Hi Joanna! It’s Caroline. Sorry to see you here but glad you are getting support. Hoping that things get under control and that you feel better soon! If you have an instant pot, that’s my favorite...
I achieved remission using a combo of Chinese herbs and western meds- and to find the one formula that helped me I tried about 9000. Even now people helpfully suggest I should try giving up...
I am of the mindset of- if you write it, they will come. Even one person may find relief through your experience. Some of the things on these boards that had been the least discussed have helped me...
That’s really interesting you say that- I am currently on oral budesonide and tapering, but when I first started it the results were so great I thought that using the foam at the other end would...
Thanks, iPoop! That’s a good point and who knows? Maybe I’m getting benefits from all of them? Of course I want a clear cut, surefire answer. (Insert eye roll) I never thought I would be putting so...
I have a follow up with my new GI tomorrow to find out more details on my microscopic colitis diagnosis. I have used canasa for years with my UC- sometimes with success, sometimes literally feeling...
Thanks, Quincy- that’s a good call. From what I have researched, the symptoms and treatment are very similar with collagenous being a little more stubborn. And since you always have the scoop on...
Quincy- I do not know which one, and I am not sure I received a copy of the biopsy report. My new doctor definitely did- I am seeing him again next week and will ask. Whatever it is has been driving...
Long story short, even in remission with my UC I have struggled with diarrhea. My GI attributed it to IBS-D (which means nothing) and really didn’t do anything for it. I learned to deal with good...
Sorry to hear you are still having some not fun symptoms. That has been my issue in the past, especially with fruits and veggies. I do okay as long as I limit cruciferous veggies, and taking plain...
Hi LondonRed! I don’t really use it during remission, unless I start having early warning signs. The first time I used it during a flare my acupuncturist has me do 5 pills 3 times a day until pain...
Diagnosed in early 2013 with severe pancolitis- I have done steroids as well as mesalamine for both ends. Every healing diet imaginable, thousands of dollars in supplements, naturopaths,...
Sorry about your flare- I’m a longtime apriso user and it’s been good for me. Not sure how far it goes into the left side, but I agree that adding enemas and supps will help a lot. When I feel one...
I'm in clinical remission and do not take itnon a daily basis now, but if I ever feel a little "off", I take it and things clear up for me. I am a big fan....
I had similar issues and my dr said the same - I think the fatigue was coming from my transit being so fast. Nothing gets absorbed! I read somewhere that a calcium supplement (I am using Caltrate...
Thanks all - good to hear. I have not had to take antibiotics since I was diagnosed 4.5 years ago so it's been a nice run! This makes me feel a lot better and I'll DEFINITELY bump up my probiotic...
So, unfortunately I have come down with something and am getting tested for strep throat. I am terrified to take antibiotics and possibly trigger issues with my UC - any thoughts on safer antibiotics...
I second Quincy- and ginger tea is soothing to me for the pain. Good luck!...
Thanks, Susie- I ended up going to my doctor on Friday. Apparently my body was not used to have solid poo and it gave me a severe flare of internal hemmorhoids, which is super lovely. I had never had...
When I was coming off of my first flare, I developed weird raised bumps on the back of my tongue. Of course I turned the internet upside down trying to figure it out- hahaha. I never found out what...
Thank you both! I would love the name of the cream that you liked, straydog. Cathy- it was the Caltrate with D3 and I was trying different doses butbyes, 3/day may have been aggressive....
Hi there - first time posting in this forum, as I'm usually part of the UC one. But I was hoping you might have some help/suggestions for me. Long story short, I was diagnosed with IBS-D in college -...
Isatis Cooling...
Katerina- I am unsure of how it interacts with other herbs, so you will want to check into that. Maybe a second opinion could be helpful? Good luck....
Hi Zarch! When I was actively in a full on flare, I did 5 pills 3x a day until it subsided. I weaned down from there as I improved. If you have an acupuncturist or herbalist near you that you can...
