreeing with you I'm being defensive? I can't bring up reasonable points in a discussion with you without being defensive? I just need to agree and move along I guess? Got it....
Well, I guess I have to beg to differ with you on that. The vast majority of medical advancements (not just crohns) come from the US. You listed a couple from other countries (and continents for that...