I am on Entivyo only, and a probiotic which is really helping also. But I still have urgency and sometimes blood. It’s gotten better since my last infusion but I’m very paranoid. Some days are better...
I’ve been on ENTYVIO for a year and half...I am sort of getting over a flare and just finished a round of steroids...I already noticed blood in my stool, still going 8+ times a day, and have urgency....
Thank you!...
Ipoop that's what I thought. Do you know of any off hand?...
I asked for a cortisteriod suppository and was given Canasa... Is that right?...
WhAt is sibo?...
Ksl...I never knew that, I did treat it but it is lingering, calling dr tomorrow! It's hard to do me with being a single mom of 2 and working full time. Juststud...I am going to call gastro as well...
That was mentioned by the gastro was in 6mp for a long time years ago not willing to do that just yet again....
I have been under a tremendous amount of stress for the past 9 months...flared like crazy...finally under control but my mornings take me about a half hour of in and out of the bathroom and the...
Thank you!!...
It's the same with or with the librax...but it does help the pain. I don't take it every day. When I have something planned in the morning i do have to get up extra early to get things moving. You're...
No matter what time I get up its the same thing...it's like ground hogs day! Lol this flare probably isn't 100% under controlled but at least right now I know what to expect...the rest of my day is...
My flare is finally under control, but my mornings are madness. I can't leave the bathroom but once im empty I'm good to go. Has this happened to anyone else and have found any remedies to ease the...
Dikid what is something similar to librax that wouldn't cause gas?...
I have used charcoal tabs...did nothing...
I'm currently in a slight flare but it's the gas pain that's literally killing me!! I've tried every over the counter gas meds there are, is there a prescription that helps with gas?? I'm currently...
Thanks ill have to look into that!...
Does the lialda card work even if you have insurance?...
@faithmac... That's so weird! I always always felt the burn!...
Everything I stop I go med free for awhile and then it all comes back... When will I learn my lesson!?!? So IMO never stop, even if you take a real low dose...
I took lialda with humira... Humira was awesome for me! Hope it works out for you too!...
Some of the needles take a while to come down... I remember thinking to myself come on already, then I would feel the burn and be like oh there it is lol...
I did rowasa like a century ago lol I will give my gi a call and see if he can call that in for me! Thanks! I'm literally like 3 weeks preggo so no pregnancy symptoms yet just positive blood tests...
I was on humira for 2 years, 2 years ago i stopped once I was in complete remission, it was easy to do and it was delivered to my house every 2 weeks...the injection itself hurts I'm not gonna lie by...
Byebyeuc...who did you see at my Sinai...I use to go there when things got severely bad......
I was on remicade for years and it started to work for me after the first infusion. I even got to a point where a nurse would come to my house and that was great! Eventually my insurance didn't cover...
I'm also wondering if my prenatal vitamin is adding to the irratation...
I have a lot of liquid d with some particles of bowels, I have left sided uc, I only have pain when i feel the urgency to go, I noticed blood once today in stool but haven't seen any since. I take 3...
I realized I didn't add my signature ugh! Uc since 2001 Had a baby is 2010 was on humira and lialada through pregnancy didn't have any real problems, now just on lialda and canasa....
I haven't been on here in awhile but as I read through some of the posts I realize how much I've missed this place! Anyway most of my story is in my signature, but I'm literally only a few weeks...
designer marc jacobs also has UC and is very open about it!...
librax or xanax always works for me......
i had one many years ago, inner leg close to the vagina...turned out to be an abcess...had to be extracted...hurt like hell for days, left a nice scar and i never want to go through that again....doc...
thanks!...
there is a new prep its called moviprep...i just did it. it doesnt taste "good" but i didnt get my gag reflex going which was nice, i mixed it with lemon gateaide. it wasnt horrible at all. my gi...
i does hurt, but only for a few seconds, my husband has to give it to me cause i just cant do i myself. my goes in my leg, i cant imagine doing it in my stomach...ugh good luck!...
what are CFU's?...
the colonoscopy i think has sent me into a flare...i'm hoping its still the prep thats giving mee such urgency and mucous...but good lord i havent felt this bad in a LONG TIME!!! the test showed that...
ok so i did the prep put it in lemon-lime gateraide, made sure it was reallllllly cold....closed my nose and gulped it down. it did taste better than the older stuff i didnt gag its still ichy and it...
ok so my husband and i are gonna start trying to conceive, but i just got a bunch of prenatal vitamins to try and i dont know which one i should use: as you can see from my signature i have left...
thanks friends...i'll keep you posted first dose in 45 minutes...yikes!...
colonoscopy on wednesday, and have moviprep as my prep...never used this onee before...has anyone? is it better than the pills or the jug of nastiness?? i was told that gi's arent using the pills...
when that happens to me i take librax...i also get bad gas with spasms...so i take the cherry chewable gasx also. i take 2 librax 2-3 times a day till the spasms have stopped!!...
so then how do you know which one is the right one for you?...
ive seen alot of commericals about the probiotic pearls...and i remember ppl on here saying that they take them...i read the descript ions on all of them, and they all say something along the lines...
that has happened to me before, i would do canasa after that just to keep things calm....
HI! i started the same way, but the my nurse at the gi'office did one of the 1st 4 to show my husband and i how its done, starter kit 4 shots, then 2, then 1 every 2 weeks. i started in july. it did...
i'm left sided as well, colozal worked wonders for me...once i started the generic it did not work for me. i am now in humira and lialda. lialda works great! im totally impressed. i do use canasa a...
ive never heard of Cholestryamine before, is this generally used? is it something new? im just wondering why my doc never gave it to me...hmmm as for the gas issue canasa works for me...rowasa made...
on remicade i didnt gain any weight and i was on that about 2 years...mkl those arae good questions, i think its a combo of both i feel better, and eating things i havent ate in awhile, i also have a...