I am back again. Joseph's funeral was very sad and he has now been put to rest. A lot of people showed up and the church was full. He asked to be cremated. Later this summer we will scatter his ashes...
Hello, I am Joseph's (Chiron's) sister. He left his family with some internet contacts that he wanted us to let know if something happened to him. Joseph had colectomy surgery on Friday May 18 after...
What I want more than anything, is to wake up and just feel that festering piece of body tissue gone... just the absence of it, I can only imagine the relief. I am not looking forward to the post-op...
I have severe UC and I'm in the hospital right now. All medications and alternative treatments have failed and my body is dying. My colectomy is booked for this weekend. I am looking forward to...
If you don't have an ostomy, I kindly ask that you don't reply to this. My surgery is booked for this weekend, finally. I am looking forward to getting this nightmare organ out of my body. I really...
It does depend. Lactase pills will break down lactose, the milk sugar, but not anything else. If your problem is with lactose, then lactase pills should help. However, if your problem is with milk...
Could someone please answer my question about the lactase? Can lactase pills (for lactose intolerant people who can't digest lactose) prevent the irritation that dairy usually causes me, so that I...
My family found a meal replacement drink that is almost perfect, but it contains cow milk. Has anyone here taken those lactase pills before? Do they work? Maybe if I do that, the dairy won't wreck me...
Bloods are pretty bad. Got two units of blood the other day because of low hemoglobin. No ferritin left, I think it's at 2 or something. CRP is 120. WBC is 8 or 9. Liver and kidneys are OK...
Thank you for keeping up with my situation everyone. You are one of the only sources of comfort right now, voices of reason. I am going to ask for ileostomy surgery and tell them I will decide what...
Sorry for the delayed reply... it is so hard to muster the strength and focus for anything right now. I am so strung out from pain and pain killers. The more I ask for TPN, the more the doctors get...
I'm in the ICU in serious shape and I need some advice as well as reassurance. I am so scared and strung out. I've wanted to write to HW for over a week but this it the first day when I've had the...
Coconut water is diuretic and laxative, look it up. If you only drank it and nothing else you would eventually die of dehydration. The diuretic effect is cooling because all the urination takes heat...
Thanks everyone so far, I am saving links. My friend will help me read them later Can you tell me the brand name and model of those ones so I can try looking them up when I feel a bit more energy?...
Can I call on the Healingwell community for help with this? I am so weak right now that it is hard to stare at a computer screen for more than 20 minutes, and I'm in such incredible pain. I really...
Never heard of UC-C or UC-D... the -D and -C are IBS terms, a totally different disease. Qing Dai does work on UC inflammation most of the time. There are lots of people who swear by it. The last...
So I have to ask, what is your bathroom setup like? What do you have in there to make life more comfortable and easy while you're flaring? We do spend a lot of time in there, after all. In my...
I was just going to post a thread about this. I am having tenesmus from hell right now. Seriously I am ready to shoot myself! If there is even the tiniest bit of formed stool in my rectum, even a...
notsosicklygirl, if any kind of veggies in general set off my gut, would spinach be safer? It seems like everyone talks about eating spinach while in flares. I'm also worried about getting kidney...
Thanks for that well thought out reply, it was nice of you. It sounds like food intolerances were never an issue for you. They are huge for me. I need to ask some other people with ostomies and...
No worries about hijacking my other thread. I asked for you to move it here because I wanted to ask my own questions about surgery, because I'm strongly considering it right now. I want to get rid of...
notsosicklygirl I hate gelatin too... the texture is gross, it makes me gag, but it's pure protein and such an easy source. suchatravesty I have injectable vitamins of different kinds my doctor gave...
I found this stuff today called Great Lakes gelatin. You add two teaspoons to hot water and it's loaded with protein. They also have a collagen version, but I couldn't afford to buy both today. Is it...
Sorry could you guys please take the surgery Q&A to a new thread? I really just want to know about liquid diet. No offense....
