haha maybe that's why my GI was so freaked out by the results. She's asked me to get an abdominal ultrasound asap. I'm sure it's just fatty liver syndrome (non-alcoholic), but the liver function has...
Sara, my GI ordered bloodwork to be done before I started Remicade in order to be sure that my liver enzymes were not already elevated and that I didn't have Hepatitis B. Then, after three...
Let me start by saying that I have already emailed my GI. But I'm interested to see if others have experienced this. So I started Remicade in late August and have had three infusions. A week after my...
I have always been a reader. Recently, I started knitting, on a kind of a fluke, and now a lot of the time I listen to audiobooks while I knit. I read (or listen to) approximately 150 pages a day. I...
Moderators, feel free to delete this post -- OneDayAtATime99's post answers many of my questions, even though it's a different drug....
I just started on Remicade (still loading -- my third infusion is scheduled for 10/4), and I definitely see improvement in terms of frequency and urgency, but I'm wondering whether you have ever had...
iPoop, during my first year with UC, I had the best side effects ever. I was getting spasms in my colon that were causing orgasms. It was so messed up. On the one hand, TOO WEIRD. On the other hand,...
P.S. With Stage 2 IDC, I missed 4 days of work: The day after diagnosis when I was hung over after having gotten drunk the night before; the day before and the day of my surgery (which was on a...
Songlady, this is the thing I HATE THE MOST about the medical community. Did you know that even though they call DCIS "pre-cancer", they haven't done any studies to see whether it actually develops...
Hi all! UC messes with my mind so much that I don't know whether I'm having UC-related problems or whether this is just something else altogether. I'm having pain that appears to not be muscular --...
One of the most effective coping mechanisms for me is coming here and relating with people who are similarly affected. I do have an ano-rectal doctor with whom I have a very positive relationship,...
Flagyl and Cipro would give me diarrhea even absent UC. Make sure you're taking a probiotic to help combat their after effects....
I am on probiotics -- one of the reasons I immediately liked this new doc is that when she said that the inflammation is a lot worse than my last colonoscopy, she said, "what's going on?" and I said,...
Susie, thanks so much. As Uniform Charlie predicted, the pain is much much better today. Also, I appear to have stopped bleeding, pretty much completely, so I'm more at ease. :-)...
Hi Quincy! I changed GIs recently and when we were discussing treatment options, I said to her, "I believe in 'treat from both ends'" illustrating with my fingers waving in the air and pointing at...
Thanks so much! Pain is definitely eased today. I'm flaring so pooping isn't an issue, there isn't a speck of formed stool and hasn't been for weeks. I'm looking forward to continued pain relief and...
Why didn't my signature post? You all are wondering who the hell I am LOL...
Just had two hemmies removed. This is the first time I've had it done using a scalpel (I've had a couple removed with the rubber band treatment). I was warned -- I know it's going to hurt for a month...
I liked many things about my original gastroenterologist, but I kept getting frustrated with him and I would get subtle hints from other providers that maybe he wasn't their first choice for me. My...
Using the now famous epithet of our fearless leader, I have a lot of localized pain in my s***hole. I use calmoseptine and last week I tried preparation h (lots of inflamed tissue and possible...
Have you tried Balneol? I swear by it. It doesn't come as wipes -- it's a cleansing lotion that you use with regular toilet paper -- but it does come in travel size packets....
I learned recently that my cousin, who has intractable Crohn's, was in one of the clinical trials for Entyvio and, counting that time, she's been on Entyvio for more than 3 years and it is working...
thanks iPoop, I did see those and was wondering if anything had changed in the interim. I have ordered some pads from amazon after reading the northshorecare website. I really don't think I can...
I tried the Silhouette adult diapers and just hated them. Is this the best there is? Has anyone tried the Thinx women's "period panties"? I figure they're not the best protection but maybe more...
I'm wearing a diaper for the first time today....
My rectal surgeon recommended Konsyl, which is psyllium. It's one teaspoon per 8 oz of water, once a day. I use a tablespoon twice a day and that really helps....
