I work in stressful situations where one mistake could mean losing the companies biggest customer, referenceable customer. So people are on these high-tech work calls and when I have had too much...
Sorry it is not panning out for you so soon. I got almost 2 years out of it. I cancelled my Enytvio appointment last month and had to work 7 days a week for june and july and under stressful...
Thanks for posting that. I only tried Entyvio but UC was so unmanaged the last 4 months of it that I had a 2-inch long blockage develop in my heart resulting in heart attach and emergency procedure...
Yes those all look familiar. I have hundreds, maybe 1000 bottles of supplements. My friends used to refer to my walk-in closet as my my own GNC. Qing Dai, Pysllium seed powder, Apple Pectin, Mastic...
Oh yeah one last thing, that round of Uceris I requested in March when I was first on Atorvastatin that finally came when I was on Atorvastatin the 2nd time - It is still sitting here unused and...
I never took any biologics only prednisone/Uceris/Suflaz before getting on Entyvio which seemed to work for 1.5 years before failing to do anything and the doctors blame the unmanaged inflammation...
One more thing the internal medicine doc at infusion lounge agrees with me, little evidence that Entyvio is doing anything at all for me these days. He reacted strongly to the apple pectin powder...
It does not hurt being on the strongest statin. I avoided them since 2017 because of concerns I had. Since my Total cholesterol was only 77 when the Feb/2019 blockage required a stent in the LAD the...
That's my ticket to freedom https://live.staticflickr.com/65535/47986132442_4987b058bb_b.jpg ...
Also if you read the literature on Qing Dai on pubmed, you eventually reach where it says to not take more than 8 weeks as it could backfire resulting in 'cancer of the colitis type'. So I am just...
I do not think so. Last weeks Entyvio infusion was the last one for me. It failed to do anything the last 8 months after a good 1.5 years of remission. I just dropped CRP from 23 to 2.3 in 6 weeks,...
I was asking myself the same question. About that time, 1.5 years of remission, I flared after some back to back all-nighters for work in Aug/Oct of last year. Previous to that I handled giving my...
Because those foods do nothing for my intestinal wellness. Years ago we were eating Navy Beans for the resistant starch but those come with their own problems ( flatulance ). This works as well as...
Nobody has posted about this. I am in week 9 getting my Entyvio infusion friday and have never been this good since going on Entyvio, this far into a cycle, I normally have the infusion in week 8 and...
Very interesting discussion and entertaining posts. "That's because people were too busy dying of infectious diseases." So last summer heart doctor was alarmed and I had surgery to place a stent but...
It does not mess with your kidneys. Creatine metabolizes into creatinine which just happens to be what the comprehensive metabolic panel ( CMP ) test uses a basic marker for kidney health. It messes...
I too had hair loss after Entyvio and tried biotin and supplements and hair products which did zero. I was a little busy with a heart procedure resulting in no stent - nothinburger. A little busy...
Andrina, I too had terrible Dexa Scan result. I have not returned to see if it has changed. What I do is lift heavy weights. Unfortunately I cannot squat over 315 because my back is broken at the L-5...
They banned DMAA on a technicality but it is back. 1,3-Dimethylamylamine is the only brain stimulant that also slows the gut. I like armodafinil but it does raise my blood pressure substantially. C4...
Unexpected observation 'super hesitant to take Entyvio'. I was super hesitant to take Humira, Remicade and Imuran. The doctors would point their finger and blame me for not 'managing' my disease...
I do them all the time. Self-pay pricing. The heart surgeon, the Entyvio internist, the GP they all do them too. Then the Entyvio internist freaked out because my creatinine was 1.9 and bun 30. I...
I stop by here to see what the news is often. I had to log in to see what my email was set to. I do not use that one much these days. Short version Anyway I can provide a brief history ( for the...
Thank you. I certainly paid a price along the way as I liked prednisone but it caused stroke, bicep tendon burst, plantar fasciitis. Everyone is different it is just how I chose to go about it. I...
