Hi notsosickly! I talked to you waaaay back when I was trying to decide on surgery, so far absolutely no regrets! I will probably schedule my take down for mid January. After mentioning what you went...
Hi everyone. I had the second step of my jpouch surgery about 7 weeks ago and is a loop ileostomy. The first six weeks I ate low residue, pretty crappy stuff as they recommend, and I did not gain a...
Thanks for sharing three time champ. I'm in a similar situation to you, no emergency just not seeing any real continuous improvement. Just seem to stay exactly where I'm at now matter what...
Ah yes that makes total sense nssg. Thank you for explaining that to me. In have come up with another question, if you don't mind, after reading your banner there. Is 2/3 months in between steps of...
I thought of another question to ask you all. My inflammation has always seemed to go from about 20-25 cm Max in my colon. Is it possible/practical to only remove part of the colon? Or would it be...
Well once again iPoop, thanks for doing some fantastic research. Although there's still that chance, I can get my head around 2% and feel comfortable with that. It's about time my somewhat young age...
And colitis research - please keep me updated on here as you go through the process as well. It's nice (although crappy) having someone go through the exact same thing in the same timeline. Of...
Thanks guys. I am in Colorado currently, does anyone have any recommendations around this area? 3-5 does with control sounds like a far off dream I would love to be a reality. Well what has become...
Well wow, thank you for all of the responses. It is oddly reassuring to hear some of your stories and your helpful suggestions. I am going forward with getting a consultation set up, and I really...
Hi everyone, So I am here because I have hit my low point with uc. To this point, I have tried so so many medications with no luck over this current 2 year flare. I have tried asacol, balsalazide,...
I tried it for about two months, and it had zero effect on me whatsoever :/ it's still worth a shot trying, never know if it might be your miracle. Good luck!!...
Has anyone tried using natural/homemade enemas? I haven't had any luck with ones prescribed to me, nor suppositories, so figured why not try a homemade one? I have proctosigmoiditis and just want...
Thank you for all the well wishes guys! It really does mean a lot. You're absolutely right notsosickly z I actually haven't felt any positive feelings toward this disease for years it seems like....
Hey all. Wanted to give an update if anyone was interested. So after a long long long process of trying to get xeljanz figured out through insurance I finally began this past Friday. I'm doing 10 mg...
Ah that is very exciting to hear! Thanks for the info. Anything else you noticed after you started using it? Do you modify your diet at all?...
Stewie cat - so it looks like I'm finally about to be able to start xeljanz! How long did it take you before you started to feel the positive results? I'm so excited to finally start it!!...
Cool thanks for sharing iPoop. Sometimes just the refreshing reminder I need to keep going....
As an Oklahoma fan it's hard for me to give credit to any other team but I have a new respect for big time quarterback for the number one ranked Clemson Tigers Kelly Bryant. I just watched a piece on...
Awesome thank you Suzy! That helps a lot in knowing what to likely expect when dealing with these insurance companies. And may your husband's remission continue. In the spirit of all the star wars...
Cool thank you guys. Miracles - I gotta do my due diligence... What was your experience?...
Hi everyone, So after my most recent visit to the doc we have decided to discontinue entyvio. That adds it to the list of balsalazide, canasa, proctofoam, steroid shops, humira, imuran, and steroids...
iPoop and notsosickly - Thank you guys so much for all the info. That is exactly the types of answers/information I was looking to gather. It feels nice knowing there are other options towards...
Thank you so much for your insight. Honestly, UC has had me extremely down for the last 17 months, but the thought of surgery had always intrigued me while at the same time scared the daylights out...
DB - Good idea, I have not gotten my stool tested lately. But I must say, a DIY FMT does not sound pleasant! Notsosickly - I did try doubling up on the humira before I stopped and also it was found...
Hi all, I just wanted to get ideas on where I should go next. I have been in my current flare for over a year and a half and I have run through a lot of treatments with no real response yet. I...
