Hi all I've had a telephone consultation today with an ibd nurse( this is something they are doing now here in the UK instead of seeing the gastro) . I explained that since my proctitis flare in...
thank you both . to be honest the pred wasn't as bad as I thought it would be . i was one of the lucky ones that barely had any side effects from it . I really didn't want to go down that route but...
Thank you for that . you made me laugh . I guess it's still early days for me . I think the uncertainty of not knowing if or when a flare will happen makes things harder ....
hi all I've not posted for a while but in october i started with my 1st real proctitis flare and I ended up taking oral steroids which sorted it out . I'm now on salofalk granules and suppositories....
I completely agree . This was my first bad flare which compared to some probably seems really mild but after a month of suffering with no relief they were my only option. Fortunately for me after 2...
Thank you . I was reluctant to use it after reading the side effects it could cause but feel like I may have been fairly lucky . I was evil when on the higher dose and felt quite dizzy until I...
Thank you I will have a read...
After speaking to my gp he did say if things didn't improve after the course had finished I would need to get my eyes checked . I'm also taking salofalk granules and pentasa suppositories daily....
Hi all I'm on week 7 of an 8 week course of pred for a proctitis flare . Although I'm now symptom free and have very few side effects I have suffered with blurry vision from the 1st week of taking...
Thank you for that . Looks like the steroids could be a cause of it and hopefully when I get off them things should return to normal ....
Thank you . It seems there's definitely a connection....
one for the ladies I was using predfoam enemas for a flare and had a period that was barely noticeable . I asked my ibd nurse who said it wasn't caused by the enemas . I was then put on oral pred...
****update**** Thanks for all your advice I tried wetting the suppository slightly and it went in easy and stayed in place. Result !!...
I'm unsure about how dry it is . It had dissolved slightly but not much. I dont think it was anywhere near where it should have been . I 'll try again tonight . Thank you all...
They are 1000mg and oval in shape . Can't actually believe the size of them 😕 Thanks again I will let you know...
Thank you . I 'll give it a try wetting it tonight...
Hi can anyone help me . I've just been put on pentasa suppositories but I'm struggling . Lke most of us on here im used to things being put in holes things shouldn't go into but these little beauties...
I'm on day 3 of oral prednisone and although my symptoms are improving I still have some blood and mucus without bm although it was only once yesterday . I've not had a bm since starting them so dont...
Michelejc I am using pred foam enemas. I spoke to my ibd nurse again yesterday who decided to do some more stool tests as she thought it sounded infectious and she also wanted tocheck my calprotectin...
As I've said I'm new to this so don't really know how to treat a flare . My ibd nurse is all about watch and wait so isn't much help neither is my gp . When reading about flares I don't see anywhere...
Thank you both . Is colitis really that different for everyone like I read? I can't believe how poorly I have suddenly felt the past 3 weeks. In the 18months since my symptoms first started even...
I'm In what my Dr believes to be my first bad flare since being diagnosed with proctitis. I've been using pred foam for a week and my symptoms were starting to ease off until last night . I ate an...
Me again .I've just had a phone call to say my blood test results are back and everything is fine including the one for c reactive protein but my platelet count is little high and needs to be...
Thank you for your advice . I do think I need to Pester them. I'm fed up with their watch and wait approach . I don't think I'm doing that bad considering what I see others go through but it's...
Yes c reactive protein was one of them . Thank you I've not seen my gastro since diagnosis and won't see him until the end of this month .I was told to see my gp by the ibd nurse helpline to rule out...
Hi all me again . I'm now in my 3rd week of suffering . I started using pred foam enemas and have been using them for 5 nights. For 2 days I barely had any pain and had only 1 loose bm and after 2...
Hi all I posted before about sudden loose stools and cramps whilst using pentasa enemas . I've seen my gp who prescribed prednisone foam enemas which I've been using for 3 days . The past 2 days I've...
I had a pain free day Friday and restarted the enemas Friday night . Another pain free day Saturday thought I had cracked it until an hour after using the enema Saturday night . The pains returned...
Oh gosh really ? I could do without losing my hair . I lose enough due to hypothyroidism. I've spoke to my ibd nurse again today who has told me to go back on the enemas due to the blood returning ....
Thanks for your reply. No my stool isn't particularly foul smelling although like you say it won't hurt to check . If I do I have c diff is it contagious like a stomach bug as I have 2 children that...
Hi all well I'm now on day 3 of not using the enemas and I still have the cramps and loose bm there is now blood again with the bm although I'm still only going once a day . The ibd nurse has been in...
My uncle was put on oral meds which suit him fine at the minute . Nobody seems Interested to be honest . My gp knows little about the condition and my gastro hasn't seen me since April. Apparently my...
I have been in touch with the ibd helpline who have told me to stop using the enemas for a few days . She said people are normally told just to use them 1-2 times per week for maintainence . If I...
Thank you so much for the advice . I'm going to ring the ibd helpline tomorrow something needs to be done I feel like I'm just being ignored ....
I was diagnosed with a sigmoidoscopy originally last November and put on asacol suppositories then told I hadn't got proctitis as my biopsies were normal then had anothe sigmoidoscopy in September...
My Dr is pretty useless to be honest and knows nothing about it . I have telephone appointment with an ibd nurse booked for next Monday maybe I should ring her . Thank you...
I've never had pain or loose stools whilst flaring . I have proctitis and even before any medication I've only ever had blood and mucus . My enema is 1g nightly with no other meds . On my scope a...
Hi all I've been using pentasa enemas once a night for a month and they have stopped my symptoms but For the past 3 days I've had left sided cramps and loose stools both symptoms I've never had...
I used the suppositories before with no problems but were taken off them by my gi...
Thank you I 'll give it a try failing that I 'll speak to my Dr to see what he suggests ....
I have to pick another prescription up on Monday. The cramps are right at the bottom of my stomach, they only last for a few minutes but can take my breath away . I try to breath through them . I'm...
The air does come out when it's twisted open but I can't squeeze it as it's full . Do you think I may be squeezing too air in at the end ? I have read of people leaving a drop in the bottom so they...
I've been using pentasa enemas once a night for just over a week after being diagnosed with proctitis. My symptoms disappeared after one day of using them but they give me stomach cramps straight...
I will certainly speak to my Dr about the c scope and biopsy reports . To be honest it was absolutely fine doing the enema and so far no side effects . I'm using pentansa enemas . Thank you...
You ve made me feel whole lot better . Thank you 😗...
@Marjiekay thank you for that . I will be using my 1st one tonight ☺...
I did mention a full scope but the consultant says there is no need . I had a stool sample taken that came back normal . I never got a copy of the biopsy results just a copy of the letter sent to my...
@quincy no ive only had 2 sigmoidoscopies . The 1st report states the proctitis is limited to the 1st 6cm but the 2nd report doesn't say ....
Sorry to hear you ve been through it too . Do you get a lot of pain when in a flare ? I've never had pain and all Drs and my consultant thought it would be hemmies .to say I was shocked when...
Thank you so much John . I was concerned that if I had had proctitis all along it may have got worse due to lack of medication . Now I guess I 'll wait for the biopsy results. Thanks again...