I have proctitis as well. I had the exact same symptoms as you. My thoughts and support are with you; I remember how isolated I felt; none of my family or friends really understood what I was going...
Wow, FlowersGal, that's so wonderful to hear that you are in remission on Entyvio! Your story sounds just like mine, so thanks for sharing. I see in your bio that you had to get a partial colectomy...
Has anyone experienced hair loss as a result of UC? I've been thinning a lot since I was diagnosed over a year ago, and I wondered if there is a known connection....
Currently flaring. Just had my levels tested, and they are at 350 (which is 1,000 better than last year's test, when I was first diagnosed, but nowhere near the "50" goal). Blood and mucus a few...
Does anyone know if there is any research out there that supports stress causing UC flares?...
Hello again, I just haven't had more than a few weeks of total remission since February. My GI has put me back on CANASA 1x/night in addition to my Apriso 4x/morning. The CANASA helps a lot, but I...
Hi Tomorrow, I have had to use formula with her from day one; breastfeeding on such strong medications is not an option, as they can be passed on through the milk. She has responded very well to...
Such helpful information I am collecting on this site, thank you. Question: When I was in remission for 8 months, I drank no more than three alcoholic drinks on most weekends (total), and two cups of...
Thank you so much, everyone! I am new to all of this, and it's very stressful. I appreciate this forum so much!...
Do UC sufferers believe that alcohol and/or caffeine trigger flare-ups?...
Do those of you who medicate for UC or Proctitis use stronger meds during flare-ups only, or while in remission, too? As in, do you increase what you take to resolve the flare and then go back to...
Hi Quincy & iPoop, Thanks for responding to my forum questions so fast. You both have lots of knowledge to share, and it really makes me feel better knowing there are others out there dealing with...
Thank you so much for your response; very informative and helpful as I approach the next doc visit. If I don’t heal I’ll ask for the stronger suppository. One thing I did want to clarify—this flare...
Hi Quincy, Thank you for the response! To answer your questions: After giving birth to my second daughter in April, I had non-stop diarrhea (8x or more per day) with blood and mucous for two months...
Since my recent proctitis flare, my GI doctor brought up maybe switching me from my current Rx of Apriso and Canasa, which I tolerate well with little side effects, to Humira. What I've read about...
Hi Everyone, I am new to the forum, as I need to reach out to a group who can relate to what I am going through. I was diagnosed with proctitis and diverticulitis in May 2017 and was put on Apriso...