Rosie - Sounds like you had an excellent Christmas. Enjoying family and making memories. There is never anything wrong with taking time for yourself and making sure you are expending the energy you...
I tried it, and thought it helped somewhat. On later attempts I didn't see what I thought I had the first time in terms of improvement, and had a bad flare go way, way worse when I tried it for the...
That sucks but at least you know what's going on now. Those boots are pretty damned good. They lock everything down. But that being said, I'd be tempted to take it easy until you get a bit more...
Every time I ever went through a Pred taper, I bled some. Even post surgery when there is almost nothing left down there. My post Prednisone bleeding would usually even out about a week and a half...
Echo this. I tried this approach early in my disease course and it made things so, so much worse. High fat and protein worked for me - at least in terms of lessening symptoms. But diet is not...
Losing weight on Pred is a new one for me. I ate all the things and had to workout like crazy to keep the weight somewhat turning into muscle kinda in the general areas I wanted it to be. At my Pred...
Thank you for your kind words, but not really. My wife started me on the exercise and I fought her tooth and nail for years. I did it because I knew it was the right thing, but I didn't feel like it....
Yes. I have, at several points. Exercise and sunshine was my answer. It wasn't always possible because of the symptoms but I was constantly trying to get well enough to exercise again when I flared....
Former smoker (quit at 24), diagnosed with UC after battling GI problems for years in my early 30s. Had a GI doc that wasn't worth anything for a couple of years and finally went into a major flare...
That is how you do it. Way to go! May your R word last forever....
I had phases exactly like what you describe. This disease is a tough thing. It's just my opinion but I largely grew it from by GI's feedback. You have little to no control over this disease. It's...
Go for the Humira if it's an option. Of all the biologics, I liked and felt Humira was the most stable and effective. And it had me fully in remission while it worked. The loading dose sucks. When I...
I'm sure my GI guy would kill me if he knew, but there might have been one or two extra Prednisone tablets over my years. Glad you got your head above water :) I'm doing well. Went back to work...
I can't even imagine 80mg. The entire 60mg episode was one of the things that finally tripped my decision on the surgery. Hope the doc comes through for you. Those are tough days. Remicade was good...
I did ok on 40mg and below, usually. 50mg I only did for a few days... On my way to and from 60mg. Which I did for a few days. Briefly. In a horrible flare. A couple of months before surgery. And it...
It's not you. It's the disease. Call your GI and stay on him until he/she helps. If he/she doesn't, find another one. My first GI was a hump. All he wanted to do was drive the colonoscopy machine up...
I tried for years to assign flares to foods, but never really could. When I was flaring, I was flaring. When I wasn't, I could eat road kill sushi. Energy drinks, on the other hand, were a 1 step...
The biologics are good. Lots of people hit remission on them and stay there. I was on all of them at some point and the side effects for me were always less than Prednisone. I'd vote yes....
I laugh everytime I read this....
Sara :) As to your friend who thinks marijuana clears everything up, I can personally attest to the contrary. I live in Colorado and a few years ago... well, we voted on a few things. I had never...
Thanks Sara. That was the big reason I went from being a lurker here to finally posting. I had seen a lot of horror stories about the surgery and they freaked me out. I get it. In the years of...
Yea, been there. Sometimes it felt like everyone I ever told about my UC spent some amount of time trying to convince me that eating/taking/doing something would be the key to success. The truth is...
Side tip: Work to learn the names and amounts of the medicines you are taking and have taken. If needed, keep a list but it's better if you can rattle them off from memory. Know the IV steroids...
That's a tough spot. Over the years, I got very comfortable with acting on the start of a flare. For a long time I wanted to rationalize it, and try to stop it by other methods. It usually made...
LKA - You are very kind. Thank you :)...
No, I get it Quincy. Many people on this thread believe that choosing to not have children because of their IBD is a good decision. Since having kids is a personal decision that factors in any and...
I've been on and off Prednisone for 10 years. I tended to be very responsive to it and could usually pull the worst flares down with exactly what you are describing - a 20mg taper. And that is a low...
That's really it. I mean, what else you got? Get in there, cut that thing out and either wait for me to wake up or just go ahead without me. Light it on fire. Right there in the OR. I'm doing as you...
It probably isn't the best medical advice but I always backloaded my Pred at night and took 2 Benadryl to offset it. Occasionally threw a few Jack and Cokes on top of them. That kinda worked....
I had this on Humira. Swimming laps worked for me. It hurt like hell at first, but eventually it got to the point where my joints only hurt if I skipped a morning of swimming. Also took a single...
FWIW, my mom was diagnosed with UC after I was. She had struggled for years with what the docs called IBS but with my IBD diagnosis she went back to the GI and they confirmed with a colonoscopy. She...
This sucks, and I'm sorry for you....
Right there. That's the one. Three months ago I took my wife to Destin for a beach vacation after years of not doing it. I was sick as hell, but I did it anyway because a big part of me honestly...
3 steps. Eight months or so between Step 1 and 2 to give things time to heal? They want to biopsy the colon to look for Chrohn's symptoms before we commit fully to the J pouch. I've had some mixed...
The mental part is not a walk in the park. While my doctors had never suggested surgery before, it was lingering over each successive medication failure. For the last year I could see where i was...
UC for 10 years. All the meds failed. Got way sick this year and decided for Step 1 of the J Pouch surgery. The last week was a blur, thanks to modern medicine. No, seriously. Thanks modern medicine....