Has anyone with UC been on Xeljanz? Results? Input? Was ready to start when new info about pulmonary embolisms came out. Dosage in UC patients higher than that for RA, so safety profile shifted. Of...
I've had pancolitis since 2006. Prior to that left side UC since 1998. For years both clarithomycin or cipro worked for me. Unfortunately, developed the tendon issues with Cipro so that's out, but it...
I agree. Visbiome is supposed to be old VSL forumula, but I don't think it's as effective. I was on the VSL-DS. I am trying to find it as think it's back in production. I found the capsules. As an...
Female 54 years old IBD - most likely UC (pancolitis) for 15 years. Pentasa, VSL#3, and now Lunesta or Ativan nightly....
I realize this thread is a few months old but thought I would chime in with this - while on Uceris - which was not working that well, I added two packets of VSL#3 per day to my line up. By day three,...
Thank you for sharing your story. I was diagnosed with left side UC, which after 7 years progressed to pancolitis. Since I have had the pancolitis, the only thing that has brought me true remission...
I have taken Xifaxan on and off for 4 years for ulcerative colitis (pancolitis). It has worked quite well for me with no side effects, other than the cramping the first few days, which goes away....
I have used Xifaxan off label for years as a treatment for ulcerative colits-pancolitis. It has worked well for me in conjunction with Pentasa and I have been able to get insurance to cover it. I...
Thank you for the helpful information....
6 mgs entocort, 2000 mgs pentasa, cortifoam ...
I too believe that my IBD is caused by bacteria. I have over time, responded well to antibiotics including Xifaxan (got 16 months of remission) and more recently, Cipro. Unfortunately, I have now...
I don't know about the garlic, it might agitate the intestines..... I would be careful with that. Two non-Rx remedies that do seem to help me is taking a probiotic - I get it at Whole Foods and...
One more thing, Cipro might get you through til Aug and is indicated in some cases for IBD. Good luck! I know how unpleasant and life altering this disease can be. Chime back in after the Aug appt!...
I would definitely seek a second opinion and soon. A different doc can make all of the difference in the world. You might want to go to CCFA website to look for docs that specialize in IBD in your...
Over a year ago, I wrote on this site about a drug called Rifaxamin which has been a miracle drug for me. It has allowed me to get back to a normal life sans prednisone. It a poorly absorbed...
BEFORE you go on 6-MP, consider asking your doc if you might try Rifaxamin. I had left side UC for 10 years, then progressed to pancolitis two years ago and after that got no relief other than on...
I was on Prednisone for over a year. I tapered from 40 mgs down to 5 mgs pretty quickly and 5 mgs seemed to work in terms of controlling bathroom trips although not pain, gas, cramping etc. But, at...
I have used Cortifoam (the foam not the enema) for 9 years and it does seem to help me control the symptoms. However, I did try mesalamine enemas at one time, and they irritated my GI tract....
STYX: I don't know if there is a correlation between IBD and sinusitis. Personally, I believe there is. I have asked, and thedocs don't seem to think so. But I have a hard time believing it. I can...