Pain pills like ibuprofen, Advil, Motrin. They will cause stomach bleeds in people who have a history with ulcers. One every once in a while wouldn't hurt, but anything more than that and you're...
It was weird, had 4 scopes and biopsies done prior to them finding out it was crohns. They didn't know why they couldn't have seen it before. But it was really obvious to them during the last scope...
Some doctors will classify it as crohns on paper to make it easier to get their patients on biologics, but that still doesn't make it crohns. That can only be done via biopsies....
I never kept track, would have lost interest in it lol...
Pouchitis is not like crohns of the pouch. Crohns is crohns. Pouchitis is non specific inflammation. It's something all jpouchers will get at least once in their lives, some get it chronically. I...
Yeah, it happens to me, but it's gone in less than a day so I just put up with it. My GI knows. He says as long as it's not longer than a day, I should be okay....
I was on remicade two years a go for about 6 months and then had surgery and resumed it earlier this year. It's possible to go in remicade again and be successful with it. Depends on the...
Sounds like a hernia to me, not uncommon for those of us who had surgery....
I would say about 80% of the time I have flat stools. But I also have a jpouch. I think that's common for jpouchers. But don't think it's common for colon people's....
Never been in remission. Was d/x with UC in 2011. Had first of two jpouch surgeries in 2016 and then in early 2017. And spring of 2018 was d/x with crohns....
If that's the case, interstitial cystitis is more likely. It's painful as well as the symptoms you've noted. Look it up and see if that matches what you're feeling....
It could also be interstitial cystitis which has been linked in studies to UC and autoimmune diseases....
I was diagnosed with ulcerative proctitis and a few years later was screwed around by a doctor who mistreated me, and so I went from mild ulcerative proctitis to ulcerative pancolitis within two...
Also, I believe stress is worse and the cause of most of our flares. Alcohol and junk food certainly won't help matters, but they aren't know to cause a flare up....
I do whatever I think is fun. It's my life, I'm sick, but I should at least enjoy whatever i have left of my life. Do things that make you happy....
The reality is, we can warn the OP of the perils of not taking his meds and it won't make one bit of difference. People don't really learn from other people's experiences. They gotta make the same...
The whole time I had an ileostomy I was crapping out mucus several times per day and that's nothing compared to what it's gonna be like after takedown. It can get pretty crazy. Sounds like everything...
They might have her on a higher dose of remicade and bump it up to every six weeks or every four weeks. I'm every four weeks because after that I start bleeding. But since I've been at four weeks...
I don't want to know how much money I wasted on probiotics. I've never been in remission. They didn't work for me....
So in one of my hospitalizations I brought my prednisone. I didn't tell them I had it. Well their was this nurse that was so awful to me, would say I didn't need to be there and that I was fine.i...
My colon was sent to pathology, they did genetic tests on it and my surgeon is well known Crohns surgeon who has a Crohns surgical procedure named after him. Everything said UC. I have chronic...
I actually just made a thread on this in the UC forum....
Your name gave it away lol. Yeah you've had UC for 15 years. That's a lifetime. Only had it for 5 and a half years until I had surgery. Was yours mild or in remission throughout the years? I've never...
Hey Andrina I recognise you from the jpouch forum. I really have no idea what they did with it. They should have, but at that hospital, who knows. They've messed up a lot with me. It's weird. I had...
Hey Keith, it's good to hear that you're doing okay. I am allergic to flagyl though. And the Rifaximin is too much money to afford. Government program won't cover it and remicade at the same time....
Hey everyone. So I had the two step J pouch surgeries from fall of 2016 to winter of 2017. In the spring and summer I had a lot of issues with pouchitis. Went on the antibiotics 5 times. Each time it...
Sharp stabbing pains that burn in the abdomen is how I describe it...