Hello Madcat25 & tys90, What were your initial signs or illness that led to lymphoma test/diagnose? Thank you for sharing....
Thank you ipoop and Connor77 for your reply. I am hoping people who are on both Remicade & CBD oil will reply....
Hello All, I want to try CBD oil mostly for sleep, is it ok to use CBD oil while am on Remicade? Do I have to let my DR or infusion clinic know I am taking CBD oil? Thank you...
I get tailbone pain only when I sit, my family DR did x-ray and told me nothing serious and to use donut seat. It started about a year ago and am not using donut. Hope it will not get worse....
I don't agree with some of the advise you are getting here. Unfriend your mom is very easy but living in isolation will make your situation worse. Unfortunately you have to work hard to have at least...
brianne.96- I am sorry to hear PSC on top of UC. I don't have any answer for you but can you tell us what medication you were on and for how long? Thank you...
I agree with you nostress, I was under tremendous stress when I was diagnosed with UC. In a way I am lucky because I have seen people had stroke, heart attack and death due to too much stress. Some...
I learned my lesson the hard way and now I do not discuss my health issues with anyone other than my spouse. Even with my spouse I try to minimize the weight because spouse has been through a lot...
I read this article on CNN.com and I said to my self this is perfect article for IBD ers as well but I have never seen one. Would you agree we deserve awareness like this? Or we don't? Here is the...
Brain fog and difficulty concentrating is all part of my life now. But I don't believe Remicade and Imuran causing it. I am starting to believe whenever my C-rp level is high I get those symptoms but...
amandleigh26- I know exactly what you are talking about. When I was on 40mg pred I felt like wanted hit the wall with my head. Pred is necessity evil for us USers sometime. Whenever I start pred I...
There are thousands of motivational videos out there but this one really touched my heart. https://www.youtube.com/watch?v=ENTf10L1jt0 I am not sure how to make live link post on H.W....
I hope Vancomycin works for her. From my own experience I highly recommend FMT for C-Diff if Vancomycin fails....
I was diagnosed with sleep apnea 3 years prior to UC. I tried CPAP machine but no improvement. I got C-diff about a year ago and medicines were not working so I did FMT at home. First time after many...
thanks again ipoop....
Thanks ipoop, so what type of test to check antibodies?...
FMT is not legal where I live so I did at home with my 10 yr son as donor. Third day bleeding stopped and in 3 weeks diarrhea stopped. It was 100% success for C-Diff and I would highly recommend to...
mkl11 or someone else can answer, what is CRP? Is it to check the antibodies? If so what is the high & low number? Thank you...
Simkingh-I am sorry to hear that but you know this will bring an end for suffering and you can move on with your life. If you don't mind asking, what was the reason for emergency surgery? Toxic...
I been fighting with hemorrhoids for about 20 years and had 2 surgeries. Two years ago when I went for my first colonoscopy, I was experiencing bleeding, diarrhea, weight loss and fatigue. Just...
isleman-Well said, I agree with you....
Is it possible to get toxic mega colon/perforation when you are in remission? Or is it during flare usually happens?...
Agree with byebyeuc, this disease is so individualized. I've read many posts here people are working during flare. There is no way I can work, I can't even do my house work. With Bloody diarrhea,...
Thank you ipoop & AbigailRose....
AbigailRose- I don't have any answer for you but I am curious and I am afraid I will run into this issue in the future. When you(or others who tried) say Remicade/Simponi is failed,How do you decide?...
They have to go by books but we have the option to go by common sense of course with some risks. I did FMT (5 months in total) on my own at home with out any pre-screening and antibiotics. Then again...
Eva Lou- Did you do all in one step? Wow, your are a strong woman. Were you on pred? flare? and how was your weight when you did the surgery? cupcakespinkgal- I had few surgeries for my hemorrhoids...
Assuming we are all adults, we should be able to get the best out of this forum as much as we can. People do that on other sites like tripadviser.......
yourSaxDollarsAtWork-Thank you for sharing your experience. Can you tell us how many BMs you were having before remission? When was your last colonoscopy and what was your diagnosis, ex....
notsosicklygirl says- I always knew this was the better option, I just couldn't bring myself to do it until I exhausted all the options, I think that's the problem with most of us, we just don't want...
TheITIS-I am not against any biologic but I would try only one biologic and I choose Remicade. If I had any allergic reaction to remicade on my first or second infusion then I would have tried...
My opinion- I will not try any other biologics after remicade. It will do more harm than good. Imuran combined with Remicade should be last stop. I don't like to believe in falls hope....
Purpose of this post is to make awareness, not to scare anyone. http://www.cnn.com/videos/health/2016/02/17/bride-almost-dies-on-wedding-day-massachusetts-pkg.wcvb You have to copy and paste about...
Help8675- I will go with surgery at this point. Below article shows if you are making the right decision....
atwoodt and SuperBlanks-Thank you for sharing your experience. Look like almost everyone did the surgery when they ran out of options. I thought I am going to be smart and do the surgery now. Then...
Thank you for the article NCOT, I love to read. However I like to say my opinion and hope you don't take it wrong. Sometimes studies are like pre-election polls. For ex. in this study there is no...
I am one of those people couldn't live without alcohol on Saturdays night. Now alcohol is the last thing I wanna do in my life. I guess mild UC wouldn't bother too much....
First I would check for c-diff, then give some more time to remicade with increased dose....
notsosicklygirl and Eva Lou, thank you for sharing your experience and thoughts. Positive or negative it definitely helps me and I am sure will help others....
One of the thing I learned from this disease is there is no words available for us to make some one understand what we go through. Doctors have studied but they never felt. I also feel like my GI is...
colgone1-Thank you for sharing your experience. Could you please tell us what was your worst diagnosis, meaning mild-moderate-severe or the length of inflammation you had?...
NCOT and Silent Lucidity-Your experience and thoughts are helping me to see the other side before I get there. Thank you....
There are many people taking Remicade and Imuran together and it seems to be working for most people with UC. As we all know they are both strong medications and they don't even cure just for...
OMG, my Remicade maker Janssen going to go bankrupt because there is big price difference between Remicade and vinegar....
I had C-diff twice in the past and both of them right after colonoscopy. Took Flagyl twice but c-diff kept coming back. Finally I said enough is enough and did FMT with my 10yrs old son's poo. Third...
I was diagnosed with degenerative disc disease and sleep apnea long before UC. So I have back pain and brain fog. I did FMT for few months last year for my UC. During and for few months after FMT...
aimz- Diagnosis history you mentioned above are they all by same GI? Was colonoscopy/biopsy done every single time before he/she made diagnosis? If not I would ask him/her why there is discrepancy...
Ohcrap- I have to say even though FMT did not give me remission intensity of bleeding and diarrhea was much less because of FMT. 1. What did your diet consist of before, during and after fmt? No...
Sharron19- Thank you so much for taking your time to share your experience with us. AS you can see thousands of people benefit from your posts. I did daily FMT at home for two and a half months and...
geenome, I was on pred many times on and off for the last two years. I am not on it now but even when I think about it I get emotional. But for UCers sometimes Pred is a necessity evil. I believe God...