I’ve found infusions the main way to bring my iron levels up. But things you can try that friends of mine have found healthy. Along with a diet that’s iron rich, use a cast iron pan to cook, get one...
This is a hard one. I have inflectra infusions every 8 weeks and I’m excited to be in remission. Still having chronic fatigue Though, and not sure how the infusions may or may not contribute to this....
Speaking for myself, I worked so hard to improve the quality of my life without biologics. I finally gave in almost a year after my doctor strongly recommended them. I look back now (feeling normal...
I started taking CBD oil about a year ago, and within a day I felt energized after being chronically fatigued for years. I was also on an IBD AID diet (similar to SCD). However the energetic feeling...
I am on inflectra (remicade biosimilar) and I had some fatigue and sore arm for 2 days....
Pfizer on Friday, inflectra infusion today. No IBD symptoms....
Ipoop I always appreciate when you say things like expect the unexpected and it has calmed my anxiety more than one to remind myself that this is an awful and baffling disease. My story: just over 3...
I was so upset about being recommended biologics last year. I worried about it constantly, and didn't make a decision for more than six months. My GI was relieved when I agreed. Now, I'm wondering if...
Thank you for all your replies!!! i really appreciate it. Why would I want to risk getting ill when I have been ill for so long needs to also be considered here :) As for the parasite, i had amoebic...
I’m looking for some opinions/ advice please (maybe just writing this out will help me) I live in BC where positive tests for Covid are under 2% of testing and just about everyone is contact traced....
I was following IBD AID with about 80% adherence. I still keep this diet in mind. I stopped being so compliant because, even though my gut symptoms improved , my fatigue didn’t. And preparing food...
I didn’t watch the movie yet, but I will in a couple of hours when I’m getting my infusion:) without a doubt, over the last three years I have had pain and diarrhea, and my calprotectin levels have...
Before I was diagnosed with UC I was under the impression that colonoscopies are recommended for anyone over 50 and I was planning on requesting this because colon cancer is in my family. However...
I definitely have tried strict diets and personally I find that following anything that eliminates or restricts packaged food and encourages more meal prep from single ingredient foods is helpful for...
Thank you!! I've decided that this is out of my control, and I've listed possible positives to delaying the infusion in my diary. I'm noticing that every time I consider what different professionals...
I had my three loading doses in July, and I was due for my 4th (8 weeks later) infusion on Friday Sept 18. I was on antibiotics for 17 days (until the 19) for amoebic colitis. My GI said on the phone...
I live near Vancouver and I read this thread with great interest. 1+1=2, may I ask what city you are in?...
I took mezavant for about two weeks a year ago and had liquid diarrhea the whole time which ended two days after I went off it. I went on pentasa instead and did not have the same side effect....
I just wrote a book about my experience in British Columbia results for the colitis, and then my battery died. This was the gist of it: 1). I live in the lower mainland, And have access to all the...
I probably miss one day a year for symptoms like pain and diarrhea. I tend to be careful what I eat during the work week to prevent taking time off. I take two or three weeks of sick time of year for...
Thank you for sharing that minnie! I’ve been googling and researching fatigue a lot lately, and the issue is it’s subjective. Stories like this give me hope....
I also get exhausted lately. I’ve had the same symptoms that you’re experiencing for a few years now and getting really fed up. I know my bloodI also get exhausted lately. I’ve had the same symptoms...
How are you doing now user 98? Did you ever get answers?...
I'm sorry. I know that the pain can be quite severe, and sometimes I just don't have an explanation for why I have such severe pain, and on other days, why I seem to feel normal and happy. Have you...
Well the decision is made. I will start infleximab as soon as the finances are figured out (I’m Canadian). I’m going to have to accept this decision as the best one I made at the time. And if my iron...
Today I will talk via zoom with my GI. I’ve been meaning to write down a list of questions for her, but have only come up with three: 1) (very hard to answer I know) is it a possibility that...
I went for acupuncture two times last year. I really liked the way the doctor talked about drinking warm water with lemon, worrying less, exercising minimally and going out into nature. I felt like...
Thinking about you bucko. I hope that you get this sorted out in the least stressful way possible and that you have good care....
Thank you! I need to hear this. Even though the diet (along with mesalamines) did seem to help with my gut symptoms, I still had low iron issues, fatigue and joint pain....
So I've had some symptoms the last month, not terrible, but not feeling the symptomatic remission I've been feeling for the last five months. I saw my calprotectin levels go down from November to...
Hi, I was diagnosed with UC in 2017. In July 2019 I had a colonoscopy and like you there was severe inflammation near the small intestine. I take pentasa 4 times a day and salafalk suppositories 2 x...
Been dealing with low iron for a long time. I was offered infusions in December and I decided to start taking feramax 150 daily. Usually I get my levels up with pills, and then as soon as I’m within...
Yes, I have fatigue. This is the most debilitating symptom for me. I have always been a tired person, but I used to weight lift and run, and I used to be able to go to work and then still visit with...
I’m glad you’re feeling better, sometimes I wonder about the almighty power of stress....
I think I’m in remission right now partly because of a change in my diet (I think). I’m keeping track of this by looking at my symptoms, and by going for regular blood tests and stool samples every...
Thank you for sharing this Old Hat. I am very grateful for all the IBD doctors and researchers. And doctors in general have so much respect from me. Stay safe :)...
Im watching too much tv, I seem to be addicted to needing to know the news in every single country. I feel better when I walk or run or try to keep a routine....
Back in February my daughter was very sick for almost two weeks. She had a fever every day for more than five days and a constant dry cough. She said it felt weird and there was a tightness in her...
Van, I think when this is all over we will be so proud and grateful for our province, our medical system has been outstanding, things are already looking good and flattening. I do hope you feel...
My solution is to walk for 45 minutes. I get brain fog from digestive issues, and stress from watching too much COVID 19 news. I also was very anxious on prednisone and walking helped me then too....
Diarrhea is an early symptom for some people (based on a talk by a dr I heard on you tube)...
My GI believes I have crohns because it looks like I could have inflammation in the ileum, there certainly is severe inflammation there. This was spotted after I was diagnosed with UC and took...
Tblock, I’m so glad it went well for you and that you were able to negotiate this latest flare with success. You went through such a hard time with c-dif I’m really glad things were different for you...
Just wanted to share this: https://crohnsandcolitis.ca/Living-with-Crohn-s-Colitis/COVID-19-and-IBD Also, I’ve heard of reports of people with IBD on 5asa meds who had the virus and got through...
I have had two shoulder surgeries for calcification tendinitis in the supraspinatus (rotator cuff muscle) The pain you describe reminds me of the pain I used to have. Frozen shoulder also hurts in a...
“ If you are young and healthy the risk to you would be extremely low” but the risk of carrying and spreading the disease to people who will need hospitalization is high while travelling around and...
I do appreciate the questions. They are making me dig deeper. I don’t think I have the biopsy report. I have the investigation results: “Preoperative diagnosis: ulcerative colitis. Postoperative...
“Terminal ileum was untubated and appeared normal and was biopsied” I wrote in my notes back in November that my dr said she suspected that the ileum was inflamed. It’s so good to read the report!...
CGK Thank you:) I did obtain a copy. Quoted: “In the Cecum and proximal ascending colon there were large areas of marked erythema, Friable mucosa with ulceration and some fresh blood. There were also...
Yes! Thank you:)...