Thanks for thinking of me countess! I’m doing ok. The last flex sig I had before I got too pregnant was right before Christmas. It showed the stubborn area had gone from a 2 inch ring of moderate...
Countess that’s such great news!! Congrats. Btw I saw the gi you see and really like him. He’s my specialist at penn now. So thank you!! I agree with parts of everyone’s suggestions lol. If it were...
Awesome to hear! Get some rest!!...
So happy for you 3time! Been following you through the last couple months. So happy your scheduled and almost on the other side of UC. I wish you nothing but a smooth surgery and healthy 2018. Keep...
Hopefully this makes you feel better. I’ve had uc for over 5 years. My liver enzymes fluctuate on occasion. I’m currently on 6 mp and remicade and get bloodwork every 3 months. Depending on...
There are a bunch of rectal meds you could try and get prescribed. Usually for proctitis you use suppositories- Canasa or hydrocortisone suppositories. Then there’s cortifoam or uceris foam. Then...
It’s great to hear you’re feeling better. Hopefully the stool test reveals something. I’d do the same in your position!! Keep us posted :)...
I started another post but I think this may answer my question better... Has anyone had success with remicade but had to stop it for side effects or lingering inflammation and move on to another...
@coffee- are you using rectals as the entyvio takes full effect? Also I’ve seen drs at Jefferson over the years. They have a great ibd team as well I saw DiMarino when I was first diagnosed. I think...
Thanks for the input guys!! Casey- were you able to get off the cort enemas??...
From what i have read the lymphoma increase is with males in their 20-30s on combo therapy. Again the odds are very low regardless if i remember correctly. Regarding 5 asas yes I think the goal is to...
Hey countess. Yes my second opinion gi is Caroline kerner at penn. I’ve met with her once this summer and see her again next month. I meant to email you her name a couple weeks ago...so sorry I’m a...
I’m on remicade. I’ve been on it almost 3 years. Remicade in conjunction with 6 mp was a game changer for me. I still have bumps that I’m working thru (my uc is bizarre lol). But since starting the...
I agree with DB that it sounds like you still have c diff. What antibiotic did you use when they diagnosed it? I also agree with her view on starting remicade. Nothing is ever written in stone but...
Hey John. I’m currently on 50 mg 6 mp. Been on it since last summer. My gi doesn’t think upping the dose will do much. I’m on the max for my weight but also when i was first diagnosed i tried 75 mg...
Hi guys. Some know my story. I will have been on remicade for 3 years this February. I have had some bumps but things have been controlled since starting 6 mp last summer. However I have a patch of...
Rip off the bandaid :) I started remicade when I was 30 weeks pregnant. I was terrified of going into preterm labor. I was in a terrible flare and stuck at 25 mg of pred. Within 6 weeks I was in...
Good luck countess. I understand your fears. I’ve been on remicade for almost 3 years and haven’t had any issues with infections or colds. I also had a c section and will have another in march with...
I didn’t get that pain either until my last flare. I never had any pain before that. Well except when going with cramps tenemys etc. It’s not really about what the doctor wants. It’s about what you...
Did they give you a list of the abx that will kill the specific bacteria? I get the list and send to my gi (if he didn’t do the test). This way we work together on which one will be the least evil. I...
I agree with iPoop. Bumps are par for the course with a pred taper. Also the location of your inflammation is when stool can be on its way out so as you heal and stool rubs you may see some...
Do you want to start a new thread with this as the subject? Do you know the extent of your inflammation from when you were dx’ed via c scope? Uc starts from the rectum and spreads up. It heals down...
I have two little boys too :) Poop machines is pretty spot on!! Pooooop for days. Haha. IF you ever poop in public and that’s a big IF but try not to dwell on it. You sound like you’re responding to...
I second iPoop and Mom. Natural proteins are best and on top I add in orgain protein shakes - the vegan version with pea protein. There’s no carageenan and a ton of whole food vitamins and nutrients....
Chikin- I didn’t mean to upset you in anyway. Some don’t have accidents. I had a really rough patch after my second baby where my meds weren’t helping at all. But I never had accidents before that...
