Thank you both for your feedback - I've definitely wondered whether my GI had a research interest in the Zeposia as well. It's so disappointing that even with good health insurance those are typical...
Hi Bacon Girl - My dr's staff can fight to get the Lialda, but without my GI on board, I don't see that happening. Through goodrx and other coupons, I haven't seen cheaper than roughly $200 for 30...
Thanks for your responses. I'm due this August for my routine scope, so I really don't know the extent of the inflammation at this point. My GI may order one when I see her next week. I could try for...
I'm on the highest dose of the generic Lialda. 4 pills daily. I have an appt. next Friday with my GI. She'll probably order stool test at that time. I've just been in contact with the nurse as of...
Thank you for your opinion. I agree it's wishful thinking on my end that the balsalazide will work any better. Probably grasping at straws here. I'm glad to hear Remicade got you into remission!...
Hello all - need some advice: Long story short, diagnosed with left-sided UC in 2017. Go into remission with prednisone, rowasa, and apriso. Had a long, happy remission on Apriso and twice weekly...
Thanks for the Pentasa suggestion. I’ll inquire with my GI on the 30th. I don’t know if the inflammation is just the cecum right now as I was scoped in November when I was not having any symptoms,...
Hello all - Looking for a bit of advice here. I was diagnosed with UP up to the sigmoid last April and went into remission with Prednisone, Rowasa, and Lialda. In November, scope biopsies showed that...
Hi Quincy- First, I skipped one day of the rowasa per week and used the canasa instead just to see how I was. Then I started using rowasa 2 days in a row and canasa the third day. I alternated like...
Thank you both for your replies. It's such a tricky disease not knowing how our bodies will respond or what lies ahead. iPoop- I plan on continuing the Lialda indefinitely. I don't think it did much...
Hi all, I was diagnosed in April with proctitis going up to the sigmoid junction, and after a bit of a difficult time getting off prednisone in June, I'm thrilled that I've been doing well on Lialda...
Thanks again ipoop... will be taking the lialda starting tomorrow. And yes, this GI did order both stool and blood tests. She's being more thorough than my previous doc. Not sure if it's an FCP stool...
Thanks ipoop for your response. It's easy to panic over every little symptom, and there's an obvious learning curve that will take some time for me to figure out. I am off of prednisone as of a few...
Thank you for your feedback everyone. I'm down to 2.5 mg of pred and still doing ok. I have the 5mg pills, and cut them in half. I only have another 2 days left of the script, with no refills, so we...
I love running, and am currently newly diagnosed and fighting my first flare. Although running hasn't aggravated my flare/symptoms in any way, I agree that I can feel every impact as I'm running...
Good question about the "short" course of pred, but this is what my script was: 40mg-5days 35mg-5days 30mg-5days 25mg-3days 20mg-3days 15mg-3days 10mg-3days From what I've been reading, this seems...
quincy, thank you for your feedback. In your opinion is a 10-0 pred drop a bad idea because of symptoms of withdrawal, symptoms of UP returning, or both? My GI gave very little direction in this...
Hi all, First and foremost, this forum has been a god send to someone newly diagnosed. So I thank you for your wisdom and taking the time to read and respond to my post. :) Background - I was...
Thanks again for your response. I too took a little longer to respond the to prednisone in the first place, but then I seemed to get better practically over night. I'm really hoping the taper was...
Yes, I'm aware that prednisone and uceris are both for short term use. I'm new to this, so I'm learning as I go. I'm certainly not trying to prolong my flare, and will be as aggressive with treatment...
Thank you for your response and suggestion. I didn't think of Uceris, but I agree that it could be worth a shot. I also appreciate your words of encouragement. It was a bit disheartening to have...
Hello All, I'm newly diagnosed with ulcerative proctitis and have just a few questions. My GI prescribed me Prednisone, Rowasa at night, and Canasa in the mornings to get me out of this first nasty...
Will do. Thank you again. Called the dr and although I asked to speak with him directly, a nurse called back with the drs request for me to come in on Monday. I'm anxious to speak with him Monday....
Ok, I may call back to ask about the oral mesalamine. Thank you all for the feedback. Rectal meds: Canasa - 1,000mg (2x per day as written on script) Rowasa - 4g (2x per day as written on script)...
Do you recommend that I get a second opinion? Yes, I realize that long term shouldn't mean that I'll need that regimen always, which is also why I don't understand how my dr could make it sound like...
Thank you again for the responses. Having never been on long term meds before, I'm usually compliant with any dr's orders, but these directions seemed a bit off to me. It's a little overwhelming...
Thank you for your response. I did the enema last night and will take the canasa this morning. My symptoms are blood, urgency, mucus, and gas, but I have solid stools. The mornings are always worse,...
I'm looking for some advice regarding what my GI prescribed. I had a colonoscopy Wednesday confirming my symptoms were compatible with colitis. The results show that my inflammation reaches up to the...