Thanks, IamCurious! Yes, I didn't know about the different kinds of C. diff testing until I started researching it... Once I started getting into the weeds, I realized it's very weedy. Apparently...
I'm writing a blog post about my experience with C. diff (combined with UC), and I want to make sure I get my story right...but the more I try to understand what happened to me, the more confused I...
Iamcurious, that DOES help! Thank you so much--I just went and turned on my computer's Night Light! It does feel like it eases my eyes. This is something that had occurred to me to look into before,...
Iamcurious, thank you so much again! I really appreciate the thought you're putting into this. :) I did take fish oil omega-3s for several months (perhaps 8?) after seeing the opthamologist, who had...
Thank you so much for all these posts so far! Iamcurious, thanks very much for all those recommendations--they might help me, too, so I might try them before my surgery. (The last one, which boosts...
Hi everyone, I'm not sure if anyone out there will have a similar situation, since this is a little complicated. But: Along with the dry eye (meibomian gland dysfunction) that seems to happen with a...
Just yesterday, I was talking to my GI doc about my Remicade and saying I wish I could go off it. I've always been averse to taking meds. But then I added, to my own surprise, "If I was just on...
Thank you! So interesting!...
Wow, what a great question and I'm really impressed with these answers, especially iPoop's take. I had exactly the same concerns about going on biologics, but like others, had less choice because I...
Thanks, imagardener2! :)...
For the last couple years since a hospitalization, I've been keeping close track of my symptoms and diet on a daily chart. I noticed that sometimes, my stool seemed to turn darker and more solid...
I'm on Remicade and Imuran, and have had an intermittent sore throat for the past 3 or 4 weeks. I actually remember this happening once before, 2 years ago before I was on immunomodulators, so maybe...
I am so glad to hear that you're feeling better, and that you and your doc caught the C. diff early. Fatigue lasted a long time for me afterwards, but as you know, my situation was really...
Thanks very much for clarifying all that. It's interesting to hear your observations, although for me the jury is still out on whether personality or constitutional disposition relates to IBD onset....
Thanks very much for this very thoughtful response. I like it, and yet I must admit I come away from it unclear. "Helpers" makes it sound like you do think there is an IBD personality type...
Thanks for taking the time to look this up. Yes, if it hasn't been debunked, I do need to know that...and so do CCFA and others who seem certain that it has! The search you mentioned looks to be...
Yes, but I can't find ANY studies refuting the idea of a "UC personality," despite finding various statements that such science has been debunked. Where are these people getting the idea that it has...
Hi Newly Diagnosed, I'm so sorry you're going through this. It is no fun at all, to say the least. Good for you for doing research, and it's totally understandable to feel a bit freaked out by all...
This is an old thread, but jujub, I am wondering if you know any sources--news articles or scientific articles--that refute the "UC personality" idea. Because this thread was old, I also started a...
Thank you so much, NiceCupOfTea, for taking the time to look those up, and yes to the frustration with this line of research. The 2012 paper you linked seems well written, a great compilation of the...
I'm writing an essay/blog post about shame and stigma around disease, particularly my disease of ulcerative colitis. The comments that have rankled me most, over the years, are the ones implying that...