I find with people I'm comfortable with making light of the situation is often good. It is hard explaining to people who have no experience, the amount of people who think they understand because...
I had a similar albeit lesser experience. My GI switched me from Pentasa to Octasa recently as it is cheaper. I ended up seeing whole Octasa in my stool and even checked to ensure it wasn't just...
I've never heard of that with paracetamol. Although having looked, yes there are studies. Yes I meant co-codamol 6/500 which is really weak. Still aren't we one of the last places where it's still...
Its funny how some little things can actually irritate you over time. I don't like rectal meds at all but I guess its a necessary evil....
Don't know if this helps but my GI said suppositories literally treat the very last bit of the colon (rectum). No mention of the sigmoid juncture....
I take 2g pentasa in flares and remission. I add rectal meds at first sign of anything. Then the dreaded pred!...
Trouble is I don't have inflammatory arthritis. I've got ddd in l4 and l5. Also have s1 nerve compression. I also have some weird neuropathy and fasciculation, could be the discs of course. I also...
I have some Arcoxia at home, do you take Omeprazole as protection? They are really clamping down on codeine at the moment, although you can still buy over the counter in the UK at the moment. Its...
What do we all take for pain medicine? obviously NSAID are out of the question for most of us, has anyone tried Arcoxia with success? does anyone take codeine? I find paracetamol about as usual as...
I've had the flu jab every year since I started Azathioprine. As Ipoop said, keep an eye out for live vaccines....
I was initially diagnosed with indeterminate pan colitis first, then left sided UC on next scope. I think you have either CD or UC but sometimes it isn't clear at first....
Ive found weight gain from amitriptyline much worse than prednisolone. Although it really helped, I couldn't cope with brain fog though....
I think that's a key point that sometimes we all forget. The internet is always full of worst case scenarios. Its best to come to your own conclusions. This group is very supportive, and has been...
Hi Jessa, Unfortunately I have been on over therapeutic levels for quite some time which is being addressed at the moment. My GI halved my dose 3 weeks ago. Take care!...
I have had different side effects each time ive been on Prednisolone. I had insomnia, hunger, sweats, aches and one time my GI sent me to Cardiology as he thought I was having an episode! They...
My GI initially told me to take it in the morning. I felt sick all day and discussed with a Dermatologist, I work in healthcare so have access for cheeky questions. The Dermatologist suggested taking...
I haven't used it myself. Are you from the UK? Is the flare serious enough to consider biologics or 6MP?...
Always first thing!...
I've been on Azathioprine for 10 years. It's either got less or I'm used to it. Give it a little more time to get in your system....
you'll get more used to it! I remember being newly diagnosed and frantically checking every BM. The slightest change would make me think relapse. Eventually maybe a bit of acceptance comes in to play...
Gene testing before conception is not common practice, at least not in the uk. I certainly had no idea I carried the F508 gene for CF before my daughter was diagnosed. The new medications aim to...
Just to add my experience and thoughts on this. I had my first flare after quitting smoking 12 years ago, started smoking again and went into remission for a year, stopped smoking and flared again....
Very interesting. My daughter has CF F508. I have UC, connection maybe?...
Although your pain is quite widespread. I think it's important to realise that even without a flare you can have pain. We can still have IBS or wind, it could also be your body calming down still....
physcology! Might not cause UC, but can have a huge impact on living with it. Very underestimated, if you've had an accident on a train before chances are you'll be anxious. I once nearly had an...
My daughter has cystic fibrosis an the medical advancements now and in the coming years are amazing. Do you see a future similar in most auto immune conditions? I've got to say having had UC for 12...
I just find the knowing where a toilet is half the problem. It can be driving, train, coach or walking. My GI once asked if CBT would help. I replied "yes if CBT can magic up a toilet if I need it on...
I find one of the worst things about UC is this type of anxiety. i don't think you ever get used to it....
I think I've done quite well for 12 years. I've found side effects different each time! I believe you're right though, they can be evil! What medication isn't though?...
Its funny after 12 years of UC the car has always been a nightmare. I think it's the thought of not knowing where the nearest loo is. Mind plays tricks on you for sure. If I had a penny for every...
Ive also used suppositories which area little easier. They only treat the very last bit of bowel though....
Welcome back. Sorry it's not in better circumstances. I think we must treat really aggressively in the uk. I've been under three GI teams in London and have been given steroids for a lot less. Not...
The few times I've used enemas I would always get cramps. As previously suggested by others I would lie down on my left side and hold on as long as possible! It does get easier, either that or you...
I haven't had surgery so can't offer advice. Just wanted to wish you all the best in your recovery....
ive tried magnesium, potassium, amino acids, fish oil, glucosamine, vit d and vit b. All without success. Had sports massages etc....
My calf muscles jump and dance all day long. My GP looked terrified first time I visited him. I know what you mean about wife's thinking we are crazy!! I've had so many tests that clearly there is...
Bloodwork shows low white cells, vitamins normal apart from D. No sign of diabetes. MCH was a little high too I believe. All inflammatory markers, ANA negative. Did test positive as having had...
Interesting regarding the steroids. I've had maybe fives courses of steroids in my time with UC, as a child I had terrible asthma and would have had steroids too (not sure how often though). I've had...
Hi, I'm just popping over from the colitis group. I'm from across the pond but don't hold that against me. I have had nearly exactly the same thing for 7 months. I've got a disc bulge and 2...
Rectal meds, sorry not mess!...
I've found the best thing to help is rectal mess before bed. I have used pentasa suppositories with great success....
That's a really interesting study thank you. I've done a lot of research already too although IBD and neuropathy doesn't bring up a lot. Do you have any cramps or fasciculations? My twitching leg is...
That's really interesting. Thank you for taking the time to reply to me. Do you think the fact my UC has been in remission for over or the levels of Azathioprine could be playing a part? My vitamin...
Hi All, I used to lurk here ten years ago and found your posts insightful and extremely helpful. I really need some advice. I've had UC since 2006 (where does the time go, right?) I was diagnosed...