Actually covid moved up my husband and I's plans to start a family for the reasons poopydoopy mentioned. We're usually busy travelling for work, with both of us at home it seemed like the ideal time....
Hey Claire, thanks for the response. I'm in the same boat in terms of not being able to tolerate carbs pre-pregnancy, to now enjoying all of the carbs during pregnancy with no colitis symptoms. But I...
I am on rectal meds and tablets....
Hey everyone. I am currently 4 months pregnant. Pregnancy appears to have gotten me into complete remission. I was having minor proctitis symptoms before (a bit of mucus, bit of blood) but it's all...
Prednisone does this to me. Took me a couple rounds of doing it before I made the connection. A few summers in a row I was on prednisone, by October/November my hair was falling out like crazy. Hair...
Hi VickyUC, I'm in the same boat. I was never a heavy smoker (3-5/day), I quit cold turkey 10 years ago and developed UC 2 months later. I now hate smoking but if I'm in a flare and the usual drugs...
Lol "shooting blanks". Agreed, most sources say the microbiome isn't fully developed until about 3 years of age. At that point your child might be a suitable donor. And yes urine would likely be a...
I had a similar experience in the way I developed colitis and have found relief in the past by smoking 3-5 cigarettes a day to get myself out of a flare. It always feels icky though, once you make...
Very scary! I'm confused about why the sample wasn't screened for e coli? It seems the FMT was performed in a hospital setting, wouldn't e coli be one of the MAIN things you screen for in donors? Is...
In terms of how long to hold it, I've heard as short as 20 mins or as long as 4 hours. I don't think we know the magic number yet. I do mine at night now so I can keep it in for 8+ hours - not...
I have this problem when I'm flaring even if the flare is very minor, I'll come back from a long run and my bowels will explode. Immodium is a good band aid solution. If I use it everyday it messes...
Another note, now when I go back home to Toronto for a visit my stool gets softer immediately. It's almost like it triggers a mindset I had when I was sick there for 8 years. I don't want to buy into...
Yes I've had this experience, though short lived as well. On at least 2-3 occasions I've gone away for a vacation with my girlfriends, flaring before and so nervous I would get worst with poor eating...
Hi letstryit, glad to hear your son is on the road to recovery, I hope he reaches remission fast! There are 2 people on this forum, Limey and little_bear, who participated in FMT clinical trials....
Hey Casey, good question. There isn't an FDA approved product/method for delivering FMT yet. Some clinics and hospitals do administer it for the treatment of c. difficile but only in cases where...
Hi Letstryit, I understand your frustration that your doctor is not in favour of FMT but if your son is flaring again you do need to talk to him. Hopefully he will allow you to continue FMT but your...
Hi letstryit, when I started FMT and still had inflammation there was some discomfort doing the enemas, no different from discomfort I had doing mesalamine enemas. Sky Curtis recommends taking...
I get this pain as a PMS symptom. As the above article mentions. It's worse when I'm flaring. Period cramps coincide with weird stabby butt pain....
A range of clinical trials for FMT treating colitis are showing on average 28% remission rates at the 6-12 week mark. Risks are minimal as long as the donor is properly screened and the patient is...
Hi Letstryit, you need to tell your doctor you've been doing FMT. If your son is doing well right now it could be the steroids, could be steroids and FMT. Your doctor needs to see the whole picture....
Poopydoop sounds like your diet is more inline with IBD-AID which is an updated SCD protocol. It allows oats, sweet potatoes, variety of beans, plenty of dairy (hard cheeses mostly), etc. I switched...
Hi Kweeks. I was in the same boat as you for a couple of years. In the beginning of my illness I would go full dose on salofalk (9 tablets daily, nightly enema) for a month or two to get my symptoms...
I've seen similar findings regarding Canada, which has a very high UC rate, but it's less prevalent in British Columbia where the weather is more moderate than the rest of the country....
I took Qing Dai for a month and it did nothing for me but turn my diarrhea greenish-blue. I still have lots left, may give it another try sometime. Glad other people are seeing good results....
