Hi guys! Checking in after a good long holiday. My flare is out! I ended up tapering off the oral cortiment and enemas and am on suppositories every other day. Also on max dose oral mezavant. Feeling...
Still travelling well. Tapering my oral cortiment this week and have been using the salofalk mesalazine enemas every other night with suppositories bi-nightly successfully. Also tapered the morning...
Thanks guys! Yes, true, I am like an investigator after every bm! May take a little bit less serious approach and ride this out. Am tapering the oral! Rectal after that. All things crossed! Xx...
Has been a smooth run without blood (am scared to look every day as I am waiting for the slap of seeing it again) but have a bit of mucus still. Bad sign? đ...
Been feeling good. Havenât seen blood in over a week but that has been happening on and off for a few months now! Week to week improvements so am hopeful! I have no pain or urgency and 2 bms a day on...
Thanks John! I assume thatâs why my GI didnât mention a taper schedule. Will go with extra cautious but thatâs just because I can! Cheers :)...
I am meant to stop the cortiment in a week or so. Just trying to work out if I need to taper but was only meant to be 10-12 weeks. So steroid is done shortly! Then just the mezavant and the rectals...
I am on my third box (30 x 9mg tablets) of cortiment and GI said if I am reasonably well to stop them next week. No mention of a taper. My pharmacist wasnât 100% sure but gave me study info about not...
I am 100% sure it was bloody mucus before... but these past few mornings I noticed this coating- just small bits (looks like bubble gum and then realised what it was!) Hoping I donât have to see the...
Yes! And wondering if some may have been that mixed with mucus. Ta!...
Hi Maureen, Make a new topic as iPoop said and am sure you will find a lot of support and advice. I am sorry you are struggling. It can be so frustrating and challenging to deal with this disease....
I noticed this morning some pinky red coating from my mezavant in my stool. A few bits but not the actual tablets or anything. Does anyone experience this? Is it a bad thing? Thanks!...
Donât I have a signature? Do you mean add other info to it? X...
Under 8 cm...they didnât measure though. I just wrote down <8 cm on the sheet two years ago so must have been told that! My first flare was steroid foam then mesalazine enemas then mesalazine supps....
My original scope showed mild inflammation limited to rectum and diagnosed as proctitis of the ulcerative kind. Distal colitis. The findings were inflammatory changes in the lower rectum. Rest of the...
Hey Quincy! Do you mean that I may not have inflammation causing The bleeding? I am going to London Ontario (my whole family lives there now!) with my Aussie hubby and two kids. So excited for family...
Went another 7 days with perfect poops two times a day. Saw a speck (TINY!) of blood (mucus looking) on tp last night when wiped and am fine again this morning. Still booked for mid November. My GI...
Thanks guys, no blood so far today. Will be watching my symptoms closely this week or two and if they continue to show blood and tummy aches will be ringing GI and getting in as an emergency! đ...
I do have another question! Seeing as I am taking a combo of 5ASA and steroid rectals and have been for 12 weeks without blood ceasing plus the oral steroid and oral 5ASA (all of the above at maximum...
Hi lovely people! My GP rang for me yesterday and asked and they have popped me on waitlist. He didnât seem to think it was urgent. She also sent a letter outlining my concerns with adding another...
I have been having average two bms a day, morning and night. Been on the budenoside orally since mid August. It was added along with the mezavant. I had been on salofalk granules as my oral...
Got to work this morning with a pretty uncomfortable tummy, it passed after a few hours of pressure in my lower tummy...Went to the toilet this afternoon with proper mucus and blood and more bloody...
We had no way to get cortifoam so was put on the budenoside. I will see if they can change it to another steroid option. Thanks x...
One normal poop this morning and then two little pea sized mucus balls tonight before bed (no blood in them) which is what I had at the start of both of my flares. Enema again tonight! I am going to...
May mix it up and do supps then enemas alternate nights for a bit! Good idea on the proof, I have a FCP test form and sample tub I never did from the start of this flare. May be worth doing and also...
