Been on it for 2 years now. Antibody test would be a good idea. I feel like I feel better the day/week after the shot. Then start getting a little worse the second week. I definitely take it early...
It doesn't do that. It only works on your gut. Blocks immune cells from getting into GI tract, no where else....
IPoop those side effects are not a big deal. There were dose dependent effect, where only a few more than the pacebo group had to stop. It can be hard on the liver (raising liver distress enzymes,...
Had my first flare in like 8 years a couple years ago. Since then I haven’t gotten totally better. Solid BM 1-3 times a day with pretty consistent bleeding. some weeks that are better than others....
You should not be taking it orally. Try Voltarin gel NSAID gel that works pretty well. Still some systemic absorption, but orders of magnitude better than oral route. That’s a dumbass primary care...
Looking for a bit of help. Lately doctors can't really tell for sure if I have crohn's or UC, so I'm looking for some thoughts. Here's the info. First few flares were straight UC, rectal inflammation...
Anything that isn't live is okay. flu shot is okay. New Covid vaccine is okay, just to mention a few. THAT SAID, I've been getting live vaccines on mercaptopurine + Humira, and I've been fine. I work...
Im sorry this is happening! Make sure you stay on meds life long. I don't know why he said that. This isn't something to play around with. Crohns/UC is relapse/remit, so it will ALWAYS come back....
Thats fine because its "Sub-cutaneous' which means it goes under your skin and gets drained through the lymphatic system which is kind of like veins but for fluids in the skin. If the liquid is...
Hurts alot. Sometimes ill get 2-3 in my mouth and as one goes away another pops up. I'll have spells of it for 2-3 months then it'll stop Be super careful not to bite your cheek. Avoid hot foods, and...
Just got the pathology back. Talked to a nurse practitioner about it (god I hate nurse practitioners). She didn't seem like she knew what she was talking about BUT here's the facts She said I had...
Congratulations of the 'old' found health! Bit of a personal question...but how many times a day do you go to the bathroom, what can you eat, and do you feel bathroom urgency?...
Hell yeah. High stress is highly correlated to flaring, and even to manifesting the disease. My GI doctor once told me that he hardly ever sees people in low stress lines of work manifesting UC...
Immune suppressants have helped me a lot. We're 'lucky' that our medicines don't seem to lower our life spans, so I would think of them as unhealthy (except for the prednisone which sucks!). You...
My Dr. does the split dose for me. I've done both and haven't noticed a difference in the picture quality either way. As far as what I prefer, the split dose might be a bit more gentle but it pretty...
Quincy I haven't gotten the biopsy results yet (is that pathology?), although I do still have the scope photos and the comments. I can share them when I get them, but that won't be for like 2...
Thanks for all the responses guys. I'm lucky enough that it doesn't matter too much rn. I just know it changes my 'end game' options, and that's for the most part what scares me....
Hey guys, looking to crowd source some opinions/experiences on the likelihood of a standing UC diagnoses actually being crohns based on the information below. (back story) When I was first diagnosed...
Humira is 70% likely to get you out of a moderate to severe flare (and does so quicker than Entyvio). However, it is only ~30% likely to maintain a lasting remission that is longer than someone not...
I've used pre-workout, mass gainer, protein shakes, ensure shakes. I don't know the names, but they were all just standard GNC brands (except the ensure). Some of it hurt my stomach at first but in...
Ok fair enough. I doesn't look like I'm going to need prednisone, but I'm trying to play out some ways to avoid some of the side effects in case I have to be put on it. I've gotten pretty bad stretch...
Has anyone ever been given a diuretic along with prednisone (or coincidently been taking one while on prednisone)? I was wondering if giving a diuretic (to kick out the retained sodium) along with...
I'm always fine with citric acid/orange juice/soda. You should try it and see. I'd say any acids would be unpleasant if you have ulcers, but if you're fine then you should be fine. Citric acid won't...
