I have tons of Bentyl here. I'll go ahead and try it and see if it helps! :)...
Thanks for the reply! - The pain isn't associated with anything. It almost feels like it's deep within my buttcheek muscle right by the rectal area. Completely weird. But maybe it's an internal...
Next week when I see my GI doctor is when she'll have "the talk" with me, to gauge how I've been feeling since the Entyvio schedule change from 8 weeks to 4 weeks, (haven't seen her since last year)....
After prednisone, remicade, sulfasalazine and tacrolimus being unable to snap me into remission or help me at all, my doctors put me on Entyvio. It kind of had me all over the place. Certainly took a...
Hey there guys! It's been a minute. I'm having an odd symptom which has become more prominent over the years. I feel as though I've experienced it before but it seems to be getting a bit more...
Currently on 4 pills a day along with Entyvio every 4 weeks (folic acid on the daily too). My symptoms are no longer calling for rectal meds. I haven't had bleeding/urgency about 10 months now. While...
Has anyone here tried sulfasalazine? I've been on Entyvio for almost a year now, half of which has been at the 4 week intervals, and I'm still having issues. Not severe issues, but it isn't putting...
I can guarantee that it's all of the Prednisone. It has so many awful side effects and will have you feeling all sorts of ways. But as others have said, they'll use Prednisone to calm down your flare...
Thanks for the feedback! I kind of have always had a little weight issue. Once my first flare began, I lost about 25-30lbs because I became so sick. The first hospital I was at kind of abused me with...
I wanted to see if any of you have had the same issues before with your UC. I haven't posted here in awhile but in short, I have pancolitis. My diagnosis was December 2017. My flare was so aggressive...
Yeah I think UC is a bit more mysterious than it gets credit for, really. It's caused me so many non-gut related issues. The pins/needles feeling in my hands/feet (also a burning sensation too?),...
I've been on Entyvio for about the same time frame, but I'm on the 1x every 4 weeks regimen (UC is aggressive and won't quit). I haven't had any skin issues related to the Entyvio itself (not that I...
I've experienced the burning/tingling/numbness, without a doubt. But I've only experienced it during HEAVY flares, and while being on Prednisone. I had every test in the world run on me (during my 2...
My first symptom was what felt like a consistent, but very mild stomach ache. Just lots of discomfort accompanied by ATROCIOUS joint pain. The joint pain was worse than anything else. It was so bad...
Yes - I lost about 45%-50% (maybe more?) total density of my hair shortly after the worst flare of my life. Google around about it. It's a very odd thing. The blood loss you experience from your...
Prednisone always drives me insane whether I'm first going into it or coming off of it. I *always* get out of control anxiety and muscle cramping. Go grab yourself a bottle of CBD oil. It helps....
Hey guys! I have a quick question here. When I had my first flare and spent a significant time in the hospital, it seems as though Prednisone caused my CMV to come out and wreak havoc. I didn't know...
Tacrolimus saved me. I was losing blood and in an AWFUL flare *for a LONG TIME* that Prednisone WOULD NOT BUDGE. Once I was transferred to a hospital that knew what they were doing, they chose oral...
The only thing that sucked for me with low carbing is the dietary fiber aspect of it. It angers my guts....
I went through this somewhat recently. Had a HORRIBLE flare in December 2017 which put me into the hospital for about two months. I went anemic, had blood transfusions, the whole 9 yards. Initially,...
Usually they'll put you on Prednisone to try and slow down the issue while your actual treatment plan is created. It's a very dangerous medication to be on, long term....
Just an update here! Biopsy results showed mild to moderate inflammation - Entyvio will be increased to every 4 weeks as opposed to 8....
Ha! Totally understandable. I almost didn't want to look, but knew I had to for my own good. My December 2017 one was pretty rough though. It terrified me....
Glad to hear! It's a very odd sensation. When the dye begins to react with the MRI machine it warms up in your gut? Kind of feels like your peeing/pooping all over yourself. 100% awful and weird, LOL....