Simply, So let me get this straight... I know you have a juicer that does this for you but you're saying to stick a cut of ginger into a blender, pour that into cloth, and then you mix the remaining...
Awesome to hear, congrats flowers gal!! Hearing this news definitely gives me hope! I just had my fourth and have shown good progress. I hope to follow your lead and may your remission last a...
Flowersgal - the absolute worst! I've never experienced this before and wouldn't wish it on my worst enemy. I will definitely try some fiber. I've used psyllium seed powder way back when with some...
Thank you all for the quick responses. I appreciate it. Ipoop - that makes a lot of sense the way you explained it. I've been on anucort for some time now but I don't think it's having much of an...
Hi everyone, quick question. The last 2 weeks or so my mornings have been different. When I wake up I take one very, very large stool that can have me straining a little bit but it's just very large...
I am right there with you my friend. I'm glad you posted this because this is he exact kind of thread I was looking for. I'm coming down off of Prednisone after being on it for a good 7-8 months. I...
Awesome! Thanks as always for your input iPoop. I really do appreciate it. I think that one word is going to have to become life's motto after going through this flair... Patience!...
Seems like an appropriate thread to add my questions on to... So I have been on entyvio about 9 weeks now and I've noticed some positive results. I've started trying new foods and am starting to...
Awesome thanks for the input everyone. I've only been back on the anucort for about a week now. I'll give those a little more time and if there's no progress in that area I'll push for the enemas. Cc...
Hi all, I just had my third dose of entyvio and I am starting to see some small Improvement. Most notably I am starting to have more form in my stools and the mucus is mostly gone. my main issue now...
Thank you ipoop, that makes a lot of sense. I suppose my next question, if you don't mind, is what is done by the damage left behind from the chronic inflammation? I assume the inflammation leaves...
Hi everyone. So I'm really trying to understand how healing and immunosuppressants work. If we are continually taking immunosuppressants, how exactly does the gut heal? Or by taking...
Flowers - Thank you so much for all of your input, it has really helped me out a lot! I just had my first infusion this morning and so far so good! I've just been exhausted all day but that could be...
Flowers - Thank you so much for sharing, it sounds like the entyvio has made a huge improvementon your quality of life and that is just the kind of positive reinforcement I was hoping for going into...
Ipoop - Thank you! And will definitely provide updates! Bull - Thanks for the heads up, I will definitely keep that in mind! Are you on or have you used entyvio in the past? Colon - First of all,...
Hi everyone, excited to share that I've finally been approved for entyvio after about a month and half process. I'm so excited to start as I've tried so many medications throughout this now year plus...
Flowers - I am so glad to hear entyvio has started to for you! I am in the process of getting mine covered by my health care. I sure hope I don't have as many problems as you came across! I just got...
Good to know. Well, quick update. Just got my aza levels back and they are lower than what they were previously even though I have increased my dosage since the last test....
Oh wow. I didn't think you could mix all of those together... Will discuss at next appointment. How long did it take for everything to kick on for you personally?...
You're thinking the rowasa/mesalamine enemas would be better than the steroid supps I am taking? Also, way back upon first diagnosis I tried asacol then switched to balsalazide capsules. That was my...
I had the test regarding azathioprine levels not too long ago, and I came in user the therapeutic levels so we increased. Waiting again for new levels to see if increase has gotten to where it needs...
Hi everyone, over the past month or so everything was progressing so we'll. I have been on azathioprine for nearly four months now and I thought it was finally kicking in as I was slowly tapering off...
Martha - Ah that makes more sense in regards to your Prednisone regimen. I myself can't wait to get off of these darn pills and get my smooth skin and normal eating habits again (by that I mean not...
Ipoop - Thank you,that is what I was looking for. Good to know it is 6 weeks for a dosage change. Still waiting to see if we've found the dosage at 150. Martha - Oh wow, I'm surprised you started...
Hi all, I've been looking through a bunch of old posts regarding this question but couldn't find an exact answer of what I was seeking. Have those of you on imuran noticed improvement upon three...