Hope all went well!...
I'm currently having an out of stock on my Sulfasalazine EC/DR (been dealing with it off and on since the start of COVID). I've called every Walgreens, Costco, Walmart, independent pharmacy etc in a...
I've used expired ones before. They tend to be a bit more brittle and flakey but seemed to work fine....
I also have had a flare up coinciding with my Pfizer vaccination. I don't think it's out of line to assume that something that invigorates your immune system could also exacerbate any autoimmunity as...
That's like my worst nightmare right now. Been on Humira since the summer and got a cold in the fall but it passed quickly. My co-workers are dropping like flies with the flu and other nasty stuff....
Man I know that I can't be of much help but I just wanted you to know I know what you're feeling and a lot of us here have been where you are. I'll be thinking about you and I hope you can find some...
Glad to hear you are on the mend! It sounded like you were pretty darn sick at the end there. We are pulling for you and I hope you are able to spend some time with your family during the holidays....
Hi valli1234, I started Humira this summer and have had pretty good results. No side effects thus far and it has allowed me to get off Prednisone which I had basically become dependent on. I got a...
I'm a worrier too. Always have been. And probably always will be. :shakehead: The thing is, you can't force yourself to forget about your troubles. You can only force yourself to think about...
For me, Pred was starting to be less effective and that's why I started Humira. So it was easy to tell it was the Humira doing the heavy lifting when I started getting relief from my classic UC...
Hi countess18, I've been on Humira since July and no issues so far. My UC symptoms are very minimal since starting the shots. There are a lot of people on this site who use it or have used it so this...
I followed the SCD diet strictly for about 3 months. I had great results with it, until I didn't. The diet makes sense and has a lot of proponents but unfortunately for me, it wasn't the be all, end...
@ Rtp85, Very good point. My wife and I now eat 90% of our meals at home, thanks mostly to her efforts. It started out with me trying the SCD diet and while I'm not a strict adherent anymore, we have...
As other's have mentioned, UC has given me an appreciation for what I do have, rather than worrying about what I don't have. I still manage to take things for granted sometimes, as we all do, but...
My current taper started at 40mg for a month, 30mg for a month, 20mg for 2 weeks, 15mg for 2 weeks, 10mg for 2 weeks, 7.5mg for 2 weeks, 5mg for 2 weeks, 2.5mg for 2 weeks and starting Wednesday I'm...
I could write a book on this subject but I'll just say that QuickTrip bathrooms are the best. This disease has given me a breadth of experience to where I've gone in places I never would have...
Good luck! Sending good thoughts your way....
:shakehead: You must be tough as hell to endure this thing pretty much all of your life. Just keep drawing on that strength and it will get you through. Good luck navigating this stage of your fight!...
I get a lot of nerve pain/neuropathy plus sacroiliitis. Having a lot of pain in my leg this week. It was worse a few weeks ago. Not sure if it's meds or what. My father has it bad as well and he does...
It worked for me for like 8 weeks. Then with no change or lapse in diet I started flaring again. I think it's worth trying for sure though....
Too hard to choose! I'd probably stick with an English speaking country if we are factoring in having to work and stuff like that. Maybe British Columbia or Hawaii? Both have great, but very...
Only 5-months you'll probably be fine, it's often a year plus that things get tough. Prednisone is a synthetic version of our body's naturally produced hormone known as Cortisol. While we are on...
I'm sorry it has been so rough on you Poppie. I've heard of people taking like 5mg jolts to "awaken" their adrenal glands but it sounds like you've already thought of that. I wonder if there are...
Hi lukylibra, As usual, iPoop covered it pretty well. Agreed on the prednisone. That's usually good to jump start a recovery. One thing you can do to help yourself when flaring is to eat a low...
I'm pretty skinny so when I take my shot I like to prop myself up on the bed so it wrinkles my belly and I can grab hold of a chunk of flesh :shocked: and pinch it together while I hit the shot. It's...
Keeping a food diary helps but the only way to be sure is to do an elimination diet, which means to start from scratch and reintroduce foods gradually. Having said that, UC can make you have diarrhea...
While diet is certainly not the cause of UC, I have, in my personal experience, found it helpful to limit or eliminate certain things from my diet. I started with the SCD (specific carbohydrate diet)...
For me, the morning commute was really bad the past few months before I started Humira. My gut is way more active in the morning and it was getting pretty unbearable. I was having to stop once every...
Hi Amille, I'm sorry to hear you are feeling this way. As others have said, we all do at times. To echo Rosiedays comment, it's like I always tell my wife, "it's ok to be sad when sad stuff happens"....
Thank you for the kind words Mrs. Brady!...
Hi nourse, Thank you for the well wishes! :-) It's certainly reasonable to be nervous when starting a new treatment and stopping an old one. My GI gave me the exact same instructions; taper 5mg per...
Thanks iPoop! I appreciate the words of encouragement. I'm just trying not to take feeling good for granted right now. Even worked out for the first time in 4 months last night. Taking it easy still...
I'm almost 3 weeks into my treatment. Did 4 shots the first day at the doctor's office and then did 2 shots at home last Wednesday. My UC symptoms are pretty much under control with 2-3 very solid...
Very well put! Thank you Jane!...
Thank you all for the well wishes! I'm feeling pretty good so far even though it's only been two days. And I know this is way too soon to make a declaration and it could be due to all kinds of other...
Well I survived the injections! They certainly stung a bit but the pain only lasted like 30 seconds per shot. Did four today in my belly. Then gonna do another two in 2 weeks. I'll keep you guys...
Haha. A bit of perspective is always a good thing! Thank you sir!...
After 6 years of remission with just Sulfa drugs the last 18 months has seen a steady increase in my symptoms; loosening of stools, blood, urgency, cramping, etc. In March I went on the SCD diet and...
I came down with Norovirus (what people call stomach flu) in November and was so sick that I had to go to the ER (my brother as well, we were together for a weekend when we picked up the bug) and it...
I'm very fortunate to have an office job which makes urgency easier to deal with and it doesn't hurt that it pays pretty well and my boss is very understanding. For my part I make every effort to...
RE the protein thing, Lara Bars work for me but they only have like 6g of protein. Salmon and Grilled Chicken are way better for protein. I mostly eat the Lara bars twice a day as a snack and to keep...
Sulfasalazine worked wonders for me for 6 years but now it's not enough. That said, if you are having side effects, there are other 5-ASA agents that elimnate the sulfa and are said to have less side...
I've had varied results with the SCD diet. My wife suggested it as we already eat very healthy and prepare almost all of our meals at home so it wasn't quite the leap for us that it is for others....
My experience is that cannabis can help slow motility of the gut and reduce cramping. Obviously far from a cure but a good tool in the arsenal....
I take a ferrous iron sulfate (65 mg equivalent) tablet twice a day. My doctor said 1-3 so I met in the middle. Your stools may (and should) become very dark, almost black with the iron supplements....