I have a whole booklet explaining it, back at my house. I initially didn't dig too much into it, as when I agreed to it I was extremely sick and just willing to ensure others could be helped from the...
Yeah, since I'm a case study they're keeping rather close tabs on me, and will be doing so for awhile....
I find the mind-gut connection to be rather real, LOL. I have very similar experiences....
Having UC really increased my anxiety. My doctor put me on 100mg of Wellbutrin. It's really helping with my sluggish tiredness and bouts of anxiety driven sadness. No side effects or issues with it...
While I do have UC, I did also have these symptoms, which were not related to my UC. I had many tests and scans (for STD's, endometriosis, fibroids, cysts, etc), I had a transvaginal ultrasound, the...
Sounds like IBS with a dairy trigger, honestly. I WISH a UC flare only lasted a day, LOL. It can take us weeks/months/years to get out of a true flare....
I'm honestly not feeling any symptoms whatsoever. No urgency, no cramps, no blood, stools are solid. I honestly feel like I never even had a UC flare, which is INSANE and I never thought I'd get to...
Sending good vibes his way...I couldn't imagine being in college and not having my own bathroom to run to within at least 10 feet of my bed. I couldn't imagine being in college with UC just in...
Sadly, on all of the medication I've taken it says right on the box that the transfer of the medication to any other person versus who's listed on the prescription is illegal. My doctors have given...
Depends on your diet, really. My doctor always tells me that under 12 BM's a day is a healthy goal, as awful as that really sounds. Do you have any extreme urgency? What's the texture like? Any...
Thank you so much for the breakdown of terminology there. I have a doctor's visit on the 31st to go over everything, so I'm a little nervous......
Aw. No bueno! I'll type out what the doctors gave me as the results... "Scattered mild inflammation characterized by erythema and pseudopolyps were found from sigmoid to transverse colon (Extent of...
What do you guys think about the scopes? This one is from Friday. http://i65.tinypic.com/2vcjayg.jpg This one is from December 2017. http://i63.tinypic.com/2ep509e.jpg...
Eh, my doctor took me off of my bridging medication too soon. Entyvio works slow. You need a crutch for awhile or else you'll get some symptoms back. I went onto Uceris for about two months and just...
Entyvio has worked wonders for me. It's slow acting, but it's been excellent. My only issue is that my doctor took me off of my bridging medication a little too early (oral tacrolimus) which caused...
Honestly, I prefer dulcolax....It seems to be more gentle on my guts......
I've only had it one time (and during a BAD flare) - I had a REALLY bad reaction to it. My muscles began burning, my entire skeleton hurt, I felt nauseous. It was really awful. it's what I imagine a...
I received the sedation. The anesthesiologist actually gave me some smaller doses to make me a little loopy first for a while as opposed to just 100% knocking me out, which I never had someone do...
I just had a scope on Friday. I had a lot of what my doctor (I think) called finger polyps? They're longer and weirdly formed. But she said it was due to all of the built up scar tissue I had from...
Update! Just got home from the scope. There's SO MUCH SCAR TISSUE!!! The pictures are insane... But my doctor says that despite the scar tissue that the lining looks great. She says there's mild...
My GP fiddled around so much before sending me off to a GI. By the time I went, I was being admitted into emergency care for the blood loss. Get your butt to a GI doctor as soon as you can......
Hey guys! I wanted to take a second to extend a huge thank you to this group. You've helped me through a lot and it's really nice to not feel so alone. It's great to have so many wonderful caring...
Glad to hear you're doing better - It REALLY is a terrible pain....
Patience really is key. Give yourself time to heal and take it easy. Patience is key. When I was in a *REALLY* deep flare and on Prednisone, I had all sorts of issues with my muscles and joints. I...
Check around online! That's what I did. :) Also, the extract tastes really good. It's like. Magical pancake syrup....
I've heard that due to slippery elm creating that "layer" that it could potentially prevent full absorption? I've been taking it for months, along with everything else I take, LOL. If you're...