Thanks for the input. That's a valid concern. It would certainly be nice if a test were developed to better target the antibiotic treatment towards those who would benefit. This is of great interest...
I believe you're correct, Oligodar. I'm currently adhering to the carnivore diet (strictly salt, meat, and water) and it's by far the best diet intervention for me. Not sure it will work 100%, but...
I recently did a two-day prep. My doctor prescribed me PlenVu. It must've worked well--colonoscopy went well. If you do take this, I'd check out PlenVu's website for their financial assistance card....
Hey C_G_K, I recently read this thread and noticed that you're still active on hw. Sorry if you already detailed this in another thread, but I assume your UC came back after the triple antibiotic...
Thanks, I have been thinking about revisiting a more restricted diet. I was thinking I'd go back to a pretty basic AIP paleo diet at the beginning of the new year. I know what you mean about these...
I’m essentially on a paleo diet right now, with white potatoes, quinoa and green beans added in. I’ve thought about going back on a strict AIP paleo diet. Exercise: lifting 3 times per week. I’ve...
I remember when I couldn't sleep through the night. For some reason, that nocturnal urgency went away although I've never gone into remission. I too suffer from urgency. One thing I've been able to...
I went to a functional medicine doctor (he had an MD) who recommended Lithium for improved cognitive performance. I never tried it out, bc I was more concerned about fixing my wrecked colon than my...
Thank you for this! This is a great anecdote. I'll ask my GI about Uceris. If anything, maybe it would give me some temporary relief while I wait for the drugs that my GI gave me to kick in. I've...
I'm sorry you're having to go through this. This chronic illness thing can be very trying, especially when it's difficult to control. While each situation is different, I do feel as if I can relate...
Thanks! Yeah I really hope I could find some answers. At this point, I almost want to stop going to the doctor and just continue living life and pretend I don't have anything wrong haha. If I had to...
Thanks, notsosicklygirl. That makes sense to me. I’ll definitely inquire about looking at the small intestine to get a better picture of what’s going on. Yes, I should say that this was my first...
Thanks for the responses everyone. You are the best. This forum can be so helpful and a lot of people don't get the kudos they deserve, but I hope you run into some good luck in the future--maybe buy...
It's been a while since I visited the UC forum--hope everyone has been doing at least relatively well. I'm still dealing with some moderate to severe proctosigmoiditis. At this point, I've tried the...
I am in the area and would recommend asking any surgeon with whom you may consult how many j-pouch procedures they've performed. I haven't had surgery, but I've heard many say try to opt for an...
I am also interested to hear how you're testing for MAP and who is conducting this. Thanks again....
Very interesting read. Even if it this theory is not accurate/disproven, it's still interesting to read a well cited explanation of how UC and Crohn's can have a common etiology, but differ in...
Yes, you're right; Entyvio takes a while to fully kick in. I believe I've heard some people say they didn't really notice discernible improvement until around four months in. So if I were you, I'd...
Your situation sounds similar to mine--I'm sure it's not exactly the same, but I can sort of understand what you're going through. I was diagnosed in August of 2015 when I had just turned 22--have...
I use Vital Proteins' collagen peptides powder. Pretty easy to find online--can be found on Amazon or a number of any other online retailers. It's a high quality powder that provides a decent amount...
I do sets of five, three times a week (MWF). Listen to your body--for me, doing 3 days a week is fine. Probably would be wise ease up on the pre-workout and getting really psyched up for the gym (if...
You mean to tell me the neck mole treatment is merely a fallacy after all these years of spurning my dentist's advice by refusing to brush my teeth and instead opting to wear a mole around my neck?...
I had a sudden onset of symptoms which were immediately ameliorated with a 10 day course of Flagyl. The symptoms slowly crept back about four months after this initial experience. After this...
Yeah I've seen a bunch of others get physically worn down by intense running. These are people who don't even have UC or another chronic condition. It was really a shame that so many 20-something...
I've seen this article before. I ran competitively in college and definitely agree there is something to this. I lift weights three times a week now. I think it's a lot more beneficial than distance...