I have been flaring for 13 weeks now. I went to my GI yesterday who told me to switch from nightly enemas to suppositories as sometimes they keep the treatment right at the rectum. Keeping the rest...
Ps. Yes, was taking the 4g nightly and now every other night and supps alternative nights. Not going to taper enemas at night any further. I trust them to help now....
I asked but He didnât look but said he is sure it is confined to last few cms at this point. Originally was 10-12 cm (this sound right for mild/limited proctitis?) He doesnât want me to taper the...
He mentioned Imuran today as a next step if inflammation continues or worsens by the next visit in mid November- I am currently at 3.5 months flaring so that would bring me to nearly 6. I truly think...
From current mezavant and budenoside (which mneeds to be tapered soon) to I donât know what if I still am seeing blood. I donât think my case warrants heavier/next tier drugs but I am no expert!...
Hi Q am on mezavant and budenoside it was defo mucus though :( I suppose I am quite nervous that my GI want be okay with my progress and will up the meds. I feel so healthy except for these random...
Another few weeks of healing and then last night and tonight a tiny (but there) ball of red tinged mucus again. So bloody frustrating! Still daily foam in morning and liquid 4g every night havenât...
The probiotics are a powder. Okay, will definitely push for him to check whatâs going on. Xx...
I started some last weekend and do think they are helping also. Really good medical grade 100 billion. I will push for a check inside. Maybe a silly question but if they know itâs proctitis what...
Thanks guys. He said to taper enemas to every other night then the same with foam then drop foam but keep every two days on enemas eventually using suppositories. Nowhere near any of this! Quincy, I...
Edit... I spoke too soon and was greeted before bed with a ball of blood tinged mucus! Ainât no tapering in my near future! Oh well... back to the start we go!...
Hey Quincy, Doc said start the taper two weeks after the bleeding stops...is that what you mean? I am on nightly mesalazine enemas and budenofalk every morning. X...
Have been into a definite better phase of this flare. Bleeding seems to have stopped, no tummy discomfort or bloating at all (thatâs pretty much a norm for me flare or not) and formed stools. The...
Oh yes, that was worded funny! I meant of acceptance, keeping positive and not getting hung up on a single bowel movement. Your advice on here has been a lifeline! Itâs not something that you share...
So I had a great weekend with a lot less blood. None on toilet paper and just a speck on the end of one movement. Then today I wipe and itâs there. Roller coaster loop de loop. It still seems...
Thanks Quincy. Yes I suppose early but just so much quicker my first flare. I need to stop comparing! iPoop, great advice. Thank you friend....
The enemas? I am just finishing my 7th box so 7 weeks of enemas....
Hi ipoop, I am still using the steroids. Not sure about the oral (think it was for three months) and the rectal I am at 6 weeks but about to refill the script for another box of 2 x 14. He wanted me...
I sometimes have snaky poop too but not too mushy and I canât see blood in it. Average 2 times a day total output (BMs including the morning one) ...gosh itâs funny typing these things! I just donât...
At night it is little balls coated in a little red blood. Morning first I have a bit of the enema and pinky when I wipe ( a few times drip blood). Then a big soft but formed poo. It seems to be the...
Hi Maggie! Did your bleeding subside? Wondering how it went after husband post! I am having the same and not responding to meds well. Nearly two months and still bleeding but thatâs really my only...
Since yesterday my tummy is making VERY loud noises! Rumbles and growling like a jungle. Still blood and mucus but feel completely normal. Obviously still flaring but is rumble and growls a bad sign?...
Hey Quincy, neither atm. Have looked at some probiotics but no clue what to pick and when to take!...
Hahahaha! I love you humour John! I do think I am âhealingâ but my butt is not in a hurry this time to jump to symptom free. I am starting to feel like the never ending story may be my movie analogy!...
Thanks folks. Defo sewing improvement but also still have some pink when I wipe so nowehere bear 100%. Been a week on budenoside and the mezavant for 7 days. Have to check in with my doctor in one...