Not yet, my gi is away at the moment but back next week, I’ll ask for a stool test and then antispasmodic from him then, thanks for your help...
Ah yes I’m on them too, and melasalazine suppositories. I’m sticking so much up my bum at the moment it’s like a party in there. Unfortunately I can’t keep much in for very long. I think I’m probably...
I’ve been on budesonide oral and enemas for a few weeks now but not seeing much improvement yet. I should have updated my signature sorry. I’m fighting taking pred as I’ve only just managed to get...
I have pretty bad tenesmus at the moment but all I’m passing is blood, my pelvic floor muscles are so sore! Anyone else have this and found anything that can help ease it? I’ve already upped the...
Thanks that’s reassuring to know, I’m about 2 weeks in now and not much has changed. Do you mind sharing what dose your taking? I’m currently on 9mgs and supposed to drop to 6mgs soon but I don’t...
Anyone been on Budesonide/ Cortiment and if so, how long does it take to work? Been on 9mgs for about 10 days now and I’m still going to the toilet approx 10 times per day. It stopped the tummy pain...
Hand sanitizer works for me, it can sting a bit when going on but it stops the itching. I think it’s the alcohol & I find it’s really effective. I usually get eaten by mozzies but rather bizarrely I...
Thanks for your replies both, I go to see my general practitioner today so should know more then. I’m guessing he will refer me to a specialist. If they ask me to stop the meds I think I may be in...
I’ve been on various biologics for the last two years and recently I’ve been experiencing some soreness in the lymph nodes in my neck and head. I mentioned it to my gi nurse today and she’s told me I...
I’m not informed enough to comment on your no 1 point, but on your point 2- my whole family have been consuming the same food for decades and I’m the only one who has UC. I’m not sure it can be put...
I got some response from both Remicade & Simponi but neither has been good enough to get me into remission. I haven’t been able to stay off steriods on either so I’m not holding out much hope the 2...
Thanks for your replies, I really appreciate them. I was feeling pretty desperate yesterday and they helped. I went back on 40mgs of pred this morning and I already feel lots better. That stuff...
Last colonoscopy in June said moderate inflammation in ascending colon (mild through the rest), but I wasn’t having any symptoms then. Last few weeks things have taken a major turn for the worse so...
I’ve been on Cortiment about 4 days now and still bleeding and feeling sore. This is the first time I’ve been on it and I’m not sure what to expect. Pred usually kicks in within 24hours for me and I...
It does look worth a shot, my vet has been very impressed with it but it’s obviously quite unknown. I did a search on the forum and the only thing that turned up was something in the Lyme disease...
Has anyone tried palmitoylethanolamide (PEA)? Was it any good? My vet gave me a pamphlet on it, she said they were discovering how effective it was to treat pain in animals (my dog has arthritis). In...
Have you considered that the monsoon season affects your mood/ stress levels at all? Lots of people get worse flares if they are stressed so if you think this could be contributing to your symptoms,...
Thank you, and good luck to you for your colonoscopy- and the prep too!...
Just thought I’d post a quick update just in case anyone else has the same symptoms as me and interested in knowing my outcome. Had my colonoscopy today, I was hoping I was on my way to remission but...
I don’t believe there is a reciprocal health agreement between the uk and Canada unfortunately, and very few uk employers offer private health insurance as healthcare is free and used by most people....
Thanks for your reply, I haven’t heard of isatis cooking but I’ll give it a go if the bleeding doesn’t stop. For now I haven’t noticed any blood for 24 hours so I’m starting to feel more confident...
Thanks for your reply, it has been really Informative. It’s my rectum that’s been giving me problems for the last 6 months as I’ve been managing to keep off loose BMs with the steroid enemas, but as...
Thanks for your reply. I noticed from your signature that you don’t take any immune suppression drugs, do you mind sharing how you treat the bleeding? It is usually easier to manage having formed...
Thanks for your reply. That’s what I’m hoping for. Sorry if this is a silly question but I haven’t had hemorrhoids before, what do you have to do to treat them? Or do they go away on their own?...
I’ve been a pretty bad flare last two years and on pred 18months of that. Once I started remicade I managed to get off the oral steroids and onto the steroid enemas but because I got stuck on them...
