Normally I’d say that sounds like alopecia areata, but most dermatologists can diagnose it without a biopsy, so maybe not. I would get the biopsy done....
It could also be alopecia areata, a different autoimmune condition. I’d go see a dermatologist....
Other than only going to restaurants that make a point of only serving organic or free range meat you can’t know. On a related point, and you probably know this, when starting to eat meat again after...
My sister has crohns and has had some relief by being predominantly vegan. While I don’t think food can resolve IBD I think it can help some people with symptom management and so is certainly worth...
You need to spread them out. If you were supposed to take them all at once it would say take 6 tablets (before meals, or on an empty stomach, or with food)....
My GI wants me to taper off as well. He said he sees flares in 30% of his patients when they do taper off, but he thinks it's worth trying. Also, as I have (or had before remission) right sided...
It is long, but interesting. I am fairly sure my UC is also driven by dysbiosis (messed up gut bacteria). I know there's a chicken and egg question with dysbiosis and UC, but like you, the first time...
Everyone seems to be overlooking the fact that everyone in this study was on infliximab (Remicade). The study is tiny and shows that Remicade PLUS a plant based diet worked for 13 people. Doesn't...
Placebo effects are real......
I had one bad poo a day while technically in remission (but always doubting I was). Never diagnosed with microscopic colitis, but I did start doing Specific Carbohydrate Diet, plus coconut kefir and...
I’ve been in remission for years with not great stool consistency. My GI says it is what it is and it’s common. Probiotics and a low carb diet have helped me improve on it....
Can I ask why you want to stop taking Asacol? It’s one of the UC medications with the fewest side effects if you tolerate it, and is largely topical. I’ve been in remission for years but I can’t...
I take a shot of a half tsp of turmeric mixed with a bit of olive oil, several grindings of black pepper, hot water and a few drops of wild organic oregano oil twice a day. Someone else on here...
Interesting. I banned all triclosan products from our house not long after my UC diagnosis. I figured none of us should be ingesting antibacterial compounds....
Low carb is basically the Specific Carbohydrate Diet, which works well for some people. The theory of the SCD is that it starves some of the bad bacteria that either cause or exacerbate UC....
kate22, does prednisone not work for you or are you looking to avoid it?...
Antibiotics are actually in the meat directly (not from grain). Many US meat producers use antibiotics as a growth promoter in livestock....
I've heard of clove oil as well. And saw the mouse studies, which are very interesting. I've been afraid to try it because of its liver toxicity. Thoughts on whether eating ground cloves in other...
Maybe it was the nicotine patches that worked.... Be that as it may, glad you've found something that helps, however. Many of us find medication gets us 60% of the way better (which is better than...
Very interesting. Thanks for posting. Hands up how many of us on here had mono (aka glandular fever for those in the UK) (or rather than had a severe enough case to know it was mono/glandular fever)?...
Hardkaur, who is Bob Lawrence? I assume he’s not a GI. Is that right?...
Thanks for posting that. Was both very interesting and also understandable (which isn’t always the case for science reporting). I suffer from a bad case of confirmation bias when I read articles lik...
My abdominal pain lingered for may years during which I was deemed to be in remission. I took the view that the pain was a sign of low level inflammation/problems and not something I should still be...
Kacana, ask to be referred to a rheumatologist. If it is auto-immune spondylarthropy they will be able to diagnose it and suggest options. I have it, and my rheum was of the view it is a side...
If your stress is bothering you, I'd say see someone for it whether it helps your UC or not. It's worth finding a different way to handle your responses to life's stresses regardless of any knock on...
My RA was of the view that sulfasalazine doesn't much touch spondylarthropy (spinal arthritis). He suggests Humira, which I've been quite wary of. But they all seem to have differing views on this....
Your degenerative spine issue could be auto-immune. Mine is....
My GI sent me to a rheumatologist, so now I see both a GI and a rheumatologist. The rheum I see now is the second one I consulted with, and I do get the impression you can get some fairly different...
Thanks for bringing this to my attention. I'd be very supportive....
SCD stands for the Specific Carbohydrate Diet. It's a diet that's been around for a long time and is used to manage UC (not the arthritis). It's basically a very low refined carbohydrate diet and is...
Some of us with UC also have joint pain. The jury is out on whether the pain is a separate AI illness or a result of poorly controlled IBD (I've met RAs with both points of view). For me, it seems to...
breast. as was my sister who has crohns....
Thanks. I am on Imuran as well (I know I need to create a signature) and take powdered turmeric daily (with oil and black pepper mixed together and heated). Will add ginger and cinnamon to the mix....
Canada Mark, glad I'm not the only one not to get it. And as for your preferred combo, same here. My arthritis started flaring quite badly two weeks ago (after a failed experiment in reintroducing...
OM can you explain the relationship between Nitric Oxide and INOS? It's a bit unclear to me....
Canada Mark, it seems like we have lots of similarities. Sunshine certainly helps me--I tend to feel 100% fine in July and August and when skiing in the spring. I take vit D daily but it doesn't seem...
And lo and behold, curcumin also increases Nitric Oxide in plasma (among other effects). https://www.ncbi.nlm.nih.gov/pubmed/23013352 It often feels like there are all these threads that keep leading...
Examine.com is the one I would recommend. They try to review all relevant studies on a given supplement, summarise the results and rate the value of the study, based on size, double-blindness, etc....
I think sort stools in remission is not uncommon, but it can't hurt to see your GI and ask for a fecal calprotectin test (rather than a full colonoscopy). That said, I consider overly soft stools...
Doggiedo, I have UC related arthritis. I don't have ankylosing spondylitis (thus far), but instead just have arthritis of the sacroiliac joints. I also don't have HLA-B27, but don't know if I have...
That sounds to me like the start of a flare or a low level flare, but it could be food poisoning. See your GI and ask for a test for fecal calprotectin and for any stomach bugs (campophylobacter in...
As a counterpoint to TroubledTurds, I am in your situation and I am happily staying on Balsalazide (similar to Apriso) as it's basically a topical medication and seems unlikely to me to be the cause...
Unless directed to do so by your doctor, I'd still suggest just starting with your recommended final dose (which I assume is higher than 50mgs). Take half in the morning and half at bedtime with any...
I take turmeric and find it does help. Which supplement you take probably makes a difference as it how low bioavailability. I've had acupuncture (and acupressure). The acupuncture did nothing for me....
I am not sure why you would start with a very small dose. Is that what your doctor recommended? Imuran takes a long time to work, so you'd just be delaying the effectiveness if you started with a...
I have sacroiliac joint pain and occasional finger joint pain. My rheum suggested Humira, but am really not inclined to go on a biologic when my UC is in remission. He also acknowledges it comes with...
that seems like sound advice generally, no?...
I've tried both curcumin supplements and straight tumeric. Never noticed much benefit from the supplements but tumeric spice (heated in oil with ground pepper) has been fantastic. Someone else on...
Many of us never seem to return to fully normal functioning, even though we're technically in remission. If you're concerned I'd asked my GI for a calprotectin test if you've not had one recently. I...
I've been on SCD for 2.5 years now. For me, I find it helps with symptom management, but is not a panacea. I saw immediate improvement within a week, but after that would say progress toward where I...