Good to know that, Sara. I am hopeful this can be a possible option for us folks taking Rinvoq. My GI said this is not something she's done with any patients yet and seemed keen on following a very...
Ah yes, thank you for clarifying that barnsbury. I may explore having my GI refer me to an Endocrinologist if tapering from prednisone continues to be a challenge. I went back up to 20 mg (from 5 gm)...
Thank you for sharing your thoughts and experiences, Barnsbury. Invaluable to have your insight with longterm experience on Rinvoq. I have heard of folks transition to hydrocortisone when pred taper...
Thanks for your perspective and encouragement, A. Carter! I too am hopeful the increase in pred from 5 mg back up to 20 mg will nip the inflammation in the bud (maybe butt is more appropriate haha)...
Greetings all, I've been following this thread closely and am encouraged to read the progress some of you have had with Rinvoq. Because the med is so new, forums like this are a true gem. I am 11...
Yes I appreciate this reminder. I know deep down I have agency but often find myself losing sight of this and become boxed into a one-way-ticked mindset. The practices of listening to our bodies is...
That’s great your first go at biologics put you into remission! I hope you continue to live symptom free. It’s honestly hard for me to recall what that felt like… and it’s only been six years with...
Great to hear, Sara. Always good to hear success stories!...
I appreciate your encouragement, straydog! It can feel so lonely on the UC island sometimes....
Hi folks... wanted to share a little update. I'm now just past the three-month mark with Humira and sadly, there seems to be no improvement. Symptoms have remained stubbornly persistent. Since...
This is fascinating and potentially very exciting. Thanks for sharing, ipoop!...
I am so glad to hear this news, Sara. I've read your struggles and am (cautiously) optimistic to know you're finding lasting relief. Best to you and congratulations - you deserve a break!...
Yes I hope the rest of the country gets on-bard ASAP, including NY! It's all so new. I get the sense that most clinics/pharmacies are kinda flying by the seat of their pants and using their own...
Echoing suchatravesty (for California residents). I managed to get a Pfizer booster today after simply signing up via their website over the weekend. It was a very organized no hassle experience....
I'm sorry you've struggled to find relief. It really is a "roll of the dice" in finding the right combo of meds/lifestyle choices etc. Wishing you a path towards greater wellness, whatever it may...
Thank you all for the well wishes and support! I know it will take some time before determining if Humira is right for me, so just trying to stay patient. Started a low-dose (20mg) pred taper as well...
First loading dose today - 160mg. After all the waffling and worry, I think I'm ready to start this new chapter. I'll be working with a very nice nurse "ambassador" via the Humira complete care...
Greetings and thank you for sharing your experience, island time (great handle, btw!). It sounds like you are in good hands with your GI and you seem to be in as good a spot with your UC as can be....
That is such great news! You must be so relieved. I appreciate you remembering to update me :) It is indeed very encouraging to hear. I need all the hope I can muster, as am sure many can relate! I...
Hi GioGirl504, Thank you for sharing your experience with Humira. I'm encouraged to know you've done well on it and hope your success continues. Please let me know how the scope goes on Monday. I've...
Thank you for the suggestion Straydog. I've done this and basically all biologics fall into Tier 4 on the formulary (Blue Shield) and require prior auth to approve regardless of med. However, some...
Hi FlowersGal - great suggestion! I've heard many of these drug companies offer financial assistance depending on insurance and circumstance. I will definitely look into it. Appreciate the thought!...
Hi UCyousee, Thank you for sharing your experience with Humira. On the one hand, its encouraging to know you had such a good run but also a little disheartening its lost its ability to maintain the...
If only it were that easy! I agree with you and would happily skip Humira if I could but here in the states, most of us are dependent on what our insurance is willing to cover. In most cases that is...
Sara - That sounds rough and totally understandable that you would want to avoid biologics given the bad reaction to Humira. I see that you recently started Xeljanz. I hope that you find some relief...
Hi FlowersGal, Thank you so much for your thoughtful reply. I’m glad to know you’ve done so well with Entyvio. I’ve definitely read success stories with Entyvio over the last couple years on this...
Hi Sara - Other than something like upping my mesalamine treatment to nightly enemas + morning suppository (which I've not had much success with) and maybe a stricter diet regiment (food map maybe?),...
Hello all, I am a regular reader/seldom poster of this forum. Really appreciate the wealth of info here and would so appreciate some perspective around making the likely switch from mesalamine to...
Hey folks, came across this fascinating article looking into a possible connection between fungus and IBD via NYT:...
This is such welcoming news. I live in the states and have had to order from an online pharmacy in Canada in order to afford this medicine. Very curious to see how much the US generic will cost......
This is fascinating. Thanks for sharing!...
Thanks for this, John. Definitely reassuring to hear that you've had no issues. Can rest easy tonight now!...
Hi folks, I've recently started using mesalamine enemas nightly. I'm about to go on a flight tomorrow and realized that it could prove challenging to travel with this medicine. I imagine they could...
Hi, thanks for the reply... not sure if the cyst matches what I'm feeling but who knows? I think your right that the next step is to have a doc take a look. I'm actually due for another colonoscopy...
Hi everyone! First, I'd like to say how much support I feel from reading all the posts and conversations on here. It's been a wonderful resource that keeps me from feeling isolated during those rough...