I empty mine sitting on the toilet, I didn’t know people kneeled to do it. Guess there’s different ways for everything!...
MRE and pill cam is what I did for my small intestine. You still have to drink stuff for an MRE but it wasn’t bad I’m pretty sure I mixed mine with sprite it just made me have a full bladder while in...
I got more joint pains after starting stelara too! And bone pain? It’s weird but it’s a deep pain in my lower arm bones and drives me nutty!...
Yep, I can barely move my hands some days the pain is terrible!...
I don’t know why I didn’t think of a peptic ulcer, I just moved 4000 miles away from home so I’ve been stressed to the max and that would make sense. I had a pill cam around January and showed crohns...
I got an ileostomy about two years ago? I think? Lol. Anyways I was pretty active back then and then stopped visiting because I felt SO much better. It turned out I actually had crohns not UC (I’m on...
Colitisresearch Yes!- by no means perfect, but compared to what I was like before I feel pretty amazing. I am lucky to have no skin issues and am able to get exactly what I like and need! Happy your...
I haven’t been on here in so long! I am glad everyone from class 2018 is doing well!🤣 I never got the reversal because they don’t really know what’s wrong with me (surprise surprise) which I am...
3 time I just turned 21, my school years with UC were horrible because I was never allowed to go to the restroom I would often cry to go home when I was little because my stomach would hurt so bad,...
I used to run track, I was fine for the most part, I did freak out but practice was at the same time everyday and I kind of watched what I ate the hours before practice making sure I ate zero trigger...
I am glad you are doing good! I also had the fear of of being young and not having a colon, I’m 20 but i definitely like my no colon life way better than my colon one! Seems like you are recovering...
my relationship was after I got the ileo and he doesn’t care and neither did anyone else I dated, I think I actually cared more than they did! And most people forget you have it and you have to...
David you take it off to change it, you can’t just leave it off, I found one that folds in half so I just fold it in Half before doing any activities like thatso it doesn’t get in the way, I even...
My colon free life has been great!! So great thag I’ve forgotten to check up on everyone on this forum!...
I’ve read that the “normal” age to be diagnosed is between teens- early and mid twenties but I was diagnosed at 7 so I really think it depends on the person and when and if there was a reason to...
David, I got surgery because I was on a large dose of IV prednisone and oral prednisone for 3 months and it was no longer working, I tried humira and it did not work, I wanted to try entyvio but they...
That’s good to hear ks, I won’t be worried about that. NSSG I will try and get the results when I go back up there for the scope, and ask for the path from the scope too (which I’m sure will be...
They took biopsies at the first surgery and were leading towards crohns bc of a blood test? But I went back yesterday and now they are leading towards UC again. I have to set up an ileoscopy to take...
Yea I was just worried about the urgency and pain, I do not want that again after 20 years lol. This year has been great without any of that and I do not want to live that again! I would have to get...
I’m glad your surgery went well, I was reading about people saying it was like having UC again so I’m happy it’s not like that for everyone!...
I haven’t been on here in a while because I have been feeling great and haven’t really needed to ask questions but, I went to the dr today and they are doing an ileoscopy to take biopsies to try and...
Wow I haven’t been on here in a hot minute, 3 time I am glad you are excited and ready for your next surgery and hope it goes well, congrats!...
I didn’t have any weight gain on humira (it also wasn’t working so that may have been it) the only issue I had with it was severe joint pain and feeling like I had the flu after each shot....
I thought I had been dealing with a blockage for the past two weeks as I was having severe abdominal pain along with back pain, I thought it was weird that my output was fine though, I decided to...
I just stopped taking it that’s what they told me to do I will continue with the diet, I didn’t know it would take long to see improvements. I’ll try the d limonene too...
My doctor wanted me to try to stop my GERD medication (dexilant) and try a diet instead (gave me a sheet on what to avoid). And also told me to try over the counter antacids instead. I have been in...
I took dexilant and bentyl together and was fine...
I have GERD and it causes my throat to have that closing up feeling...
Glad the surgery went well!! Hoping for a fast recovery!...
As of right now mines for life, I’m 20! I hope things get better for you ncot!...
I’ve Ate baked cabbage the other day, and I am 8 weeks out. I had no issue except for I found out I’m not fond of the taste haha...
I eat fruits just fine, the other day I had a bowl full of strawberries and blueberries (with a lot of sugar lol) I just cut up the strawberries small. You could also try protein balls or banana with...
When you sign the waiver it asks if you are willing to receive blood, you can check no but I think that would be a bad idea just in case something were to happen...
I would order supplies either before or during your stay in the hospital, I was sent home with supplies from the hospital but then I forgot to order things because I was in and out of sleep the week...
Thank you guys! Yea it hasn’t felt any different so I doubt I am hurting it, definitelt hope I don’t pop the bag or something though lol that would be a crappy mess 😂...
You only receive blood if you start to bleed out or something...
The more you walk and move around the faster it gets out maybe take some Tylenol too...
They won’t talk to me about another surgery because they aren’t sure if it’s crohns or UC, they also won’t do it because I’m 20 and they don’t want there to be a lot of scar tissue in my pelvic area...
I would keep calling, that’s unacceptable...
My colorectal surgeon didn’t give me a bad time, he told me it would be laparoscopic but ended up having to do an open surgery from complications that were already there. I am also a student which is...
Every morning I wake up on my stomach and I didn’t know if I was harming the stoma in any way, I try to sleep on my back and sides but I guess I roll too much in my sleep. I tried putting pillows...
Glad to hear you are doing well, hope the recovery after second surgery goes smoothly for you!...
If you bring up quality of life most surgeons are willing to do the surgery, they will probably go over all your past treatments first, usually it’s a last resort thing. My issue was also the...
The blood could be from hemorrhoids, and the loose stools could mean you have a touch of a stomach bug, there’s one that is going around, but I would contact your doctor just in case! If it is a...
I think there’s overnight bags and they’re larger than the normal ones, you could try those, I’m not sure how much bigger they are though...
I don’t know if my heart palpitations are from GERD or my PFO but I get that strange feeling like electricity also, I didn’t know what it was from, thanks for the info about the vagus nerve!...
I was tested every time I had a colonoscopy...
That happened to me every time I took prednisone, I would put bags of ice all over my lower legs but to be honest nothing ever helped, when I tapered it went away....
Mine hurt everywhere but mostly left side and lower right side...
Wow that sounds miserable! I hope you get to feeling better soon!!...