Hi mark I know uc is unique and what worked for you may not work for me. But what changes did you make? This question is for everyone actually Top lifestyle changes ? :)...
Hi thanks for all the reply’s. It really helps. I’ve using the enema every night instead of every other night to see if that helps. I can’t go any higher on azathioprine im as high as I can go. I...
Short backstory, I have been on pred for about 2 years on various mg’s and tried several times to get off. I have been dropping down by 1mg every week in hope that decreasing really slow would help...
I have been on pred now for too long, about 18 months. I here so many horror stories and want to get off this drug so bad. I have tried to taper down several times but with no success, In my last...
Currently on 200mg azathioprine, humira injections and 10mg of pred. I have been trying to get off pred for some time but 10 seems to be where I get stuck. Might adding mesalazine back into the mix...
I was landscaping my garden on the week or two before uc srarted. Don’t get me wrong my stomach hadn’t been right for months. But it wasn’t super bad But after the week of digging lifting and...
I’m the same when I’m flaring as soon as I drink I got to go. I would suggest getting up extra early if you have to go out while flaring and drink water as soon as you get up. After a few trips to...
Upped to 30mg of pred to finally get control. Still a bit of blood but but my stomach finally seems to be calming down. Need to start tapering asap I’ve had about 6 hours sleep over the past 3 days....
Hello just another update, I went to my GP on Monday the 12th march. We believe that I don’t have C-Diff or any other types of infections. I have gone back up to 20mg of Pred which feels like a...
Another thing to worry about. I don’t think it’s c.diff as I’m worse in the morning. Which is typical when I’m flaring. I’m guessing I would be really bad all day with c.diff. But I could be wrong...
Thanks for everyone’s responses it makes me feel like I’m not going through this alone. You’re all amazing people....
OP here again Thanks for the advise I am going to Increase my pred as the last few days have been awful.I having a bad flare up and each day seems to be getting worse. But my flu is almost gone so my...
Hi OP here OK so im about 2 and half weeks in. I have just dropped down to 2mg of prenisone but I feel awful. I guess 2 weeks was too fast, I have stomach cramps my energy has gone I’m going to...
It seems like im in a lose lose situation. I think 2 weeks is way to fast aswell, but i dont know how i will react to taking all 3 at once.I guess i just see how many body reacts and fingers crossed...
I’m starting humira on Thursday, just received my delivery of the needles/pens today. I’m Hopeful these will work. I’m currently on 200mg Azathioprine and 10mg prednisone. I have been on various...
Hi as the title says I feel feel fine. I go to toilet 1-2 times a day, no urgency no pain but fir the last 2-3 weeks there has been a bit of blood in the toilet after I go. Any idea why this could be...
About 2-3 months ago i started using VSL 3 and it WORKS(for me at least). Since I have been taking VSL i have been so much better, 1-2 formed bowl movement a day and the longer i have been taking it...
Thanks for all the replys. I've spoken to my gp and VSL3 is not covered under the NHS but i will ask at the hospital when I see my gastroenterologist see if there is anyway at all it can be covered ....
Hello all. My order of VSL3 has arrived today. I'm going to be taking 1 pouch a day for the next 30 days and see if it is worth the money. I will keep updating on this forum ever 10 days with any...
UPDATE: been to see the doctors who has advised to go up to 20mg pred And has booked my In with the gastro at the hospital....
Hi in my experience pred has had almost immediate effects. Works after a day or two....
50g of aza for 1 month. 100g of aza for just about 2 months. So fingers crossed it kick in very soon :)...
Thanks for all the replys, i have woken up feeling much better today and am trying to stay at 10mg for a few more days and see how it goes. I have still contacted the doctors, and i am going to ask...
Thanks for the reply. I think I am going to jump back up to 15 mg tomorrow and ask for 1mg tabs So I can drop 1mg a time. I've tried enema before but I couldn't hold them in, I find suppositories...
Hello everyone, going through a low moment right now and was hoping for some advise or support. My back story, i was diagnosed with UC in September 2016 and was put on a low dosage of (asacol)...
Im in the same Cycle, tried to come off pred 3 times now. First time i got down to 20-15 mg before the symptoms came back. 2nd attempt i came down to 10-5 mg and then again the symptoms returned ....
Thank you, i will give gas x a try :)...
hi im taking salofalk 3g granules and 1g salofalk suppositoriesand i have UC. for the gas its more of a build up of gas i can feel my stomach going hardish and then i ill do a series or farts/burps...
Hello everyone :) does anyone have advise/know any good products for dealing with gas. On a evening mainly I find myself burping and passing wind a lot. Particularly after eating vegetables, I don't...
I find being open about it is the best way. I just tell people I have ulserative colitis I have found most people know about it or know Somone else who has it. The few people who don't I just say...
I have been using salofalk 3G prolong release granules in the morning and a 1g salofalk suppository on a night. I am on my 4th week of this new treatment and seeing great results. I was previously on...
Hello and welcome! Everyone is different so you will have to play about with your diet, but here are some foods that work for me, potatoes, oats. Chicken, eggs, and red meats aslong as they are not...
For the past 3-4 days I have been in pain when I go to toilet and for a while after. I do not think this is uc related because I have been doing so well the last few weeks, google seems to think it...
Im on prednisolone 30mg soon to be decreasing And im not on any enemas or butt med :p...
Hello again guys! So 3 weeks ago I had a bad week and after a week went back to the doctors and increased my steroids up to 30mg daily and 4000mg of mesalazine 5x800mg. the good news is My UC is...
I know this question sounds very dramatic, but thankfully i am getting a bit better now and i am hoping i will be going into the new year without being on a flareup. I do have a few questions for the...
thanks for the advise guys, i dont think i will limit my food as ive already lost almost 20lbs and im already a skinny guy. But i have started to take the foam enemas and hope i will see some...
Hello, new poster here :smile: I have been diagnosed with UC and have been on a flare up for 3 months. I am really struggling throughout the night and on a morning. i typically go to sleep around 2am...