Thank you all for valuable responses. We have decided to up the orals to max before trying aza. My dr given me 6 months time to try this and still finds inflammation in next scope i will be on aza....
Hi Friends, Hope everyone are doing fine. I am posting in long time. I have had scope done yesterday and found mild to moderate inflammation only in transverse colon. Rectum, sigmoid and descending...
I was diagnosed with left sided colitis 7 years ago with moderate inflammation but my last scope a year ago showed mild inflammation in rectum till sigmoid and moderate colitis in descending colon....
Hi Ritu, I am also from India and i've the same problem with sun pharma's mesacol OD. I have also tried other brands like dr reddy's, torrent etc they are all the same. Sometimes i have the doubt...
Same with me. These stupid doctors never bothered to prescribe any rectal meds and i came to know about enemas through this forum. I had to ask my doctor for the prescription before he could...
I think suppositories don't cover whole rectum perticularly if they are of 500mg only. Have you tried enemas? Enemas can treat entire left colon and they are stronger than suppositories....
Can you call doctor's office and ask to test for stomuch bug? Do you see mucus and blood or is just diarrhea? Sudden onset of diarrhea without mucus or blood can be infection. If you have to start...
Are you on rectal meds? Please get on rectal meds if you are not already on them and it is not required to do them everyday like orals. You dont need to bother about not taking oral medication for...
Inflammation in rectum causes hard stools where as inflammation high up causes softer stools. Rectum is always where new inflammation starts and i guess thats what you are experiencing....
You can try 4gm mesalamine enema. Each country has different brands of enema and i just googled you have Salofalk and Pentasa enemas available in UK. I know pentasa is 1gm in 100ml enema and i guess...
Hi Greekguy94, You would be very lucky if you could acheive remission only with oral mesalamine and suppositories. Before i started enemas my left colon never responded to orals even on max dose. I...
Sorry for the confusion Quincy. When i say rectum is normal i just mean they didn't see any inflammation. Still it might have those hystological features but i didnt see the biopsy report properly....
I want to have a scope but i'm bit skeptical as last time i've severe pain after scope with all those random biopsies taken. My GI was mentioning about FCP as a follow up but that was 6 months ago...
Last time i was on foams & supps instead of enema and that could have been the reason that the rectum was normal. I was on 2.4 gm of oral mesalamine at that time and that didnt do anything for the...
My last scope showed inflammation from mid sigmoid to mid transverse colon and rectum was absolutely normal. So i think i should go for full length colonoscopy as sig scope might not show any...
Hi Guys Anyone has experienced ongoing inflammation with normal calprotectin? Just want to know bcz i need to decide whether i should go for a scope or not. I have my last scope done 10 months ago...
Hi Guys, My FCP Test came back normal at 42 but still i see mild discomfort and mucus occasionally. Does normal FCP means i'm in remission or still there is a possibility of mild inflammation?...
That's exactly what i'm thinking and going to order FCP test myself. It is very expensive in the hospital which i go regularly....
Hi Quincy, I'm having 3-4 semi solid stools a day. Dont have rectal pain or urgency and i dont think i've hemorrhoids. I have mild discomfort in stomach and that relieves after having bms. Today i...
Hi Quincy, I live in India and we dont have steroid enemas here. I think we don't have uceris as well, ferring is yet to release cortiment(European version) in india. I'm not sure whether i've to...
Hi Quincy, Its 4 gm mesalamine enema i'm using. Unfortunately we dont have steroid enemas and next resort is go for oral steroids if my symptoms continuous. I'm having consistent pattern of having...
Hi Guys, Hope you are doing good. My second ever flare started 1.5 yrs ago and was struggling with simmering symptoms until last 1.5 month ago i upped oral dose to max with daily enema. I was having...
Mr Goodboy874565, I am also from India and if you dont mind, I want to tell you something that dont get into hands of those charlatans who says they will cure the deseases and you will be med free....
Hi Guys, I am from India and we generally use generic lailda made by SUN Pharmaceuticals. I think it is has same coating as lailda since it wont get slippery when it is wet like you described as for...
I was on generic lialda earlier and switched to asacol but neither of them treating left colon on 2.4 gm. I have already asked my doctor whether i should switch to pentasa but he said if delayed...