Sorry you have an ignoramus as a colleague. I wouldn't want to sit next to her even if she were sitting next to the last toilet on Earth....
Thanks for sharing your experience so far. I'm glad to hear that you're doing well. If you don't mind sharing, do you know why they opted to do three surgeries? I've heard a lot of people say they...
I've tried three different biologics: Humira, Entyvio and Remicade. I've heard some say Entyvio is supposed to be the safest, because it targets the gut and doesn't have the systemic effects that...
I'm currently on Remicade, but will not be receiving any more infusions. However, this is because my gastroenterologist stated that my colonoscopy from a couple of weeks ago revealed that my colon...
Well I've decided to give FMT the old college try. I've honed in on a donor. They have no history of gastrointestinal or autoimmune issues, healthy weight, good diet, no exposure to antibiotics in...
Thanks for the response and advice. It seems like I share much of your sentiment prior to your decision to have surgery. Glad to hear it has worked out for you so far. I hope everything else goes...
Yeah I realize it's definitely a personal thing. Not rushing into surgery, but I've been dealing with this for two years and haven't been in remission since. Still going to try out a few more...
Yeah it's not something I'm going to jump into, but if I'm being reasonable and objective, then I'd say it's probably going to happen next year. Not looking forward to it, but gotta play the hand I'm...
I'd recommend checking out/following Danielle Walker, Robb Wolf and the Paleo Mom. When I was first diagnosed, I was extremely overwhelmed with all the information that's out there. Based on what...
I feel like I'm probably looking at surgery sometime soon in the nebulous future. Although I don't really consider my symptoms to be severe per se, they have been consistent and my UC seems to be...
Sorry to hear about your son. I'd suggest cleaning your bathroom(s) with bleach to help prevent the c diff from coming back. C. diff can be tough to treat and bleach (with chlorine) is the only...
I have been lifting for a couple of months as well. It depends on where you currently are in regard to health and weight. Are you looking to gain weight? Are you looking to lose weight? Are you...
Glad to hear it is working for you. I have looked into LDN a little and have decided to ask my doctor about it next week. Do you have any tips on how to successfully introduce LDN as a therapy option...
I like bananas, avocado and cashew butter....
I also ran competitively in college and constantly battled iron deficiency... often wonder if this was perhaps an early manifestation of the UC. Anyways, I can't say I run anymore, though that's...
I am curious about LDN and really want to give it a go. Has anyone asked their GI doc about this? Would it most likely be fruitless to ask my GI doc if he would consider prescribing this? It seems so...
Interesting. I wonder how antibiotic use, smoking cessation, isotretinoin use, etc. differs among countries....
Food tolerance varies from person to person for the most part. Yes, there are some foods that are pretty much universally avoided while flaring (e.g. popcorn, nuts, seeds, beans). A lot of people...
I'm on Remicade now and what scares me more is the methotrexate or the 6mp that my gastro wanted to put me on. I don't argue that immunosuppressant would help prevent antibodies from forming to the...
I'm currently trying out AIP Paleo. In the past when I was not Paleo, if I did indulge in chocolate, then I would get Enjoy Life chocolate. They have chocolate chips, chocolate bars and cookies....
I'm currently on Remicade and also started the Autoimmune Protocol (AIP) Paleo diet. AIP Paleo is basically a restricted version of the Paleo diet. The Paleo diet eliminates all dairy, grains and...
My doctor has also suggested adding methotrexate to Remicade. As a young male, thiopurines are pretty much out of the question--not really willing to accept a higher risk, albeit still pretty small,...
If you had the choice between getting Remicade infusions every 4 weeks or getting a j-pouch, which would you prefer? If you don't mind me asking, how are your symptoms with the j-pouch? It's...
I received it last fall (fall '16). If I were a woman and were pregnant or planning to become pregnant, then I might not take it, but I figure since I'm on Remicade and a male, then it would be a...
That would be great. Glad to hear it's working for you. Just hoping I don't mistake the kitchen sink for food while on pred :)...