In preparation for my ileostomy, I have some questions. 1. Does flakey dry skin affect the adhesion of the appliance in anyway? If it does what do you do to avoid problems? 2. When using a two-piece...
Not really who you're asking but I got it at 25 (F) under the GI's recommendation because I started using Xeljanz. Two doses of Shingrix two months apart. Arm muscle where I got the shot was sore for...
It took around 2 months on Pentasa 4g/100ml enemas nightly for me to feel normal again. I started out with some bloody mucus with every BM (1-2 times a days, usually once), symptoms got worse (also...
I'm planning on traveling in May (from Canada to Hong Kong) and would like some advice on air travel. I read some previous threads on traveling with enemas (most are about the US) and it seems like...
My GI said that I can start tapering once I feel well enough, so I will eventually, but not soon. For those of you who take 6-MP or anything similar, when do you usually take it? I was only told to...
Update: My GI said that I can start tapering off the enemas by using it every second day and he prescribed me the 2g enema. For some reason he doesn't have the actual results of my Inflectra dosage,...
I'm going to tell my GI about my situation with Pentasa and see what he thinks (especially since he only prescribed 2 weeks). I'm also going to double check what he said about the duration I'm going...
I actually got my Inflectra levels checked last time, the doctor changed my infusions from 8 weeks to 6 weeks. My GI actually said that he doesn't want me to be on too many...
Hello everyone, I'll be seeing my GI this coming Wednesday and I should be getting my blood test results to see whether or not I can take aza. Right now I'm on my sixth week of nightly Pentasa enemas...
When should you start tapering? My doctor prescribed me 2 weeks of Pentasa enemas to get rid of some bloody mucus I was having, but the first 2 weeks on it my symptoms were worse half of the time and...
It'll get easier the more you use it. I was in the exact same boat as you four weeks ago (you can check my posts), now I can hold almost the entire 100ml for the whole night (8 hours), though with a...
beave: Just went down to 30mg of Prednisone today. Three weeks ago at the hospital, they took biopsies during the short colonoscopy and ruled out viruses. I think I was supposed to get a stool test...
iPoop, partlycloudy: The GI at the hospital decided that I should start Inflectra after a failed transition from IV steroids to Prednisone which caused me to faint after 2 days of bloody BMs. My...
To those of you who have been through a bunch of biologics, how long did it take you to try them out? I've been on Inflectra (Infliximab, Remicade biosimilar) since August 31, had 5 infusions so far...
I'm pretty sure it's still too early to tell if the enema is helping or not. Last night my gut wasn't too happy, which I felt while administering the enema and was confirmed when I passed it after an...
Last night I managed to fall asleep and stay asleep until it was time to wake up for work (probably because I was tired from work :P)! I actually get into bed no more than a minute after...
Thanks. I'm currently on 35mg of Prednisone and reducing by 5mg every 7 days. I'm also taking calcium supplements for the Prednisone. The GI said that my UC is too severe for the oral mezavant to do...
A bit of background first: a bad flare landed me in the hospital where they treated me with IV solumedrol and then prednisone, which got me to almost remission. I saw my GI a week after I got...
The two times I've been on Pred I started at 40mg and went down by 5mg every 7 days (252 pills total I think). BUT both times were after I was discharged from the hospital, so I was getting better...