Hi He wants me to reduce the oral mesalmine to 3.6 grams and go away with the rectal meds 🙈. Also is faecal calprctein of 57 a cause for worry Thanks...
Post script ..... Also use the 4 gram messlmine Enema every time , along with the 4.8 gm orally , there’s not much else I can do . My doc wants me to taper my meds but am scared too...
Hi , Thanks for the reply , am ok at the moment , going 3-4 times a day , sometimes less which is my norm with firm stool and my blood work done a month back showed everything in place with Crp...
Hi , Thanks for all the replies . I live in India so there is mesalmine is 1.2 gm available here under two brand names . I have been using one of them for the past so many years and this problem is...
Hi all , I have left sided colitis and take generic Lialda 4.8 gm . Why is it that of the 4 pills I have two dissolve and two come out partially dissolved . If the ph level was wrong how come two are...
The time can be two in the space of an hour or one in the morn , one at noon and one at night or both in the morn all before noon , it’s a mixed bag . Keeps life interesting...
Hi Quincy Sorry I do take both pre and probiotics , today was interesting . Just had two bowel movements , lol so like I said they vary from day to day averaging between 2 -4 Why is fish oil not good...
Hi Quincy I am on 4.8 gm of generic lialda and generic rowasa Enema every night . My doc wants me to taper both but am terrified so I just continue on this med schedule . Apart from This I take...
Hi , this is such an amazing community , it feels so reassuring that people I have never met , chip in with their advise minutes within posting here , a big thank you for that . My norm even before I...
Hoping for a reassuring reply , I dread the day this happens Coz I just fret it’s a flare or something...
Hi , it’s been a long time since I posted . Hope you all are doing well :turn: just have a quick question, is it normal to poop sometimes 2 , sometimes 3 and sometimes 4 times in remission (I added a...
Will be on the flagyl for 10 days but thinking if I should be on a longer course . What is the general time period one is prescribed flagyl for in your part of the world . Yes I think I should think...
On day 3 of flagyl...
Have a copy of the results , it basically says its active ulcerative colitis only in mid sigmoid colon . That's the only place that was biopsied which I know is a bummer . The doc who does the fecal...
Am on vsl 3...
Hi Quincy Good to hear from you Yes it was biopsied in Sep scope and said consistent with active ulcerative colitis and the usual jargon of crypt and neutrophils etc etc , no dysplasia Sometimes I...
Hi An update to my last post . So it's been nearly 3 and a half months and the blood just won't go . I have tried the steroid foam in the morning and mesalmine generic enemas at night but the only...
Quincy the steroid foam reaches 35 CMs up which is where the patch is ?...
He did a very thorough scoping , I thought it would never end , I was without any sedation and saw the full show , he is adamant the bleeding is not colitis related but a cut or something of that sort...
Hi I poop normally three to four times a day , sometimes the blood is there sometimes not . He did say I had a small hemmi so maybe that's getting irritated with the tip or something . Will start the...
Should I start the steroid foam which is known as colifoam there . Doc said its not required...
Hi Quincy Was waiting to hear from you 😊 Biopsy was taken when colonoscopy was done in July . Report said quiescent ulcerative colitis with mild activity . But both times there was no fri ability...
Hi Since my last colonoscopy about a month and a half back which showed everything healed except mild erythemea in mid sigmoid colon have been having blood streaked stools on and off inspite of doing...
Ps ..... No other symptoms like diarrhoea or urgency or mucus are present , even the no of poops is the same as earlier which was 3-4 times a day . It's just minuscule streak of blood which is also...
Hi So the update is that the rectal bleeding though decreasing and being very minuscule , is still there inspite of upping my mesalmine to 4.8 gm orally and two enemas daily . Since the colonoscopy...
No biopsies of anyplace were taken except the mid sigmoid where He saw some mild inflammation , that's another bummer that he chose not to take biopsies of any other place considering he was in there...
The enemas reach the sigmoid colon , right ? Should I up my oral to 4.8 gm for some time to also reap additional benefits or stick at 3.6 gm . The doc doesn't give any solutions , he doesn't even...
Rectum is completely normal except for mild linear scarring in distal rectum which he thinks is healed ulcers . I do need to find a new gi , they never bothered to even call me that the biopsy report...
Hi So the biopsy report came , mid sigmoid colon mild activity of ulcerative colitis , no dysplasia or malignancy , quiescent ulcerative colitis. Doc told me to watch out for any symptoms and see him...
Hi Thanks for the prompt responses . The blood was like a streak along the stool . Am gonna continue with my enemas and hope it is nothing . Bit anxious about my biopsy reports , fingers crossed . I...
Quincy your inputs would be highly appreciated 😊...
Hi Since my last post in May about occasional poops when the doc did a look see with a sigmodoscope and found all well . Post that was doing well but noticed a streak of blood and went to my gi ....
Hi Quincy Sorry about the late response . I missed your post somehow . I asked my doc about the rectum and he said the spots were of no significance so I am guessing things are ok till the sigmoid...
Hi Quincy Thanks again for your prompt responses , yes I do have my mom and dad and I could consider asking them to go through the battery of tests required to see if they are suitable donors ....
Hi Quincy Yes I could see the monitor , everything looked normal except a couple of red spots which the report said were few hyperaemic spots seen on distal rectum . He said they were of no...
Quick update - so today I went 4 times , all formed , not loose at all but the number went up from the normal 2-3 . this is after getting the clear of the doc from the rectoscope which I posted above...
Hi , I will definitely try and see if I can reduce gluten from my diet . There are some gluten free flours available so maybe I can experiment with flat breads from those . Psyllium seed powder is...
Sorry Quincy , just read your post , yes it's a generic form of mesalmine suspension available in India. I get what you mean , the second stool is as soon as I have my breakfast , it's mushy and...
So had a word with my gi , he said he didn't like to scope me if I was having loose stools , he feels it's probably something I ate and wants me to just ride it out following the same protocol . So...
Hi Quincy , the dosage of the enema is 4 grams in a 60 ml suspension . It's not called rowasa here , I just use the term coz I read that's what it is called in your part of the world . Here it's...
Hi Quincy Was waiting to hear from you . Truly value your advise . So I am still on rowasa nightly for the past one year and my new gi wants me to continue . Sometimes after the diarrhoea episodes I...
Hi , I have eliminated all spice from my diet , being an Indian it really hurts .😰. So much so that I don't remember the last time I had a spicy curry . Well such is life I guess 🤔 Best Ritu...
Hi , I am an Indian , we live on flat breads , imagine trying to eliminate gluten ( wheat ) from my diet. I just question if it's the breakfast coz it doesn't happen always . Days go by on the same...
A quick question - should I have psyllium with my noon meal as well , would that help...
Hi , Thanks for All the prompt responses . I am very anxious by nature and also take some antidepressants trying to deal with this awful disease . My breakfast is always an egg and a piece of toast ....
Done for the day is what I meant...
Hi , So in my last post in Jan I had seen some blood and done a week of rowasa enemas twice a day and managed to nip that in the bud . However do any of you all get the problem where the morn bm is...
Hi Even I have the same problem. I have never been officially diagnosed with ibs , just ulcerative colitis . However when I poop in the morning I have perfectly formed stool . However immediately...
To bloom 93 Hi and thanks for all your suggestions and good wishes . The gi in India is based in Delhi however the fmt is on a trial basis from the government so he is allowed to enroll only patients...
Hi Quincy , thanks again for the advise . My last colonoscopy in Feb 2014 said the inflammation was in the rectum and the distal descending colon . the transverse colon and above were normal and the...