Wow I’ve not heard about having experiences like that before during a flare, sounds like you’ve had a really rough time. My general practitioner touched on the brain and microbiome connection with...
Thanks for your reply. Yes I agree that any sane person would be ground down mentally by this awful disease. Of course your going to feel anxiety if you can’t leave the house without the real risk...
Thanks for your reply, it’s been very relevant with what I’m experiencing. I’ve just stated yoga, so now I’m guessing I’m getting targeted ads related to that. What you describe is what I’m...
Hi all, Just wondering what everyone’s thoughts are about the relationship between mental health and IBD? Not sure if I’ve clicked on something on google/ Facebook and now I’m being targeted, or it’s...
Yikes that is a worry. I’ve had one bone density scan done in the last 2 years on steroids, about 1 year ago. Thankfully it showed my bones were in pretty good shape at that time, but I’m going to...
I’ve been one form of steroids or another coming up for 2 years now. The last few months have been only steroid enemas, a huge improvement to being stuck on pred but obviously still not ideal. I...
Thanks for reporting back. It seems even the experts are unable to give more detailed answers to these questions, how frustrating! I am seeing my gi in a few weeks so I will ask too but I’m guessing...
Only to tell me I must find a maintenance med to get me off them or face surgery. He didn’t seem to acknowledge the option of me staying on them long term, although I’ve been stuck on one form of...
No I was never offered anything after the Imuran failed. A few weeks after starting it they tested my blood then called to say to stop it immediately & that was the end of that. I will ask my dr if...
Yes your completely right about educating myself regarding surgery. I do have a lot of research to do and that’s exactly what my gi was trying to suggest when he said for me to get my head around it...
Yes I have heard that simponi works the same as Humira and remicade so I’m not sure why he’s gone down this path, I only spoke to his nurse today and she said something about the success percentages...
I’m scared of the surgery to be honest. Thanks to the steroid enemas I don’t feel sick enough to accept it as my reality just yet. I also have two toddlers so the time out recovering would be...
I’m on the Budesonide enemas at the moment and this is what I’m stuck on. They are working great and so much better than being stuck on pred, but as soon as I stop then my bathroom visits increase &...
Ok thanks both, I think I’ll try to taper and see how I go. My gi said I could just do a four week course and then stop but that’s not working for me. Hopefully the taper will help and if not I’ll...
No unfortunately the 5ASAs don’t cut it. I’ve tried the foam, liquid and suppositorys but within about 10 days things start turning for the worse. How did you get off the steroids? Did you taper the...
Hey all, I have some questions I’m hoping you can help with. I’ve found that I can live a ‘normal’ life without worrying about my UC if I take steroid enemas every few days. This has been an amazing...
You can take melasalazine tablets or enemas indefinitely. They are a good maintenance med & so if I were you I would keep them up. You could try tapering to every other day or every third day to find...
Yes usually my CRP is high if I'm flaring. If I'm honest it's looking like the infliximab isn't working as I'm still mildly flaring despite just upping my infusion frequency from 8 to 6 weeks....
Hi all, Just been to the GP (PCP) for my blood test results I requested after feeling fatigued. He said the results were unusual as my white cells were high (along with high Neutrophils and...
I started on sulfasalazine, it worked great for a while but then I started having skin reactions from it so switched to melasalazines. The yellow pee thing is normal, it's the sulphur in the...
you experience the same cycles I did till I changed my eating habits - i'd flare after eating anything I wanted, go on meds, get better, go back to the same diet, rinse and repeat - haven't been on...
Yes I agree, you need to be in a milder flare to get the best info out of diet modification. I've never been in a milder flare and I think that's why I've struggled to work the diet thing out. My uc...
I have attempted it but I just can't figure it out. When im well I can eat anything without having any problems, but when I get sick I go down hill really quickly and am literally pooping all day...
No I haven't cut any foods. I've been stuck on pred this whole flare which has been masking everything, so it's difficult for me to find out what foods affect me in a positive/ negative way. It's...
Oh ok, thanks for that, I didn't realise that was possible. I'll give them a call today...