Maybe instead of prednisone you want to try a steroid enema? They go as far as rowasa but have some steroid power. They are much safer and much less side effects if any. I've been following your...
Empathy for others and realizing we all have issues behind closed doors. Patience. Patience. Patience. Living in the moment and appreciating the day. Like mom said - being grateful for the normal...
Congrats dikid!!!!!! It's sounds like you have so much awesome stuff going on. So glad you are feeling good :)...
That's how I felt on asacol hd. It was bizarre and scary. It stopped after I ceased the med. I was fine in lialda. However now I seem to be intolerant to mesalamine meds. Hopefully you hear back from...
The gym activity even for people who don't have ibd can cause gi stuff. My husband who has an iron stomach and could eat rocks marinated in gluten, pasta sauce and dairy gets "runners d" or poops...
I lose my hair around 3 months post a bad flare that requires a pred taper. It usually lasts 3-6 months. It's horrible horrible horrible. I feel for you. On top of all the stuff we have to deal with...
I live in NJ and have a MMJ card for UC. Unfortunately it doesn't have an impact on my inflammation but it does help a GREAT deal with other symptoms- nausea, cramps, headaches, anxiety, stress,...
I know. It totally sucks when one thing stops and something else pops up. It's most likely a sign of healing. Things feel different as you heal. Talk with your gi too. And the gyn that did the...
I'd highly suggest not stopping lialda especially if it's working for you. I started on lialda and eventually had to move up the med ladder. Uc can spread and increase in severity during the early...
Steroid enemas (I can't handle rowasa anymore). I'm the same as you. Once the freight train starts there's no stopping it. So I hit my colon with rectals. I haven't been hospitalized in 3 years ;)...
Curcumin can make your stool look orange. And it may contribute the other colors you are seeing when mixed with regular stool type colors. My transit and colors are different than pre-uc as well. But...
Good luck Quincy!!...
iPoop and TTurds are right that's it's never linear and second the rowasa. You may need help healing the lower area. I've had 2 c sections and always think the same you do about the pain being my...
Good to know on probiotics. I'll start taking them at night. Thank you. I have learned a decent amount and I'm grateful that I know my options without second guessing things right now. I am on...
Thanks Quincy! I've got 2 months worth of the visbiome left and then was thinking of switching. So I will def try what you suggested. I've been taking them in the morning. Is bedtime better? I did...
It's 1 pm where I am and I've still only gone once. Just ate lunch so waiting if that triggers anything. It's bizarre for sure Quincy!!!! I'm going to do a couple consecutive nights of the cort e and...
I was just scoped 9 days ago. I will go again in mid November. Sooner if things don't calm down. I've done cortifoam before but it doesn't reach the area. Cort enemas are pretty much all I have left...
This makes me so sad. I feel like I am succumbing to being steroid dependent...I guess I should be grateful that its only cort enemas and not pred...and hopefully stays that way. Thanks Q. Yes I am...
Another night of rowasa and another morning with terrible symptoms. Retained it all night. Woke up to cramping and d and blood and frequency. My first bm was basically the enema liquid. Yesterday I...
Thanks Connor. I'm going to swap a couple more nights. I felt so much better today after a cort enema. I think I just don't mix with 5asa anymore. It sucks. I get flexed in November. See another gi...
Thanks for the tips. I'll give the pillow barricade a try :) I put the enema in about an hour before sleep time. So I put it in and lay on my left side for at least an hour. I do toss and turn so I...
Thanks John. I feel the same. It's such a tough decision. And an awful spot to be in. I hate steroids if any kind. I'm making an appt with a gi at upenn that I met with once before. Hopefully she has...
Yea that's exactly what my gi means by mild. He doesn't think it's too bad (right now) because it's cort enemas. It was biopsied during my colonoscopy in January 2016 which is 6 months after it...
Does it sound like a med refractory, steroid dependent type of situation? My gi is making me feel crazy by thinking it is....
Quincy - I really think I have issues with the 5ASA which is why I stopped it 2 years ago. I rarely ever have diarrhea (maybe twice in 2 years) because of the location of the patch of inflammation....