Hello everyone, I know this is an old post. I was doing a search to see if my question was already answered. I too have no one in my family that has the condition. I do worry at times about passing...
Loved this! This would be the same letter to my 21 yr old self! 👍🏽...
This looks promising too. Targets the microbiome of the gut, first set of results due in a month. http://ir.serestherapeutics.com/phoenix.zhtml?c=254006&p=irol-newsArticle&id=2278706...
I hadn't heard of the FIN-524 either, until I looked it up just now. Gives me great hope that hopefully there will a safer long term solution to end suffering!...
Hi all, Not sure if anyone has heard or the maps vaccine? Their hoping for trial on human soon after reaching certain funds. But it has worked on animals. It's sounds interesting, but not sure if it...
Sometimes thickening to the bowl walls due to prior active inflammation means that the capacity & muscles to hold on is a lot less than usual even when in "remission"....
Thanks for the reply, gd to know. Will have a read about them....
Yh blood testing, X-rays, MRIs & synovial fluid samples....
By my rhume, initially they thought I had AS as the onset was mainly sacriolitis along with my bloods & uvieitis. But as things progressed prognosis was reactive arthritis....
UC when active is debilitating enough without an addition of joint issues. I get pain & stiffness & find the longer I leave my UC unmanaged my joint situation escalates to a flare of the synovial...
I didn't know of the test or the gene. Where I'm seen I think they test for i in certain cases. Like you said superbowser for their own findings. FSLondon, do you find when your in "remission" with...
Your right sometimes it holds no bearing at all. I have no family history of IBD at all. After a course of antibiotics bk to bk & food poisoning is what triggered the disease. 4 years later the other...
Thanks for the response, do you find the symptoms occur when flaring or are they are not related? I'm trying to figure out how limit the joint flares & only a month ago thought to try a diff diet....
Hope all goes well, try & keep positive. Wishing you the best outcome!...
Hi UCandME, I was looking up Uc and entropathic arthritis, and one of your old posts came up when you were enquiringly about it. It's been a few years since, & just wanted to ask how have your joint...
Sorry typo hla b27! Most people that have UC & develop joint related issues are likely to have the gene. Usually your GI or who sees you for your joint symptoms would test you....
Hi everyone, I have been reading up on the hla b26 gene & it's high link to autoimmune conditions. Wondered if anyone has been tested for it & if they were positive?...
Other indicators in tests would be your platelet count & white blood cells they are usually higher when in an active flare or inflammation within the body. Just a thought, maybe worth checking if...
In the past low levels of iron & vitamin d made so so so fatigued. To the point where standing up from resting I'd get real dizzy. I'd check your ferritin levels & vit d, & b vitamins too in case....
Thanks for the link, I've actually downloaded her densercise pdf. Which I've started, so hoping to increase some density, if not at least prevent anymore loss. Will know if there's improvement in my...
Hello Kitty, Sorry to hear your having a hard time with all these issues. I can't really give an opinion on the whether the gastritis is linked as I don't know much about it. It's not clear whether...
Will let you know when results come in. Will most likely be later in the week. X...
Straydog - did you regain some bone density back or prevent it from getting any lower? Cupcakes - that's great news! Glad to hear, I'm current doing some Physio to my knee which is what mainly...
I've recently stopped sodas for a month now & don't extend on drinking again. The calcium I take was prescribed by my doctor, been directed to take twice a day, they are 600mg tabs. So far I've been...
I will read up on that, not heard of that before. I'm taking magnesium too. I have read K2 is really good for calcium absorption but I'm afraid to take it as I suffer from reactive high platelets &...
I am taking calcium & vitamin D at the moment. I get a dexa scan every 3 yrs. So I'm being monitored, I want to put in the work where I can excercise wise to see if I can improve it or at least...
Thanks a lot Charlie, I will give it a good try & see what results I get. Need to strengthen the muscles around my knees too as I have had loss due to not using them as much when I've had joint pain...
No meds, apart from calcium supplements. There are people that have had improvements. But along with diet, weight bearing excercises are crucial for improvement. Just wondered if anyone had any...
I'm not really clued up about the symptoms regarding CD. However I really wouldn't worry about having taken asacol. If it has helped symptoms I would continue taking it. It's deemed safe in pregnancy...
Hi all, Wondered if any of you that have suffered from bone loss & have had any luck building back bone mass? I have been diagnosed with osteopenia, my recent scan shows most of my loss is in my...
No worries, I've had a search online & not had much luck. So keep an eye out if it persists. Also will see what lab results will say. Thanks for all the responses....
From sulphasalazine? I've been on it for years, it's my first time noticing it in the last few days. I'd say they are like roundish specks rather than beads....
FlowersGal looks exactly like that, they just in white. When I told my nurse she didn't have an answer & said it's best to get the stools tested. Owleyes - do you think it could be dead candida? As...
Thanks for the reply. It's only been recently, I'd say three days now. Nothing's changed medication wise. It's definitely not mucus. I called my GI nurse to do a stool test to check for any infection...
Hello everyone, Have a query to anyone who can relate or knows what might be the cause of white specks in stools? It's not mucous, formed stools, normal brown colour but a few white specks all over....
Thanks for the advice Boris, I have that in the back of my mind & worry that it could happen. The probiotics arrived yesterday, I am currently concentrating on the diet & feeling ok. So I will take...
Thanks, will give it a try!...
Thanks everyone, good to know. Quincy - I'm not on any at the moment, I have purchased vsl3, waiting on its arrival. Looking into l glutamine at too, just not decided on what brand. Started adapting...
Hello everyone, was doing a bit of reading on the UC. Found this article & others that promote butyrate to lower inflammation & resistant starch to lessen diahorea....
It really is expensive hence why I wondered if I could pay the NHS fee instead if the were to be prescribed. I have found them for £49.99 for 30. Still expensive! The onset to my UC was 3 diff course...
That's a sham isn't it, I hope that changes. I will give it a try, start with small amounts & build up. I notice in your signature you take L - glutamine I've been reading up on this a lot lately as...
Thanks so much for the reply! Will check them out. Do feel they made a difference? Have you tried your GP or GI for a prescription? That way you pay less? Worth a try, I heard some people have got it...
Hi all, I want to try probiotics, & gathering from the forum the vsl3 is the most popular & helpful here. Also read abt boulardii. But will try one at a time. I know we're not all located & based in...
Thanks Quincy, that makes a lot of sense. I've heard of predfoam, but didn't know there was rectal mesalamine. Good to know. Poopreallystinks- How does FMT work? Not heard of that. I honestly learn...
Thanks for the reply worriedUCer. I am looking to purchase the probiotics as I've never tried them. Is there a starting dose or a recommended way to take them? Sorry to ask but what is FMT?...
Bump.....
WorriedUcer - thanks for the info, will look into it. Are you not on any meds at all at the mo? Really I just want to say thank you, to all of you. I've been a member for years. I've dipped in & out,...
FSLondon - thanks for the great tips, all sound yummy. I'm slowly adjusting. The hardest is the no bread, pasta, cakes lol. Find it hard to stay "full" if you know what I mean. But I'm hoping I see a...
ReeCar85 - How have you been holding up? You have been in my thoughts, hoping the pred has kicked in & your finding some relief at last. Best wishes. X...
Hi Quincy just say saw this. What is LDN? I do need to find a gd probiotic & digestive enzyme just reading up on it all before I decide. If you have any recommendations that would be great. I can...