Not sure how you can say that. The risks with biologics are incredibly small, the risks with uncontrolled inflammation are very very large...[/quote] That is certainly true and my plan was to get on...
Because I am not promoting any particular treatment. The point is we should all retain some hope and strive for stability....
I still have the scars of PAN-Colitis. I would assume I will always have PAN-UC. As we all know UC can come back for unexplained reasons so that is why my fingers are crossed going forward. Pride...
What on earth are you talking about ? I broke away completely from GI's because they will not talk about alternative therapies or newer therapies. Skipping the colonoscopy last year was not...
Today I saw GI #2 - all 3 GI docs wanted me on Biologics/Immunossuppressants. I am raising my daughter by myself 100% custody. I cannot allow the small cancer risk associated with them. Had I gone...
I returned to the same doctor I had argued with 2 years earlier post-colonoscopy. She gave me 2 choices at that time : 1) Have my intestines surgically removed 2) Go on Bioligics I said 'No' to both...
Hit or miss. I used to get it because Mebeverine is not sold in U.S....
Thanks everyone, clearly two camps here. I am healthy and well but just moved everything into our new home and strained myself. That is mostly recovered but might be best to emphasize that they be...
http://www.healingwell.com/community/default.aspx?f=38&m=3134998 ...
YOU WILL BE MEDICATED FOR THIS PROCEDURE. YOU MUST BE ACCOMPANIED BY A FRIEND OR RELATIVE TO DRIVE YOU HOME. YOU MAY NOT DRIVE, OR GO HOME BY TAXI OR BUS. IF YOU DO NOT HAVE A DRIVER, YOUR PROCEDURE...
This website and reader comments make it sound like a walk in the park. http://commonhealth.wbur.org/2013/02/sedation-free-colonoscopy However for UC'ers perhaps it is more painful. Please share your...
REWARD - pea protein works great...
It blocks collagen synthesis and reduces bone density. When your not on it you need to work to restore what has been lost. My motivation for eating clean is to continue remission and avoid taking...
I was more veggie-based the last 6-months than ever in my life. It was ok but completely useless in the gym. I switched to grass-fed beef and now instead of twice daily bm at sunrise and after...
For the record there is no UC side effect from GCE. - Strong energy all day and I do take a 2nd 500mg pill mid day. - No problem sleeping - Perfect Poop once per day so far so there are not side...
I have some and take it EOD and never noticed anything positive from it. The literature was great but it just does not pan out for me....
I have used this before, however this time it seems to be just what I needed as I switched to grass feed beef diet. Plant diet has been healthy but completely worthless for bodybuilding. GCE works...
I have PAN-Colitis and use salmon in flares, one time only salmon 3 meals a day beat the flare by the 7th day but it is hard to only eat salmon high in protein and antiinflammatory. Sleeping pills...
I can drive for hours to work and home. I can sit in long meetings for hours. I do not wake up in the middle of the night. I only have bm when I choose to 1-2 times per day....
I cannot handle any yogurt in 2015. I notice as the biome changes healing foods change, offending foods change a little but never does a friendly food become and offending food. Never a complete...
Right. UC is the root-cause not the food. However I can avoid flares by sticking to the straight and narrow. Experience has taught me what will wreck havoc. Experience has taught me what will...
Correct....
Some yes some no. I am clearly in the yes camp. I just tried to go back to natural whey protein powder and some other choices since I was doing well and out of my pea protein and started going...
I took a lot of both to go to an interview once right in the middle of an awful flare. Along with blood work you need poop work. Then it is safe to take lots of immodium and mebervine. Usually...
That's probably one of my favourite movies! Thank you all for your advice - I will try the various supplements, I have some enemas at home so I'll try them instead of the suppositories.. ... If my...
Well if you read my post you will see that I am not impressed with 21% remission when Celgenes other drug is over 70% effective for Crohns patients and a UC trial is also planned so we were trying...