I don’t know if we have the brand you mentioned but I have used Tena pads for incontinence before. Train toilets is a really difficult one to answer specifically because it would depend on which ones...
Hi, I'm actually posting on behalf of a friend with colitis, but she was diagnosed yesterday and is struggling to open the newly-prescribed Salofalk suppositories, I figured that tons of you will...
C diff and some similar things, and cal protectin. My calprotectin was under 200 which they said was good and I tested negative for C diff. I still have symptoms, but I am back to how I was before...
Ah thank you, that’s actually very reassuring :)...
I had stool tests done today, this is a weird question but I did a steroid foam enema last night and my first stool this morning I used for the stool sample, afterwards I realised that maybe there...
Still bad :( Yeah good idea… I do know about c diff. I almost hope it’s that bc a 10 day course of antibiotics for it might be better than realising I’m now in a really aggressive UC flare or...
I’ve put myself on a low residue diet today and will do the same tomorrow. Probiotics are arriving tomorrow I think. I had my last dose of the antibiotics 24 hours ago, obviously what I don’t know...
I've ordered some probiotics that should arrive in a couple of days, so that's a start of something that could potentially (albeit not definitely) help!...
Yeah, I think getting back on some probiotics would be a good idea for me... The antibiotics are for a separate issue. I must've been to the toilet 15 times since I woke up and I haven't been awake...
My colitis still had symptoms but I don’t know if it was due to active flare or scarring. It wasn’t super bad. I’m on day five of antibiotics and I’ve been to the bathroom like ten times since I woke...
I’m not sure, but I think 2g might be equivalent to 2.4g in America… not sure though, I just know we’re usually prescribed 2g or 4g and I think you usually have 2.4g or 4.8g? Yes I’m on enema but...
(Or I think 4.8g is the equivalent in America?) Does it become too dangerous above 4g? I will be honest that I forgot to take my usual 4g dose two days ago so I have taken 6g yesterday and 6g today....
Hi guys, I did make some posts here a couple of months back. Well I started filgotinib just over a month ago, and whereas before I was sometimes going to the toilet over 10 times a day, at the moment...
Great thank you. I started on it just a week ago. Fingers crossed it's the drug that works well for me :-)...
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If you have ulcerative colitis and it would go to a state that is so serious it could kill you, how would you know? What symptoms would you have and would it come on suddenly? Stuff like toxic...
I forgot a crucial thing to add. Whilst some ulcerative colitis may be triggered by trauma, there may also be MANY OTHER POTENTIAL CAUSES. And even in the event it may have been triggered by stress,...
There is a link between trauma and disease, period. There is a link between stress and disease, period. There is a link between gut health and mental health. I am personally of the opinion, OPINION,...
sorry, im so sleep deprived (have barely slept in two days) and my mind is kinda weird rn , just wanted to add, im not sure about the filgotinib whether i will actually take it, it depends on the...
Aw thank you <3 I really appreciate your response and help very much. Yeah I wasn't really proactive enough dealing with this until recently, but I feel really motivated right now to get on top of...
Feeling a bit glum atm :( still going with lots of urgency and quite a lot of times per day, and "stools" are liquid. I've been on granules for nearly three weeks and enemas for just over one week,...
At the moment have started two at diff times per day. helps because my retention isn’t always great so doing two obviously increases the time the drug is in. thanks guys, i will definitely let you...
Hmm, yeah idk if its like 2+2=4 where if you do two 2g enemas at once it’s 4g, like taking two tablets one after the other immediately, or whether it’s like 2g but more of it. I have no idea...
Yeah, we don’t have 4g available here. Do you think I could do two 60ml 2g enemas at once, one straight after the other as if it’s one 120ml enema? If not I could try one twice per day at different...
Last night's enema has been in 9 hours 20 min so far :-) I'm happy about that, it's the longest I've kept it in in the five days I've done them this week. I like to take a note so I can keep track....
The front or back of what? Yeah, going off meds although there were other reasons (like a kind of medicine phobia) was extremely ill advised of me, and something i will NEVER do again. But just like...
Instead of making new threads, I'll use this one to ask a general UC question - I've never had this symptom before, but I'm having repeated left side of my belly spasms or like flutters. It almost...
The enemas are still annoying, when I do them it’s like my hands shaking and it’s really hard to squeeze even a tiny bit in.Can you do local damage to that kinda area of the body if you do the enema...
Yes, after these experiences, I think I'm learning my lessons! A few years ago, I even stopped drugs altogether for various reasons, but a part of me thought that as I had been in remission for...
And thank you, I felt more comfortable doing the enema with the tips you all suggested :)...
Accordian style. I will ask about 4g enemas next time I speak to a doctor, just in case. I believe I asked once before and they didn't really do anything with it but I'll ask again. I do wonder if...
Thank you. I don’t know if they do 4g ones in UK. I could check. Are you in America?...
After not doing enemas for a long time, I’m starting doing them again. I lie on my left side, left leg straightened out, right leg bent and apply the enema with my right hand. It’s very hard to...
Hi, I'm on 4g sulfasalazine per day, my doctor said that I can take it all at once, even though it says on labels and the packet that you should take it in four divided doses. Online googling says...
This isn’t completely solved, but potentially gotten a lot closer! My main concern over the past few days has overwhelmingly been a loud crackling type sound every time I breathe in and out that gets...
Hmm weird, hives just came up again, but didn’t go outside this time. My window’s been open, could that be it? I took sulfasalazine and had some nutella on toast… So strange! Maybe it’s just random?...
I’m really hoping it’s the Stelara or Piriton bc I am hoping to come off Stelara anyway so after a few months max hopefully these weirdnesses would go away, and I last took Piriton on Wednesday...
Aw thank you you two :) I really appreciate it. I will leave it tonight unless it gets bad with struggling to breathe or something, tomorrow I will go to urgent care. I will make sure to let the GI...
It’s early hours of the morning here during the weekend atm, do you think it’ll be alright for it to wait a couple days before I see the doctor? I’ve never had these sounds when I breathe before so...
I’m also concerned that I’ve been hearing crackling type sounds every time I breathe in and out for 2-3 days, I probably should’ve gone to a doctor for this already. They’re getting louder...
Thank you guys. The only new med I took recently is Piriton the antihistamine! The day after is when this started. Is it possible it could be my body doesn’t like Piriton, or is that unlikely? Why...
Hello, I've had a cough for a few weeks, a week ago a doctor recommended I took antihistamines in case it was allergy related. I took one dose of Piriton I think it was. The next day I went outside...
Thank you, it took me a LONG time to drink, many hours after the instructions suggest, and I didn't actually finish all of it. I mixed it with a bit of Crystal Light although I never tasted it...
Hi Everybody, I have a colonoscopy next week, unfortunately I have virtually a phobia of taking medicine, even liquid medicines... I don't like taking just a few ml, so as you can imagine I'm feeling...
Out of curiosity does anybody happen to know the stats on like... how many people are happier after surgery vs how many people are dissatisfied? If such stats exist?...
I'm just curious... Remicade and Entyvio didn't work, on Stelara at the moment and after just over two months, not working so far either... Not saying that it won't kick in - I hope it does. But......
Hello, I’ve been on stelara for nearly two months now (one dose) ... I’m doing badly and worse than I was a couple months ago, I think. Lots of urgency and going many times a day... (I’ve already...
I was on Remicade for about a year, I don't think I noticed any benefit from it, but I also noticed no side effects from it. I guess it's not totally impossible that delayed side effects could hit in...
Quick question! I've seen VSL#3 recommended a lot but then I saw something that said that the guy that came up with the original formulation left the company and the product has since changed but...