I don't know about your drug. I have been infused with Reclast but that seems to be recommended only every year or two. I had bleeding about the same time as taking the tablet Fosamax but there is no...
You sound OK. As a courtesy you might test for Covid...
I had to move from Entyvio to Remicade. The several months of improvement on Entyvio was nice but not enough. We tried every 4 weeks and a short course of Prednisone. More frequent infusions help...
I had the Hep A & B vaccines long before the UC diagnosis. It's just a routine recommendation in many situations such as work conditions and travel. Not sure of all the details but I didn't worry...
I saw a mesalamine package insert that listed chest pain and shortness of breath as a rare side effect,...
I was worked up more than once in the past for chronic microscopic hematuria. It doesn't seem a cause for great concern. Maybe a "leaky kidney", whatever than is. Maybe you had what they call an...
Flowers: How do you feel now? Did you have white cells (leukocytes) in the urinalysis? On an antibiotic? How about a culture? Microscopic hematuria too, for decades. I always look at blood BUN and...
Ribbon, My antibody levels were 15 and 17 over a period of a couple of months last year. When i started to have symptoms the dose was increased from 5 to 10mg/kg at the same 6-week interval. A low...
Wayne, they use the terms Renflexis and Infliximab interchangeably at my infusion center. It took 2 to 3 months to notice clear improvement....
Don't stop posting! I am here every day! My story is long and boring with only brief symptom relief from a long list of medications. But I don't have anything dramatic to report either; no...
I have been thinking about you often all this time. Whenever I eat a banana or bacon! I was hoping I could "disappear" like you or have success to report like other helpful mentors here (CC, Flowers,...
I agree with Straydog about the stem cell thing. Do a lot of research and at least get other trusted opinions....
CCinPA I envy you for having Remicade adjusted because of mild symptoms while it was still helping you. My increased dose is in response to flare-like symptoms that can't be ignored. So I don't know...
Is it possible that Infliximab (Remicade) has stopped working although I have a good drug level and no antibodies? I had a very good year with the drug until October when flare symptoms appeared. An...
In the US I would start with an independent, free government-sponsored program. Completely independent and objective Medicare counselors. The service is called SHIP, there is one in every state. I...
Your dentist and endocrinologist would be your best sources of information. Likely a necessary procedure like an extraction would be done. There might be reluctance to perform an elective procedure...
Reclast (zoledronic acid) is an infusion that my very smart endocrinologist says only needs to be given every 2 years. No side effects at all in my case and I would opt for Reclast or Prolia rather...
Do they mean the patient should avoid excessive sunlight? Or keep the suppository out of the sun? That would make sense based on the usual color change that happens with the off-white enemas....
Hi Quincy, Let us know if you find something like that. Your doctor might have results over time on their screen and be able to print it for you. I am partial to tracking simple items on a built-in...
My usual lab work is done by Quest Diagnostics. When they send results to me and the doctors it includes a link to view "results over time" which clearly shows changes over the months and years. The...
Check out my post from today, 6/29, about Remicade and endoscopic remission. I have been on Remicade for 9 months and had a good response after several weeks. No side effects in my case. Also see...
Like HaleyA I started September of last year and have never changed from 5mg per Kg every 6 weeks, after loading doses. So much better! Look at my join date, 2010 so it has been a long struggle....
Always lie down when having your blood drawn. I have not had that happen but have witnessed many episodes. Lucky if you didn't wet your pants!...
Does not apply to Remicade at this time but very interesting, from WebMD Professional, given the recent discussion about Remicade: "A biosimilar is a biological medicine proven to work in the same...
Clo, all the variations have been approved after validated to be of equal benefit. iPoop posted about a hospital that switched all of their patients who were on Remicade with no problems (one...
The specialist agrees that infliximab to Renflexis was a switch. She states that her center would not approve the change except if the patient could not otherwise receive treatment due to insurance....
I'm glad there are no stupid questions on this forum! Don't check my spelling either. If Infliximab is the active ingredient in Remicade and biosimilars like Renflexis were approved separately then...
I understand a little about brand names, generics and biosimilars and how they are supposed to be the same in terms of effect. I started with Infleximab and the last few infusions the pump reads...
I'm supposed to schedule a scope 6 to 9 months after starting Remicade. Not a pleasant thought, but then how do we know if endoscopic remission has been achieved? Isn't there a difference between...
Many thanks Quincy. It makes sense to use less of the sugar-free (that's what I have) if the bulk of this granular product is table sugar. And splitting it like Serenity does would help, (if you can...
This is a new suggestion from the IBD team. Did I hear the doctor say 2 Tablespoons? It says 2 teaspoons on the container. Some of our most trusted posters report that they use Metamucil. How much do...
First thing is to repeat the urinalysis. Cheap and easy. You were probably fasting and withholding liquids if the blood panel was done at the same time. Hydrate....
Having TSA precheck is not always a magic carpet ride through security. If an alarm is triggered, say even for metal from a joint replacement, expect the full treatment just like any other possibly...
If you see black again you can apply it to one of those occult blood cards and take it to your GI or GP for a quick check for blood. They add a few drops of developing solution to the paper for...
Don't freak yet! If an infection, like your doc says, amounts would be high. It would likely be a pure culture and you would have white cells in your urine. Did they order the culture because you...
I am familiar with that feeling of disappointment. Before giving up on Entyvio we tried Prednisone as you have done. I also had a colonoscopy to check for visual inflammation, a calprotectin and CRP....
The wrong dose sounds like a serious error and violation of the medical oath of "first do no harm". The odd Prednisone pre-medication taper comes from the specialist; the dosage originates with the...
I agree Sara. You have motivated me to call, write, message and email a few providers (in a nice way)....
Thanks iPoop and Sara. I have an IBD doctor at a respected teaching hospital too distant for regular in-person visits and a local older sweet generalist GI who keeps up to date. The local guy is...
I got talked into a low-dose taper starting at 20 mg lasting only a month. The reasoning is that decreasing inflammation might make the infusions of this new treatment more effective. Anyone heard of...
With every-other Remicade infusion I get a complete blood count and comprehensive panel. Even before that the same would be ordered at least every 6 months, and an occasional C-reactive protein, by...
Thanks for your stories and a glimmer of hope. My first infusion will be in about week and I will report the results. Exactly as CCinPA says there is no fine tuning of Entyvio. We went to every 4...
I know CCinPA and others are experts here. After an Entyvio infusion I could just go about my day as if nothing had happened. Shopping, walk the dog and all that. Remicade seems a lot more...
To confirm my experience: I had no reaction to Moderna #3, unlike #2 which hit me with a fever for a day. CVS offered same-day appointments with almost no questions asked. I did not call my doctor. I...
I was fine with the booster dose. My 2nd dose of Moderna was almost 6 months ago and sent me to bed for a day with a fever. This fits with my son's experience. His first Covid challenge was the...
Like DavidEA, a teaching hospital told me that an antibody level would not be helpful in third dose decisions I had mine today at a CVS in California....
I'm getting #3 Moderna tomorrow. The process was easy at the CVS site. So now I wonder if any side effects from the booster are the same as the 2nd dose of mRNA. I had a fever for a day. I would like...
My choice is to protect myself and others from this senseless disease in whatever way I can. If there is a correlation between the different vaccines and after effects I don't see it. My doctor and...
My original gastro said: sometimes this "burns itself out". By that he must mean spontaneous remission. A friend on a single course of Prednisone went into deep years-long remission after that. He...
I have taken Preservision, usually one a day, for a coupe of years. Lutein 5 mg; Zeaxeathin 1mg with no change in IBD symptoms. 2 per day recommended but the zinc makes me nauseated....