Yes Quincy i was biopsied and they didn't find anything abnormal. I was having symptoms like bleeding and diarrhea when i was scoped 5 months ago. Then doc switched me to pentasa enema and it kicked...
Hi Quincy, I am using 1gm pentasa. Last scope showed inflammation in desending colon despite being on enema for 4 months. I assume high volume and low concentration of pentasa makes it distribute...
Hi Folks, Hope you guys are doing well. Just want to know has anybody ever got the crazy idea of diluting enema with water. I was on 60ml enema earlier which is a generic version of rowasa which...
My personal experience, i didn't get any benefit from doubling 4gm enema. Most of the enema will be unabsorbed and will come out next day. Sometimes less enema with high quantity spreads better than...
Thanks ipoop, thanks quincy. Right now my inflammation is above mid sigmoid upto beginning of transverse colon. I'll switch to 1gm suppository instead of 2 500mg suppository hope that takes care of...
Hi folks Its been a while since my last post hope you guys are doing well. Want to know your experience with Asacol as i'm switching to it from generic lialda. I know that lialda is extended release...
Hi All, It has been one month on enema now after the scope and still i see some bleeding. So, it is time to see doctor again,as he told me to come back in a month's time if the bleeding is not...
Thanks for detailed explanation about different delivery systems ipoop. I always have doubt that these generic lailda is not same as lailda and unfortuantely we dont have lailda in our country to...
Generally i take my pills 30 mins after having food. Currently i'm using generic lailda 1.2 gm two times a day which i'm trying to increase it to 3 times a day. We have different brands of generic...
Hi Quincy, My GI did not advice to increase oral meds but i myslef increased to 3.6 gm. I see the tablet is coming out as whole atleast once a day since then. So, i'm reconsidering my GI's advice. I...
I Finally had discussion with my GI yesterday. He did say it is pancolitis but right side not worrisome, Only left side is the main problem. He thinks my desending colon not healed yet bcz i switched...
Hi Quincy, Yes pathology is consistent with moderate UC. I guess they are taking the biopsy from the area wherever the inflamation is as it is not a screening colonoscopy which they normally do after...
Hi Quincy, Biopsies include rectum & Sigmoid as well but they have kept all samples from left side in one container....
Thanks for your reply Ipoop. That is not a good news that I've pancolitis. They have not seen any visible ulcerations or edema on scope but these changes appear on pathology report. So we can...
Hi Folks, I just got my biopsy results. Can anyone tell me if i've pancolitis by looking at the result below. Mine is always left sided colitis and this is the first time they have ever taken biopsy...
I have another question. My GI told inflamation is in mid sigmoid & above and he did not see any inflamation in rectum and lower sigmoid. But I'm still bleeding with mucus and blood. Is it normal to...
Hi Quincy, My biopsy results will be coming in a weeks time. My doctor is confident that he did not see any abnormal tissue but he is suspecting of infectious causes. He ordered CMV test along with...
Hi All, Here is an update on my progress. I have finally had my scope done today after one year of agony with unresolved symptoms. They found some extension of the desease to transverse colon which i...
I think we need proper technique while squeezing the liquid out of the bottle to cover very end of rectum. I am from India and the foam is made by the company called Cipla. Yes it is 1gm mesalamine...
My doctor thinks that the enemas are bypassing the rectum as the liquid drip down the colon quicky where as foam will not drip down quickly and it will stick to mucosa very well and that could be...
Hi folks, Here is an update on my progress. I've added mesalamine foam to my regimen recently and i've seen great improvement. Now i've completely replaced the enema with foam and i'm seeing great...
Yes Quincy. It is 4gm enema i'm using. Probiotic which i'm using says on the pack that it has 2 billion stains of bacteria. Does it make any difference if i take probiotic which has more stains? My...
Hi Quincy, I'm currently on 3.6 gms of oral mesalamine and enema every night and 1 gm suppositories in morning. Still i see some mucus and blood occasionally. I'm on this regimen since last 4 months...
Hi Quincy. I have formed stools going around 2-3 times a day but still see occasional bleeding but not much. I see some tiny amount of blood and mucus once in 3-4 days. I see there was no blood at...
Hi All I have been flaring since last 6 months. Despite being on nightly enemas i'm seeing on and off bleeding. Recently I've added hydrocortisone foam to my regimen but that didn't help and infact...