Clean with Balneol, then dry the area and apply Calmoseptine. That will protect from local irritation....
Little ole Cosgrove loves to have her belleh rubbed! She's actually playing with a toy in that shot but the other day she took a nap in almost exactly that position. :-) And she's not actually...
I have UC, Hashimoto's Thyroiditis (every woman in my family has this), a low positive for lupus, raynaud's syndrome, and I have a niece with celiac disease....
I rarely rarely rarely get gas pains but for the last day or two I've been wishing for a big... release.... so to speak. I can't figure this out. I just saw my lovely butt doctor last Friday and he...
I'm on a "cocktail" of a low-ish dose of Lexapro, buproprion (Wellbutrin), and buspirone (Buspar). My doctor & I have worked this out over a period of years. It doesn't cure me, but it does help me...
Rectal meds make a very big difference overnight. Really give them a try (I've had better luck with corticosteroid enemas than mesalamine enemas, but that's just me)...
Now I think I must have a hemorrhoid. OUCH. I have things that kind of help, but, well, ouch. Guess I'll wend my way back to my delightful rectal surgeon. I luh him and he has helped me greatly in...
I seem to do better with a number teeny tiny "meals" every few hours so that I'm never completely empty/hungry rather than nothing at all. My intestine seems to be more than willing to eat itself if...
Well, for a long time I ate like there was no dietary factor in UC and that didn't serve me well. The only time I've been in a decent remission in the last couple of years was the first time I went...
There's a protocol for IBD and autoimmune disorders It kind of sounds sensible to me. And it's only a little more strict than my current diet. No grains (I already do this) No legumes (I already do...
I started taking sudafed a couple of days ago and my frequency and urgency have spiked. Without going into detail, there are a couple of other possible reasons (THANK YOU STUPID INSURANCE COMPANY) so...
Yes, I've been playing this really hard solitaire game -- Called "Alaska" if anyone is familiar with it. I have an extremely low win percentage but I do get some satisfaction out of a win. I just got...
Calmoseptine is for exterior use only, but you know hemmies -- in out in out LOL Soystud is the resident comedian....
Sounds like a hemmie to me, too. Here in the land of TMI, I can tell you that I rarely look in the mirror to scope out my bottom. I usually do a fact finding mission with my fingers. My favorite...
What I like about Scott is that it doesn't disintegrate. I really hate picking little pieces of toilet paper off my vulva. Seriously. With that said, I've started using Charmin Sensitive (aloe etc)....
Konsyl isn't cheap, but I've found it's less expensive on its website than at Walgreen's. Also, if you order it on their website, they send you a shaker cup. I'm pretty sure that you can order a...
Man, I so totally do NOT understand why doctors won't prescribe rectal meds if you ask for them. It makes no sense to me. wifeofmars, near the top of the thread you say that your butt hurts -- if you...
Yes, it's served in Switzerland & France during the chilly months. DARN IT IS GOOD....
Cornichons are those teeny tiny French dill pickles. :-) The perfect food, in my opinion now that I can't have macaroni & cheese, is Raclette which is melted cheese, boiled potatoes, and cornichons....
www.sanger.dk Also, boops: http://www.buzzfeed.com/adamdavis/boops-that-changed-the-world-in-2013 We all need more boops. Also, for holiday related smiles:...
My boyfriend & I literally did not set foot outside my apartment all day on Christmas. I put on some lounge-around-the-house clothes but he just stayed in his bathrobe all day. I suggested watching a...
ANA 1:80 and also positive for anti-dsDNA antibodies, so low positive. I have a couple of symptoms but not severely. Photosensitivity, fatigue, Raynaud's, and some joint soreness and swelling but I...
Thanks, all of you, for your condolences. Luckily, it's a "low positive" and I'm not actually medicated yet. My main symptom at the moment is fatigue and you know what the recommendations are for...
I'm talking about non-steroid anti-inflammatories. Both are auto-immune disorders. The symptoms for one get better using NSAIDs; for the other, NSAIDs can cause a flare? go figure Also, side note. Do...