Don't use Clindamycin, or Augmentin Doxycycline was what my GI dr. told me to use. Sulfa antibiotics, and levaquine (but this causes some dang. side effects) were also okay according him....
I didn't get both, that's why I was trying to figure out if they're equivalent effective dosages....they gave me these instead of the enema...Is that bad?...
Hey guys, just wanted to know your experience. Went from taking 4 grams / 60 ml capsule to a 1 g suppository. I initially thought it was a lowered dose, which wouldn't make any sense but I've been...
Yeah I think so too. I think the 2 week thing was just when he wanted to assess progress though not the total duration. I'm on 1 enema per night (4g/60mL). But now you guys have me thinking about...
Hey guys, thought I'd update. The Doctor said It is a flare (confirmed via rectal exam), caught at a very early stage. They're giving me enemas daily to see if we can get the inflammation down...
I wish I had someone I could have talked to over the weekend about it, though. I didn't call because I didn't think she'd respond well......
Doing okay, Quincy thanks for asking. I decided to wait (and use some enemas while I did)....
Also this probably isn't the best time to quit smoking if you're on the border of flaring.......
Unpopular opinion, but I don't think that bright red blood (being okay) vs. dark/tary blood (being a flare) distinction thing really applies to us. Blood gets tarry and dark when it gets digested...
Hey guys, Almost positive I'm flaring (made another post)....I'm not sure if I should have my GI dr. paged so I can talk to someone immediately, or if I should wait until Monday when they open. What...
Also @quincy do you know the taper plan for a 1/per day night time mesalamine 1 month treatment. If I get ignored by the doctor I might just do that anyways. But I need to know the taper plan......
Yeah....figures. I've had a couple of those symptoms. (gassy, thin stool once). The only hope I'm clinging to is that my flares have usually followed the progression of constipation ---> diharrhea...
Hi guys, I've been in remission for the better part of 7 years, and having blood on the TP after wiping periodically and mucous on my stool periodically for the last few years of that time. The last...
UCinGV How much is it at Costco? Jewel charges me like $270 because insurance won't cover it. Is it much cheaper there?...
VSL#3 has been shown to help with pouchitis (in some smaller studies). It hasn't been shown to help with UC, as far as I know.[/quote] Here's my source...
Don't be too freaked out. A lot of people will get polyps in their life. They may or may not become cancerous, but we're at special risk for cancer because of our flares so they treat the polyps more...
I've heard VSL3 is the only one clinically proven to help (and anecdotally I feel like they help me)...VSL3 DS is a prescription drug so it is sometimes covered. I know United healthcare covers it,...
@ Quincy, out of curiously are you a doctor? You seem like you might be......
XY123 I strongly disagree. As civily as possible I'd like to explain myself... If foods or caffeine or whatever other ingested foods could cause inflammatory immune responses in the colon, UC would...
@quincy a year of medical school has made me very aware of the small signs lol @ipoop The feeling is more like I need to go to the bathroom (0-2 times per day as per usual) and when I do, I kind of...
Flat stool can definitely be a sign of inflammation, but I think it can also be general IBS. I've had flat stools occasionally through my remission, and its been going on a while. Tell your GI about...
Hey guys, For the last couple days I've been having this really uncomfortable feeling of not getting all the stool out when I use the bathroom. Does anyone have any experience of this? I vaguely...
Hey, I don't know why we are talking about Oestomy bags here. We all have UC here. What they'd do is probably make a J-pouch with your small intestine. There would be no bag except for maybe during a...
Hey guys, just looking for some anecdotal evidence! Has anyone here taken Tamoxifen (estrogen receptor blocker)? Just wan't to make sure it doesn't cause flare ups. Thanks!...
It will be as normal as before you had the condition (: You will also have to taper anyways, which will take a while....
They were fine no blood to be seen. But I did take the enema yesterday, so that might have helped. My plan is to wait a few days, and then tell my doctor what happened (Even if its an isolated...