Thanks for the suggestions... these are good ideas. Jello or gelatin is something I totally forgot about for some reason....
Sorry for another thread so soon, it'll be the last one for a while... So I need to stop eating solid food, even low fiber food. It's destroying me at the other end right now. My partner is very...
When I was in the recovery room from my abscess surgery, a man in the room had an ostomy and it was farting sooo loud... like every 5 minutes. Is it always that way?...
Seriously, if my colon were a person, I'd shoot them! Just die!...
I am so angry right now... that my body is doing this to me. I have tried so hard to have compassion for my body these past years of dealing with UC, but now I've had it. It's official, I hate my...
I did 12 and with each one I got worse. The doctor said just keep going but eventually my CRP went through the roof and I was bleeding horribly. I had to get a blood transfusion. I hate it when you...
Does PSC prevent you from digesting fat properly? I've always had a problem with that and my UC, even when I'm in remission. Fatty stuff tends to pass through and cause foul smelling stool. If my...
There is one you can get in the Bahamas for $10,000. A friend who works at a pharmaceutical company told me about it. I think it's expensive because it's for anyone. In North America you can only...
The putrid BMs are usually the first sign I'm going to flare. It starts even while I'm having solid stool. Once the smell starts I have 3 three weeks before the worst of it starts. The stools start...
The diet seems like it could work, but really it's just another dysbiosis diet... like SCD or low FODMAP. It also needs expensive blood tests. The comprehensive allergy blood work that naturopaths do...
In my hospital room there was a guy next to me who just had take-down surgery for his j-pouch and he told me a lot about what brought him to that. He said that he was 52, and still too young to have...
Based on the size of the abscess, it did not start forming recently. It has probably been there for a while. It may explain why I was starting to get out of this flare but then got worse. I also...
No indication that was one forming... just a pain that I thought was a hemorrhoid, even though I couldn't see one in the mirror. Even the resulting abscess did not show up on the skin, but I sure as...
Just went through a 24 hour ordeal of having a perianal abscess diagnosed at the hospital. It was golf-ball sized and took up half my buttock, according to the surgeon. I went in for surgery and they...
Does anyone know of the recovery is hard? Do I have to take antibiotics? I really don't want to. The doctor was talking about giving me clindamycin and I hear it's a big no no for UC....
The pain got so crazy that I was screaming all night at home. Went to the ER and it turns out it's not a hemorrhoid but a perianal abscess. Will prob get emergency surgery, which terrifies me. Has...
Eating and drinking always does that for me especially in the morning. Usually when I wake up first thing my mouth is dry so I drink water but if I gulp and don't sip I get bowel urgency....
How long have you been on pred and how much? I think that's way too much vitamin D. If you have an excess of vitamin D it can actually take calcium from the bones. Also are you getting enough...
I just spent the morning in the ER for the worst pain I've had in a while, worse than the UC pain itself. I have thrombosed hemorrhoids and they are so painful that I can't even sit without a...
iPoop, we talked about potassium... do you know what kind is good? My doctor gave me 540mg potassium citrate pills, but I hear citrate isn't the best for the gut. It makes something called...
Just found out I was wrong. You need 1/4 cup of sesame seeds just to get 30% of your calcium or something ridiculous like that, and they're very high in copper. So it looks like you'd have to...
Oh! I just found out that two tablespoons of roasted sesame seeds has 110% the RDA calcium. I can eat those!!! My doctor gave me a rx for potassium citrate 540mg pills and I've been taking 1-2 per...
I need some advice on what I can take to give my body enough calcium while on prednisone. I can't consume dairy or raw vegetables. I also can't take calcium supplements. They all cause bleeding. So...
Yeah eating GMO corn is bad news for the gut. Why don't you just try buying a psyllium fiber supplement and take that instead?...
FMT has a 90% cure rate for c. diff....
I hate to bring this up but in my local support group there was a woman on aza who started it when she was 3 months pregnant because her UC was so severe that her doc was afraid she might have a...