Hi- I just finished a budesonide taper and am on 150mg if imuran and 4.8 mg of mezavant. My disease seems to be steroid dependent so this will be my third time tapering.. third times the charm :)...
I’m currently on imuran, budesonide and mezavant and still seeking that elusive remission. I recently changed gastros because I was not happy with the one I was seeing (long story, is probably...
Are you on any kind of iron tablets/supplements? Those turn my stools very dark (black-looking) and I understand it’s a common side effect. Regardless, you should see a doctor....
No advice, just here to say I understand. I’ve been flaring since 2016 (only diagnosed in May 2018 though)and the only relief from UC symptoms came with a moderate dose of pred (35mg). Unfortunately...
Sort of. I don’t dislike my gastro but a couple of things frustrate me about her and I don’t have a lot of confidence in her. I asked my GP for another referral and I’ll be seeing the other gastro at...
Hi— as the title suggests I have been on imuran (plus 4.8 mg mezavant, along with vit d and iron supplements) for just over a week. I did the first set of blood work and am looking at the results....
I swear by immodium. I’m flaring pretty badly right now and find myself taking it almost every day or two because I can’t just put my life on hold right now. Weekends are a different story but I...
Hi all, I’ve been off budesonide for about 5-6 weeks so I was going to do some bloodwork ordered months ago in response to complaints about exhaustion. Basically GP said being on steroids would make...
Thanks all. Starting at 50 mg for the next month. I have four bloodwork requisitions (one per week) for my wbc, and a follow up appointment with my doctor at the end of September. I didn’t realize it...
Thanks all. I’m glad that we can count on such helpful and experienced people to answer our dumb questions. A+ joke iPoop. I am on no rectal meds at this time. I am just starting azathioprine, with...
Thanks for the advice everyone. I’ve decided to try azathioprine, starting it today actually. I seem to be pretty sensitive to medication side effects so I decided to wait until the weekend to start...
Self-explanatory and totally rookie question, but since that is something my gastro asks every time I see her (and she gave me no guidance) I wanted to get an idea from others. Up until now I’ve been...
The first time I noticed the purple I was totally freaked out! At least when I see blood, I know what it is and where it is coming from lol. It wasn’t until I read another thread on here that I...
Are you anemic? My hair is thinning (massive clumps come out every time I wash my hair) and my GP referred me to a dermatologist. The derm told me that the anemia is what is likely causing th hair...
I know it’s ultimately my decision but I’m just looking for a soundingboard. I had an appointment with my gastro today and she has presented me with two options- azathioprine and remicade. In my...
Seconding both of the above. My hair has been thinning for years (I was very delayed in going to the doctor or getting a diagnosis) and have only just gone to see a derm about it. In my case it’s...
Whether it’s UC or not, make your GP take you seriously. If this one brushes you off, find another and Lee going until someone will listen to and address your concerns. I was told three times that my...
I am totally envious! I currently live in a one bedroom condo with my partner and it’s definitely a source of anxiety for me. There’s been a couple times I’ve had to knock on the door when it’s...
I had a similar experience with my CRP as you. Back in November (pre diagnosis) my CRP was 15 and the report indicates the reference range is <6. Since then I’ve been on a course of prednisone, am...
^ive been diagnosed with ulcerative colitis but have no more specific diagnosis. When I went for a colonoscopy the inflammation was so bad that they couldn’t go much further than a certain distance....
Can’t ask my gastro right now (and I’m currently shopping around for a new one). I actually tried to talk to her about this but she totally blew me off. The only thing that is currently making the...
Lol! I’m actually pretty close to doing just that. Supposed to be having a flex sig in July and depending on how that goes and her best advice on a best course of action, I might actually go back to...
^relieved to hear the opinion of another doctor. I use Imodium when I am truly desperate (eg traveling and unsure what the bathroom access will be) and when I mentioned using Imodium on an upcoming...
Another whiny post from me. I’ve always had some issues with my body and low self esteem, but unfortunately I’m now at an all time low. It’s probably the steroids(currently budesonide) and constant...
I’m pretty envious of those who can drink without it affecting their symptoms! Everything I like to drink (gin, whiskey, wine or the occasional champagne) guarantees I’ll have a bad time. There have...
I’ve only had my UC diagnosis since March of this year but have been dealing with symptoms since 2016. Purely fear and negligence on my part. I will admit that I haven’t done a good job of standing...
About a month ago I made the switch from pred to uceris/budesonide because I was having a really hard time with the pred side effects, especially the mood related ones. My face is still chubby, I...
I'm trying to be proactive for my next appointment with my GI on May 29. Current meds are not working. Everything was fine until my course of cortifoam finished earlier this week and now the bleeding...
For mine I was instructed to drink peg-lyte (sorry, no idea if that's different from Miralax) and take four dulcolax, and it started to "kick in" within 45 min- 1 hour. That said, I also had a couple...
^ ive been prescribed the same thing (no taper like I had with pred).. I don’t know if that’s normal or not though....
I have other related questions but don’t want to spam the board. UC was confirmed through biopsy, but the dr was only able to examine about 45 cm of my colon because the inflammation was so severe...
^ i forgot to mention the salofalk was suppository(idk if it’s available in other formats eg pills) so my dr told me to stop that while I use the cortifoam for a week and told me to then go back to...
Thanks everyone for all of the responses! Symptoms started to come back at 15 mg and got progressively worse as I tapered down to 5mg. I think I may have posted something to that effect seeking...
Long story short, when I got down to 5 mg prednisone, everything went to shit (pun intended). Urgency, pain, blood, and multiple BMs per day. It was actually worse than before I started treatment....
Thanks so much for your answer and your suggestions for how to deal with the anxiety part. The struggle is real. Although generally unrelated, your response has really helped me today. I often feel...
Has anyone struggled with any kind of psychological element to their urgency? Vague question but let me explain. Some times when I am walking home I’ll be feeling totally fine and have no indication...
I don’t know. My only previous experience with noticeable amounts of mucus also involved a lot of blood and would make all the toilet water red/pink. I was never able to really identify mucus alone....
Hi, yes, but the prednisone dosage has gone down. I’ve tapered down to 10mg. Thanks so much for weighing in. This is all new to me and my doctor gave me almost no guidance— basically just wrote a...
I’ve been noticing lately that after a morning BM that there are floating fatty deposits in the toilet. Obviously I am not a doctor and not entirely sure what it is, but it literally looks like those...
Thanks to everyone for the replies! Are GIs pretty receptive to these kinds of questions or feedback? I don’t have a real relationship with this doctor. I had one consult with her before the...
Hi all... al little backstory to my question. About two weeks ago I finally had a colonoscopy to check out some symptoms I’d been dealing with for about two years. BM urgency every time, occasional...