They did stool tests and she at one point while in the Hospital tested positive for CDiff and also some parasite....she was on meds for that for a while but then the emergency surgery happened and...
Thanks all. She had a diagnosis of IBD/ UC. There was absolutely inflammation - so much that they couldn't get all the way into her colon to see everything that was happening. But when the surgeon...
Stray dog - I really hope what happened to your brother is what actually happened to my mom and that she will recover and be ok now. It took her two months to recover because she had been bedridden...
Regarding biposies for a UC diagnosis, unless her doctors are incorrect, biopsy is only definitive for crohns, not UC. She did have biopsies but all it did was rule out crohns.That's what I mean...
What I'm saying is that there is no definitive evidence she ever had UC to begin with. They could not remove her whole colon because she would have died on the table. Also though - the rest of her...
Hi all. In early June, after six months of being very ill/ I guess in a flare, my mother's bowel perforated while in the hospital. She had been there for 9 days due to poor blood levels, pain,...
Ipoop - I hope that's the case for her...I really don't know. Can UC be confirmed via a biopsy? Because they did a biopsy in the hospital prior to her surgery and I know they ruled out crohns but...
Hi Quincy - my mom is doing well, thank you...she pulled through it all somehow. Off the ventilator, one catheter out, one to go, which will decrease her chances of infection....she's still kind of...
Hi beat UC - really? The doc who did the IVC procedure told us they could stay in forever...he said there is sometimes a risk of them migrating but very rare......
Well, we will worry about that later - for now, she's alive....
I know there was no way to prepare for the perforation, and thank god she was in the hospital when it occurred, but with such inaccurate results from all the imaging, one wonders if she should have...
I'm posting this as a new topic to get feedback and warn others of this potential situation. My mother was diagnosed with diverticulitis at least 15 years ago, but sent home with just dietary...
She's 66, Quincy. Yeah, I put it under clots because the blood thinner they gave her is mostly what made her surgery so risky....she still has the clot but they have held off on treating it because...
Thanks Quincy - it was an x-ray and then catscan they did in the ICU that showed a lot of air outside her bowel that made them suspect perforation. She was taken to the ICU initially for low blood...
My mom is fighting for her life. After 9 days in the hospital, something seemed very wrong. She was rushed into the emergency surgery and they found that only a small portion of her mid colon was...
I'm in the OR waiting room right now because my mother had a blood clot while hospitalized for a severe flare and her BP went dangerously low, and then they suddenly discovered a perforation in the...
Thanks - yeah, still waiting to see what the verdict is on Crohns versus parasite complications. My mom is 66, but she might as well be 90 right now. :(...
No, they're at the hospital - I know because they call me back from the hospital number and I can hear the background noise of the hospital - last night the answering service actually said to me "I...
Oh really nicecupoftea? I didn't realize that, I thought that there was a chance it could come back in the small intestine...my mom is ready for surgery yesterday ha - but she does not want the...
Thanks all. I'm not calling the docs at home, I'm calling whoever is the emergency on call doc, meaning they are at the hospital. I just spoke with one before who was very good about listening though...
Yes, sorry I meant parasite - very unclear how that relates to the current problems still. Best case scenario I suppose is that the meds for the crypto clear up her pain and diarrhea, the...
The latest is that her stool tested positive for Cryptosporidium bacteria. I am unclear whether that's what's been causing her current issues, or even her past issues...they're giving her some...
Her doctor actually wanted to start her on Humira for a UC diagnosis, but went with Entyvio because it was cheaper and "just as effective" she said - I don't like her doctor, not that I'm...
And re the pain meds, yes - she actually has refused morphine and any other pain meds until today so it must have been bad....
Thanks sci-fi gal - yes, so they FINALLY did the c-diff test (I've been asking them to do it all along and they just wouldn't) and it came back negative apparently. But positive for some other...
Hi all - I've posted a few times about my mother's situation. She was diagnosed with UC in February of this year, has had three rounds of Entyvio but developed an allergic reaction during the last...
Thank you :) I realized it was very old too late....
How do you get LDN exactly, InSoFla? If it's not approved for UC, and you need a Rx, how do you go about finding a doctor to prescribe it? I wonder that about a lot of the advice on this forum -...
I didn't know you could do that, thanks..not sure where the relevant place is though. I doubt a lab would just accept a random stool sample off the street? I'd have to give it to her doctor, who has...
They've never at any point done a stool test. You could be right but it doesn't make sense to me that they wouldn't just do everything possible to rule out other causes. Her GI has said she may...
Hi all - I've posted about my mother several times now - she is in a severe flare and on Entyvio, uceris and tapering off prednisone. She's about to get her third entyvio infusion in a week or so....
Thanks ipoop - I told my sister, who is going to the hospital today, to ask about the stool test - there was no doctor there when i went yesterday and no one who knew anything really, they were just...
Thanks Casey - she hasn't had her third dose of entyvio yet, so hopefully it will kick in still...it's a very frustrating process. I see a lot of you use enemas - my mother will just never do them....
HI flowers gal. - on the weight loss, how do you balance that with the need to eat a bland diet? my mother has been seeing a nutritionist who told her to stop drinking ensure/ boost etc because they...
Thanks all. She's in the hospital and getting a blood transfusion because she had blood in her urine from microscopic amounts of blood loss in her colon and small intestine (?) and her hemoglobin...
she's being treated by a GI. She is on prednisone and Uceris - both steroids. the GI said the bleeding is apparently normal since her colon is so inflamed. I think they just weren't sure where the...
My father goes to her appointments with her - they're retired, I work, my sister works and has a kid - my sister lives very close and I'm about 35 miles away. She's almost 67. I had her add me to the...
Thanks Bull101 - but were you immobile and losing weight for that entire year and a half flare? She can't keep losing weight at this point. she eats small amounts, but I don't know if anything's even...
Hi all. I have posted once or twice here in other threads, but I do not have UC, my mother does. She is in a horrendous flare and we are very worried that she will simply never get out of it. She...
Thanks for the info notsosicklygirl. Will reply in a new post so as not to co-opt this one....
Hi PhoodPhobia/ all - I have posted once here, but I do not have UC, my mother does. She is in a horrendous flare and we are very worried that she will simply never get out of it. She lays in bed all...
Also flowersgal, I discovered that she was originally on mesalamine but had to stop because she broke out in hives. So she can't take that. I hope the entyvio keeps working for you and you continue...
SO helpful, thank you!!!...
Thanks - she was supposed to go back to her doctor this morning but didn't feel well enough, but I think went later on. I hope she made it. She has been to the ER twice so far for dehydration/ pain...
ha, thanks - i see you had diverticulitis as well; my mother was diagnosed with it about 15 years ago also. Is there a connection with UC? She is speaking with a nutritionist who has put her on the...
Thanks iPoop - I don't know why her doctor has chosen just Entyvio and Prednisone for now, and suppositories. No mention of mesalamine or an immunomodulator. Have you heard of anyone being helped by...
Thanks FlowersGal....I'll have my dad ask about the maintenance mesalamine...what does it do exactly? Her main issue it seems right now is rectal discomfort (apart from being in the bathroom all day)...
Thanks - I think she was on a higher dose of the prednisone but I'm not sure what the highest was...they are working to get her off it now I think so have been tapering down. Overall, she's been...
Hi all - I'm here for my mother. She's 66, diagnosed with ulcerative colitis in March and is in the midst of a really horrible flare. She's on Entyvio and has had two doses so far. She's also on 10...