Avoid NSAIDS (e.g. Ibuprofen) if you have a j-pouch. There are safer options for treating headaches, e.g. Paracetamol....
Forums like this one has in general fallen out of fashion the last few years, and has been overtaken by a plethora of other social platforms. Sites like Reddit have overtaken traditional forums in a...
Can you explain why one would stick with a permanent ileo over the j-pouch? I'm not too familiar[/quote] I think choosing whether to go with a permanent ileo or a j-pouch is a very personal...
My diagnosis was also a bit unclear (the doctors thought it was UC, but there was a small possibility of Crohns), which is one of the reasons I had a 3 step surgery. After the first surgery they can...
I think recovery after the last surgery is very different for everybody, but I would definitely not want to do anything important like exams just 5 days afterwards. You might not even be out of the...
In my experience lomotil and immodium doesn't do much with regards to making stools more formed, it just seems like it prolongs the transit time. Bulking foods are my friend, especially psyllium...
How many times per day are you going? Yes, the beginning can be a bit rough, but if after 6 weeks you are still experiencing major diarrhea there might be an underlying cause. Do you have any other...
I had surgery due to dysplasia findings. Surgery is scary, but it's definitely not the end of the world. I had 3 step surgery to get a j-pouch, and I would advise anyone who does it to do it in 3...
When I had an ileostomy I used the same type of bag as you do. I took baths in a bathtub almost daily, and also swam in a pool from time to time. Never had any problems. I changed bag about every 2-3...
The only thing I actively avoid eating is really spicy food. I love it, but it can hurt like hell coming out. Oh, and nuts as well. It gives me awful gas for some reason. Otherwise I eat mostly...
I had my takedown about 5 months ago. I'm taking immodium with breakfast and dinner. It's not that I absolutely have to, but I like when my output is on the firmer side, and it has kind of become a...
I was not sedated. Didn't even know it was a possibility until now. It went super smooth for me, no discomfort at all. I barely felt anything....
I'm sorry to hear that you are struggling so much. I have only had my j-pouch since March of this year so it's pretty new, but I can't say that I relate to any of the issues you are describing. Have...
I'm sorry, but if your story is accurate it seems like literally nothing has been done to actually treat his UC. He needs to be on meds, no diet modifications or pot smoking will treat this if he...
Been having both good and not so good days. At times it almost feels like having UC again, the sensations of having to go to the bathroom seem almost identical. I'm wondering how it feels for you...
It's totally normal to have discharge from your bottom after the j-pouch creation. I believe it's mucus produced by the small intestine. I had it more or less everyday. I never took any pills when I...
When I had my end ileostomy, many times my output was quite thick, like porridge (much thicker than anything I ever had when I was flaring with UC). It made sense to me that after a while, the...
How long did it take for you guys to have more formed BMs? The first few times in the hospital i was passing small lumps/pellets, but I attribute that to my bowels taking time to wake up, as well as...
On Thursday I had my j-pouch reversal surgery. Got back home yesterday, on Sunday. I had a 3.5 hour drive to get back home, and I only had to stop once to use the bathroom. I still have quite a bit...
I had step 2 a few months ago and will have my takedown next week as well. Personally, step 2 was harder for me physically. I had some issues at the hospital with pain (1st step was laparoscopic but...
Really sorry to hear that you're having issues. Did the obstructions start after your reversal, or did you get them with your ileo as well?...
In the case of 3 step surgery, #1 is end ileostomy and #2 loop ileostomy...
So I am finally scheduled for j-pouch takedown in a month from now. I'm a 3 stepper, so I have experienced both the end and loop ileos. The loop has been so much more work than the end was, which I...
Never had any issues with my ileostomy when flying. I've been on several 10+ hour flights. One of these trips was to Southeast Asia, where it was very warm and humid. Didn't have any problems with...
I don't understand this. Was your GI saying that because you had an inflamed colon you were not a good candidate for a j-pouch? Or was he or she referring specifically to your rectum? Either way, it...