No problem! I'm doing very well. My bowels are in 100% perfect condition, no sign of colitis and completely regular healthy bowel movements once every day, same time every morning like clockwork....
Hi Letstry it, Sky Curtis did every day for 1 month. Every other for 1 month. Every 3rd day for 1 month. Every 4th day for 1 month. Every 5th day for 1 month. 1/week for one month. Every 2 weeks for...
I've used it twice and it never did anything for me. My doctor was so excited about it due to the low side effects and thought it would be a great alternative to prednisone, but we ended up having to...
Hi Lettryit, Glad your son made it home from the hospital and is doing well on the prednisone. Keep up the current meds, hopefully he will continue to get better. I would wait until inflammation is...
Hahah oh man, thanks for painting that picture. I totally relate. Prednisone makes me revert back to hormonal teenage-angst levels of irritability. Literally my mother will call and I can't help but...
Good question. Had to do some googling, it seems that blood has it's own "bespoke" rules according to this article at least. Would be nice if fecal matter had the same rules but apparently the fact...
Yes I read that study too and made me nervous to switch to vaping but saw no difference in condition when I made that switch. So who knows....
Interesting. I only ever smoked 3 cigarettes/day because I found that was the amount needed for results and didn't want to overdo it. And it seems switching to vaping was even a step down from that....
Ya good suggestion. I should do a little analysis and see how much nicotine I'm really taking in and compare it to research on nicotine/colitis. At this point I'm really not sure how much it's...
I vape! Smoking cigarettes in the past was a therapy that worked well for me but I hated to admit it especially as I got older - I run and like to think of myself as a "health" person, smoking...
I'm at 7 weeks daily FMT this round! I want to do a full 2 months before weening down to every other day, every 3rd day, etc. This is most definitely overkill but I'm testing a theory. If I really...
That's great curl3d. Not sure if it's coincidence or not, I play the same mental game with myself. When you're doing several things at once (prednisone, FMT, etc.) it's hard to know what's driving...
Hi @Letstryit, if you read through this entire thread you'll see each person went about it differently and had various degrees of success. You might be able to gather some pointers. You could read...
Hi letstryit. Wish I could give you an exact formula, but we know so little now it's a lot of trail and error. I see you posted in the "counting success stories" thread on here, that's a great place...
I agree @IamCurious, I would be shocked if the result comes out as anything other than a "drug" ruling, it seems inevitable. Would be nice if like iPooped mentioned it could fit into it's own 3rd...
Hm, this is a good point. And perhaps one I have been insensitive to in the past, in my own relationship with my doctor and wishing he knew more/was more supportive of this treatment. My lack of...
You're right sorry for my passionate response I promise to keep it nice and polite! My frustration is over the potential of c. diff patients losing this as a treatment option. It's not directed at...
Also, the first product to market for c.diff will likely not be a lab grown consortium of bacteria, we are a long ways from that. The products that are close to approval right now are flash frozen...
DBwithUC - I'm assuming your ongoing argument that FMT will only be a valid treatment when it's an augmented pharmaceutical product refers to conditions outside of c. diff - colitis, crohn's and...
Hi MattSu, I dabbled in meditation for years without really understanding how to do it, getting frustrated and giving up. The book that helped me actually get into it was Joy On Demand by google...
I have not read his protocol and cannot access that google drive link. Does his protocol have something to do with FMT? This article makes it seem like it's a combo of bupropion/supplements/diet?...
Happy to hear you're doing better! How long will you keep up the FMT this round?...
Hi Ecoabundance, have you ever been on UC meds? What were your tactics for getting into remission in the past? I agree with ambling, and understand your perspective. I'm not a huge fan of...
So glad it's working for him so quickly! I love the yogurt. I've had adverse reactions to it in the past when I introduced it while still having bad symptoms. But when my symptoms are under control,...
I had the same frustration when I started SCD. I felt I had a healthy diet before - mostly vegetarian, lots of whole grains and veggies. To completely cut out carbohydrates, especially ones that I...
Age plays a factor. I think usual is 1-3 years for colitis patients. Even though you're in remission, when you think about age related risk once a year is not unreasonable. I know in Canada it used...