Yes I am a little perplexed by that also. He is on double dose but every 8 weeks, we could try Remicade infusion every 6 weeks n see if that changes anything....
I will suggest this to his doctor, thanks...
He is not, he has been taking Asacol for the last two weeks but it isn’t doing much. Poopydoop thank you, is xenjanx working well for u?...
Thanks for the responses. The doctor did mention enemas but he is absolutely resfusing to use suppositories or enemas. The doctor suggested taking oral asacol but that is not really helping much. We...
My son is in college n he is on Remicade n methotrexate since his diagnosis last year. He was diagnosed with moderate to severe pan colitis. He was doing great but recently his symptoms are coming...
Thank you. He takes methotrexate also once every week at a very low dose to prevent antibodies for Remicade from forming....
Okay, yes they did a Remicade level test and the level was fine. His blood test results were all good so the doc decided to move him to 8 weeks (even after we told him about the blood)....
So my son was diagnosed last June with moderate to severe pancolitis and he has been doing great on Remicade. After 7 months on Remicade and no symptoms he had blood in his stool three weeks back for...
Thank you....
My 18 year old son was diagnosed with pancolitis in June. He was put on Remicade and he was completely symptom free and was able to complete one semester at college away from home. Since yesterday he...
My son has his fifth infusion coming up in five days and he has a bad cold. He is not on antibiotics and does not have fever. Will it be alright for him to go ahead with the infusion? We would like...
Thank you. Hopefully things will be more stable after the fourth infusion for all of us....
He was on prednisone when he was diagnosed two months back. We saw little improvement with the first Remicade infusion but the second was like magic and with the third all symptoms were gone until...
He was without symptoms for two weeks after his Third Remicade infusion so I think the Remicade is working. He is also on weekly methotrexate and the Pred....
So my son had his third Remicade infusion while tapering prednisone. He was doing very well ( no blood or mucus) for two weeks and we were able to taper the prednisone to 10 mg (started at 40 mg)...
Ok thank you for letting me know, I will bring that up with his doctor in the next visit....
He takes Methotrexate 14 mg once every week which the doctor mentioned was to keep the Remicade working. He is trying to taper off prednisone and is on 20 mg now from 40mg....
He is supposed to get 10 mg every 8 weeks. Is the third dose still a loading dose?...
My son was diagnosed with severe pancolitis recently and he has been getting Remicade infusions. After the second infusion his symptoms improved and the bleeding and mucus stopped. But towards the...
Okay, thanks I will contact the school....
Any tips from any parents or young adults for living in the dorms with UC? My son is going to college far away fro home and he was diagnosed a month back. He is on Remicade and is slowly getting...
What do u all do for excessive gas and bloating? Are there any otc medications that are helpful?...
We are in Raleigh and we just switched to IBD clinic at UNC Chapel Hill. The doctors are all academic doctors and you will get top of the line treatment. Their facility is excellent I have been told....
So after his second infusion my son got really constipated. He doesn’t want to use laxatives because that will have him running to the bathroom. What is a mild laxative that he could use?...
Yes he is on 40 mg daily. He had his 2nd Remicade infusion on Wednesday and did great yesterday. But his loose stools are back today. Maybe the IV steriod with Remicade infusion made the difference...
Yes Susie he is on a medication that prevents the antibodies from forming. Thank you ipoop for ur encouraging post....
Yes we were able to see the specialist today. He didn’t change the treatment plan but explained everything clearly. He did mention that we might have to go the surgery route in future which right now...
Thank you we are trying to stay positive....
He did get IV steroids at the hospital now he is on oral 40 mg prednisone. I am hoping the Remicade will work. We didn’t see much difference after the first infusion....
My son is 18. Yes they did do iron infusion at the hospital. He has lost 30 lbs so far and it’s quite scary. We have our second Remicade infusion today, keeping my fingers crossed. He sees a GI...
So my son was recently diagnosed with severe pancolitis. He is on steroids and has had his first Remicade infusion two weeks back. He is not improving and I m concerned about his loss of appetite and...
The shots help him some. He is at the maximum dose right now so maybe that has an effect on his UC. We are very new to this disease so still figuring out things....
My son is currently on prednisone and he has his first Remicade infusion. We have noticed that his allergy shots ( immunotherapy for environmental allergies) is making his UC flareup worse. Anyone in...
Thanks for all the informative responses. I m so glad I found this group....
Yes the GI Doctor mentioned low dose Mesalamine and we will discuss that tomorrow. I hv read conflicting reports about increased lymphoma risks with this combination therapy. Any thoughts on that??...
My 18 yr old son was just diagnosed with severe UC and is on steriods and Remicade. We are doing low residue diet. He is going to go to college, out of state, at the end of summer and needless to...