I've been using ginger root tea for several years now....for arthritic pain. I have no proof...maybe it's all in my mind, but if I stop drinking my tea, pain returns in a few days. After resuming,...
I've been getting Remicade infusions since about 1997. At the time, it wasn't really commonly given for UC. It was the only thing that put me into remission. I've had a couple of flares, but after my...
If you mix it with the white Gatorade, and chill it, it goes down much easier. Good luck on the scope....
by all means...ask your doctor to resubmit his prescription and justify your need for your medications to the insurance company. I too, despise that the insurance companies are, pretty much, denying...
There are many on this site who are much more knowledgeable than I, but I have found...our treatment and health are basically in OUR hands. Talk with your MD and ask why she doesn't think blood tests...
Mornings! When I start moving around; it will suddenly strike and it's....run for the potty time! Remission is SO good when it occures. Good luck all....
I'm really sorry to hear about this. I had the same problem around a year ago. I'd been in remission for almost 5 years...until I missed the infusions. My doctor contacted my insurance company and...
how do you ever get used to it...ROFL I can't speak for others, but I've never gotten used to it. LOL I have learned to just live with it and deal with the flares when they occur. Remicade has...
I'm so sorry for you. I've been there too. My G.I. doctor prescribed Hyoscyamine for the sudden cramps. They worked GREAT in my case...along with my normal Remicade, Delzicol....replaced Asacol, and...
If you're having intestinal pain, for me peppermint oil capsules work and as does Bentyl.[/quote]~~~~~~~~~Does peppermint oil stop the pain from the cramping ??????...
Thanks ipoop, I tend to take you guys in this group for granted when I'm in remission. Sure is good to know I'm not alone in this 'crap' and that most of you are still here. Thanks again....
I hope your flare ends QUICKLY!! I'm in the dumps right now because I too, had a flare this week, after such a LONG TIME in remission. Good luck to you and God bless you....
Hi all....I'm having a flare. Is there ANYTHING that will stop the pain and cramping? I won't be able to see my doctor until sometime next week. I've been using Hyoscyamine under the tongue every 4...
Ask your GI to check your liver and gall bladder. If none of the things they've checked...may just be scar tissue causing pain. Good luck....
I've been on Remicade since 1997. Never had any side effects. I tend to feel a bit tired and sleepy after the infusions, but that may just be due to the time it takes for the infusions. Prednisone,...
how much prednisone are you taking? Find a doctor (gastroenterologist) who will LISTEN...ask around, check doctors for past complaints against them etc. Good luck to you. Prednisone gives me terrible...
1. approx. three years; improvement was constant but slow. 2. Had a few flares from time to time. Was prescribed cortisone ememas until flare was under control again. 3. Kefir, Asacol, Dicyclomine,...
Thank you...I'd just never asked....not a good thing when we're at their mercy. LOL...
Spent part of the day getting my Remicade infusion. I'm getting 800mg and was told by the nurse, that's the max. dosage. Does anyone else get different answers? When I left, all I wanted to do was...
LOL I laugh because I too, have been down your route. I go to a dermatologist who gave me two creams to mix half and half, he put my in a light box thing, he has even given me cortizone ointment for...
Tell your dear ole husband to sit down for a few minutes and read this post. Maybe if he sees what you feel, in print, it may sink in. Then ask him to please read some of the other posts in...
I've been getting Remicade since around 1997. After a flare, my gastro. doc. upped the dosage and all was fine. I also take Kefir and drink ginger root tea for mild arthritic pain...it works for me....
It gets better....but you MUST find a GOOD gastroenterologist!!! Unless you find a doctor who will actually talk with you and LISTEN, the journey is more unpleasant. In my case, I can't understand...
Sounds more like IBS due to the stress. I wish I had an answer, but I'm reading these informative posts because I too, am in search of answers. Talk with your gastro. doctor and make him or her...
I make my own ginger tea. You can either thinly slice the roots or grind them, then steep them in boiling water. Sweeten with...whatever...sugar, non-sugar or honey. I like local honey in mine. Also,...
