I've been on the primrose oil since December 2016. I take it to control premenstrual dysphoric disorder. My doctors know this and haven't said anything about it :/...
There has been a change of plan! I'm to have a flexible sigmoidoscopy within the next three days to check the disease again because my symptoms are now way worse than they were initially when I was...
Thank you :) I'm trying not to let it stop me from living my life, as hard as that is at times. Especially right now :/ Azathioprine was one of the drugs they were talking about yes. I'm waiting for...
I've mostly been on asacol in the past. I had them initially after I was first diagnosed. They were the miracle meds for me at the time and I was told to come off them after 6 weeks (which was a big...
Thanks iPoop! I feel a bit more reassured :) I'm to start the immunosuppressants tomorrow with another steroid course in the mean time, and I'm continuing with the octasa. The things I'm scared of...
I tried enemas and suppositories and at first when I was diagnosed they were working fine, but then my body just seemed to reject them completely :/ it was weird, whenever I put a suppository in at...
Hello all! Despite a symptom-free 6 weeks on a short course of prednisolone, I'm flaring once again. I came off the steroids 5 days ago, then this morning out of nowhere, I had urgency and three...
Thanks :) I've never been on pred for longer than a week before and I think the affects are really setting in. I woke up feeling much better this morning, but my period seems to have started again,...
Hi all :) I'm currently recovering (fingers crossed) from a ulcerative proctitis flare. I've had normal BMs for two weeks with no bleeding! I'm on 4.8g of octasa daily and 15mg of pred. I started on...
The score for me is to double up on the steroid for 4-5 days, then if that doesn't work then it's off to the doctor! Still wheezy, dry cough. Again, may just be a cold :)...
I'm on clenil modulite (steroid) daily and a salbutamol reliever. I was diagnosed 7 years ago and that's been it, more or less under control apart from 2 asthma attacks (the last one 3 years ago)....
Hi! I have ulcerative proctitis (5 weeks into first flare). I am asthmatic and I seem to have been steadily developing a wheeze over the past couple of days. I've been on the pred/octasa for five...
What a wild goose chase... which began with being told that I was in the wrong hospital (admin error), and it took me a good while to be seen because there was only one IBD nurse on site. She was...
My appointment is tomorrow morning, and I have a lot of questions to ask, the most I've gone into detail about my proctitis with a specialist face to face was right after the colonoscopy... which I...
If there's one thing I've learned recently it's that proctitis is veeery stubborn. I've been on a new course of treatment for the past few days; Oral prednisolone 30mg daily, reducing dose weekly....
Hi all :) Unfortunately I'm back to square one despite still taking my medication. Though I don't think all the christmas food has done me any good... oopsie! I'm still only going up to 4 times a day...
Thanks for the replies peeps :) Despite a wonderful christmas eve, the bleeding seems to be on a steady increase once more. I won't be seen by a specialist again before the 2nd Jan and I'm keeping my...
Hi everyone! I'm here because I need advice on living with and managing my proctitis :) I was diagnosed 3 ish months ago after 3 months of ongoing symptoms; mucus and blood when passing a stool,...