Hateuc- thanks so much! I will still take the Isatis Cooling if I feel like things are going a little off course, and it generally gets things back in line quickly for me. A lot of people take it...
Thanks, ipoop- you are so right. I am terrified of going backwards- it's a healthy fear to have for sure. I know how lucky I am! Therearemiracles- thank you so much!...
Just had my first colonoscopy in 3 years- I have been in remission for about 2 from a symptomatic perspective. I was diagnosed with severe pancolitiis 4.5 years ago, and my most recent flare 2 years...
It's a Chinese herb that some people have had success with. If you use the search function you will find several threads about it. This is where I heard about it originally....
Me! I used isatis Cooling 2 years ago to get into remission after reading about it here. At the time, I was flaring badly and had become prednisone resistant- we were looking at going on Remi. I had...
Hey there, I hope you feel better soon. I agree with Quincy - giving rectal meds a go would be a great call and would likely provide some relief. I have experimented with lots of supplements and...
Awww! What a sweet story. I am a sucker for pets too - and we have a black kitty named Jack that adopted us 6 years ago. They find a way to their homes just like Pumpkin found her way to you! Glad...
Canasa used to come in 500mg doses, but now it's just 1000mg. It's not an exact science but I have been known to cut them in half to stretch them out....that helps with the cost as well....
Hi Jessa - I never took a separate prebiotic supplement as I didn't know what was in them or how I would react. I'm sensitive to many FODMAP foods, especially when I am flaring or having any...
Climbsnowgirl- yes, that's the one! I usually get it from Amazon. I hope it helps you too...keep us updated!...
uBiome is a really cool company - I was able to get my testing done for free as they were doing a study on IBD. I have mine checked about 1-2x a year just because it's interesting to see how things...
For me, it was a few things - crazy work stress, plus going super low carb (I think a lot of my good bacteria died off as a result). I had it in my family (my mother and my aunt) and that had the gun...
Hey there! Sometimes when coming out of a flare I did have stomach pain; but in taking things in and out to try to troubleshoot, it seemed to be related to taking colostrum. It eventually went away...
Hi DanielleMel! I am a big Isatis Cooling girl - it got me into remission 2 years ago out of a really bad flare. Like you, I noticed the biggest help with bleeding immediately. Back then, my...
I have tried a thousand different ones, including VSL (which has been great for me at times). Right now, I'm doing well on a couple of cheaper ones that you can easily get from Amazon - and they...
Hi Landslide45! Thanks for your post - I think this stuff is so exciting and I'm interested to see where it goes in the future. I have not redone the test to check my LPS levels, but may in the...
Poor pup! So sorry to hear that. My cat was diagnosed with IBD when he was 15 - we put him on a grain free diet (Natural Balance dry food made his tummy much happier) and I also fed him plain yogurt...
Awww....Carly. I get it and it's totally normal and totally okay. You will not always feel like this - you will see. You just have to put one foot in front of the other and once you start feeling...
Jane- play with the dose and see how you do. Thank you so much- hope you have success too!:)...
I am coming up on 2 years of remission using Isatis Cooling - I still take Apriso and Canasa (as needed). I had a pretty quick positive reaction to it when I started it in a stubborn flare - my...
So sorry- it really does suck. I have alternated between steroid supps in the day and Canasa at night. I hope you feel better soon....
Tenesmus is not fun. Are you still on the Canasa?...
VSL#3 is a good one - you can get a prescription for it from your doctor. I use that when I'm having flare symptoms, but for everyday I like PB8 and Renew Life 50 Billion....
Hi Petah- yes, it's done with a blood test and is pretty simple. I was on the pill before I was diagnosed, but after hearing about how it could contribute to leaky gut I stopped. I am happy you have...
I went on bioidentical hormones about a year ago. The repeated high doses of pred had my hormones all out of whack, as well as my thyroid. The hormones have helped me immensely- if you are struggling...