Lex...I've been getting Remicade infusions, every 8 weeks, since about 1997. I never had any bad side effects, but I am very tired after the infusions. I spend my infusion time reading books; so this...
nanj..it is really sad that you have this curse, but good that you found this website this early in your illness. It took me years to find the information that you can glean from the posts here. Seem...
xen..I really hate it for you, and everyone else with this illness. You have a bit of extra stress also, due to the job. THAT doesn't help much. Maybe your GI doc can prescribe a short term of some...
may wish to try Kefir. There ARE drugs for IBS too. Seems like your GI doc and you need to discuss it more...but then, I'm not a doctor. Good luck...
Congratulations!!! I agree with you, wholeheartedly!!...
Honestly, for ME...I never noticed any difference at all, with 6MP. I took it over two years. But...though we are all the same...we're all different. LOL Good luck...
Listen to DB and Notso...and listen to your GI DOCTOR!! A few years ago, I begged my g.i. doctor to take out whatever he needed to remove to give me back some quality of life. He told me..not yet my...
Thank you! This is the drug I read about earlier I think. There is ALWAYS hope for new things in the future. Be safe and feel well....
Wonderful news, but I can't find any information about it. The only thing I could find was telling about a new generic to be sold in Europe. ANY information would be greatly appreciated. Be safe all...
Nope...they're all slow. LOL I'm glad you did get approved. I KNOW how frustrating it can be...just trying to get a drug that will help you. Try to be patient...well...SUPER patient. These days, it...
ginger root tea, turmeric, and Kefir. I was eating lots of yogurt but there are so many brands with sugar added; Kefir works best for me...but tastes like buttermilk. I prefer the blueberry...
because of my colonoscopy in 2015, a great report and a 5 year remission, my doc said three years would be fine. Since I had a flare recently..doc now says..this year. sheesh Though as most folks, I...
Krayer..your post seems SO familiar to me!! LOL Until you've had this problem, ya can't understand the turmoil. My doc gave me lorazepam a while back. It helped with the anxiety a little. Another...
Ohhh, how I hate it for you! Like you, my insurance denied my Remicade a few weeks ago. Fortunately, my doctor did get approval for another year. It just seems SO...wrong...that our insurance...
I've been getting Remicade infusions for over 15 years and have had no problems with infections. I also drink Kefir, add turmeric to my food, and drink ginger root tea. Asacol and dicyclimine are my...
There are incinerator toilets that burn the waste. They aren't all that expensive and work great from what I've read. The residue is a small amount of ash which can be dumped on your lawn, much as...
BEST of luck to you! Remicade certainly has helped me have a life. Good luck bringing your new little life into yours. ipoop told you right...take a book..or something with you. I usually start...
I was just reading about Inflectra. It is made in South Korea and is SIMILAR to Remicade. According to the information provided, it can't be called a 'generic' drug because it isn't the same as...
Ask your doctor to try contact your insurance. I too, had trouble getting my insurance approval; but through the persistence of my doctors' business office, they did approve me for another year. Good...
KS...THAT would be GREAT. I'll be watching and reading...and hoping. Be safe and thanks for the info....
noel..I watched my father walk on the sides of his feet due to rheumatoid arthritis. I have osteo arthritis, but no bad. I drink ginger root tea, sweetened with honey and I've had amazing relief from...
I too get cramps...in my legs, arms, fingers, toes....most anyplace...from prednisone. It will pass in a week or two, but talk with you doctors anyway. Prednisone does funny things to me that it...
justgettin...don't give up!! I recently had SO much aggravation and STRESS trying to get my Remicade. Fortunately, my gastro. doc had a new person working for him, who knew how to deal with insurance...
noel, I've taken it many times over the years, both for a pulmonary problem and for UC. It's just a BADddddd drug. It doesn't CURE anything, but it does make it SEEM cured. I finished a tapering dose...
go to a gastroenterologist soon. There are people on here who are much more knowledgable than I, but nobody can give you a good diagnosis but your doctor. Were I you...I wouldn't put it off. Could be...