The first surgery was so uneventful so there isn't much to say to be honest. For preparation I had to drink some laxative the night before. After the surgery I woke up with a morphine pump. I think...
Step 1 was by far easier than step 2 in my experience. Step 1 was done laparoscopically, while my 2nd step was open surgery, so I guess that had a lot to do with it. For the first step I was in...
Is nausea and throwing up one of the symptoms of pouchitis? I thought it was just going more with urgency....
I'm so sorry to hear that you're in the hospital. I hope it's not pouch related and that you recover quickly....
I recently came down with a cold with the usual symptoms; soar throat, nose dripping, just feeling generally sick. I've noticed that I have much higher and more liquid output. I'm eating less solid...
It's always weird to me when I read online and people are talking about using the same bag for like a week in a row. Is this an American thing? Here they recommend you to change every 2 days or so,...
Surgery is a big step. Some people love their stoma, some people hate it, and then there are all kinds of opinions in between. One thing is for sure though, it is impossible to know how a person will...
In a 3 step procedure, the first step is an end (i.e. permanent) ileostomy. When you do 3 steps, I think they always leave the rectum after the first surgery (at least they did with me), so even if...
Glad to hear everything went well! I'm waiting for takedown and I also get some (very minor) pain in my pelvic area sometimes when I'm peeing. I'm male though. I just assumed it was part of the...
Hoping everything goes well! I'm really curious how post surgery will be, please keep us updated when you're ready :)...
Does he have a colostomy or ileostomy? I can only speak for the latter, but my bag often fills up with a lot of gas over night. I think it's completely normal. It also depends on what you eat. Some...
If it's just one or two times then I wouldn't be too worried. If it starts happen regularly maybe you should ask your doctor. Just curious, how often have you been passing mucus? I'm also waiting for...
You will naturally have lower output if you're not eating as much as you usually are. Of course that doesn't explain the nausea. Hopefully it's nothing serious! Please keep us updated....
Dizziness could be dehydration. You have a loop ileostomy right? Do you have high output?...
Hi everyone, I had step 2 j-pouch surgery (creation of j-pouch and loop ileostomy) 12 days ago. After having a very good end ileostomy for over a year, I'm a bit concerned about the noise my new...
Thank you for the replies. I had the surgery about a week and a half ago, and was discharged from the hospital a few days ago. I'm doing kind of OK, but it has definitely been harder on me than the...
Hi, I will have the second step of j-pouch surgery (creation of j-pouch) in a few weeks. I have had my end ileo for more than a year now, and am pretty much used to it. I haven't really had any...
A few months ago I had my colon removed due to dysplasia findings. I didn't have major UC symptoms, but I had been flaring uncontrollably for 2 or 3 years, and just like in your case my colon looked...
I am in the same boat as you, although slightly ahead. I had surgery to create an end ileostomy earlier this summer. I am currently debating whether or not I should go through with two more surgeries...
I had surgery to create an end ileostomy in the beginning of June. The first 2 or 3 weeks were pretty hard mentally, since everything is new and you're trying to find equipment (pouch, wafer, etc)...
I had surgery to create an ileostomy about 6 weeks ago, and for some time now I have had a small hard lump (pea size or smaller) right by one of the laparoscopic incisions. It's tender when I touch...
I think it happens most of the time when I eat, but it might be only when I am eating too much in one sitting. I'm not really sure. And as I said, it's more of a dull ache so it's not like I'm...
It's been about three weeks since I had my surgery, which I know isn't much time, but I'm still wondering if this is something anyone else has experienced. Whenever I am eating I am getting this dull...
I have been living with an ileostomy for about 10 days now, and have noticed that a lot of the times when I am emptying the bag in the toilet, the output is kind of floating on the water's surface....
For me the difference was night and day. I had to empty my bag constantly. (Like every hour). With my j pouch, it's usually around 4x a day. That of course is after my recovery period when it all...