Somebody else has posted a very useful resource elsewhere which seems to answer my question. For anyone concerned about any specifics of coronavirus, colitis, and medication, this is the best...
Hi everyone, I have seen a few variations of this same question but just wanted to check if anyone had any specific info. I have had colitis in remission for almost 18 months, but take salofalk...
Hi everyone, I have recently started taking 5HTP (200mg per day) coupled vitamin B6. I am sure it has made a dramatic improvement to my mood and energy levels and in a very short space of time as...
Hello everybody. First off, there is no non-ridiculous way of describing this problem so I'm just going to state it directly. I usually use one salofalk suppository each day (1g) and have never had...
Thanks a lot everyone for the info!...
I tried taking turmeric tea during a previous flare to ease symptoms but it seemed to do little. Recently my doctor prescribed curcumin supplements at a far higher dose than it is possible to get...
Hi everyone. Unfortunately I feel like I'm beginning another flare up. I've had two in the past but been in remission for around 9 months. Thankfully I've responded well to steroids (medrol) during...
Thanks, so am I right in thinking you just go in to hospital initially for the first course of treatment and from there you do it independently at home?...
Thanks everyone. I spoke to my doctor yesterday and he's told me to come straight off Imuran. I think the concern was that both my red and blood white cells were far too low, and had dropped quite a...
I have been told that, following bone marrow toxicity caused by Azathioprine, the most realistic long-term option for me is to move to Humira. I have only read a little about it but I am ok with the...
Thanks for the response, Kulinarykidz. Do you know what sort of levels you were at when your doctor was saying it was okay? Mine was 3.3 last blood check I had and the doctor said that was ok, but...
Thanks for all the info/personal experience. I am keen to stay on azathioprine as it has kept me in remission for 9 months with no side effects (apart from now the lowered white blood cell count)....
Thanks for your response. Do you know what your levels were like when they were lowest? I'm just wondering whether or not mine are exceptionally low. I have also not noticed an increase in...
Anyone have any experience with low white blood cell levels during azathioprine treatment or similar? I'm seeing my doctor tomorrow to reevaluate treatment following my most recent blood test but...
As coincidence would have it, I'm almost exactly the same weight as you so those dosages are useful as a reference point. I might ask about going to 100mg of aza per day as the thought of starting a...
Thanks for the info. I am on 150mgs a day so perhaps I can lower this quite substantially and hope the side effects disappear. Glad to hear it worked for you. I will meet with my doctor on Wednesday....
DBwithUC thanks for your response. My liver enzymes are fine, thankfully. I have not had any blood loss, as far as I am aware, whilst being on Imuran and my levels of iron and vitamin b12 are all in...
So I have heard back from my doctor and he says the blood test results suggest bone marrow toxicity and that I will likely have to come off azathioprine. I am meeting him on Wednesday to discuss...
Hello, I have just had a regular blood test after 9 months on azathioprine. I have contacted my doctor as the results show that a number of the levels (Hemoglobin, RDW, Hermatocrit etc.) are way off...
Thanks, I suspect it may be dehydration actually. I've made more of an effort to drink water regularly the past few days and have felt a little better. Is it possible that azathioprine and/or colitis...
I had a particularly bad experience with this following my first flare up and course of steroids. It happened quite suddenly and gradually thickened back up over a phase of 2-3 months. It happened...
Hi everyone, I have been on azathioprine for almost nine months now and have thankfully been in full remission in that time. I have had blood tests showing my liver function is normal. Some of my red...
Thanks everyone, fingers crossed I have not been sick again since a few nights ago, and have continued taking azathioprine. I'm hoping this means I don't have a major issue with it. I've also just...
Thanks a lot for all this. This may sound like a stupid question but does anyone have any way of identifying when they are suffering a drug side effect vs. when they are just ill? Sorry for all the...
What sort of symptoms did you get to indicate liver issues?...
Thanks a lot for your thoughts/ experiences- I really appreciate it as I often feel a bit worn out with all the trial and error of sorting out UC. I've just been vomiting quite badly after a day of...
Thanks for the responses. Dana37, did your nausea eventually go away to the point where you have had success with azathioprine? I'm hoping to be able to stay on it as my symptoms have been managed...
I have been taking 150mg/day of azathioprine for around two months now, whilst also remaining on 8mg/day of methylprednisolone, which I am due to start tapering shortly. I have been in remission...
Thanks for the very prompt responses, I really appreciate all advice. I've actually just looked at my blood test results in a bit more detail- apparently I have high RDW levels which are very often...
I had a flare up over christmas which has been put back into remission by a course of methylprednisolone which I am still taking. I have also recently stopped taking salofalk and begun taking 150mg...
Thanks for the responses! In the end I was worrying about nothing and it was absolutely fine. Managed 5 hours sleep before having to wake to take the second dose. The second dose worked completely...
I am in the middle of a prep for a colonoscopy tomorrow. Having been on a liquid diet all day today, I took the first litre of Moviprep at 7 pm this evening. It is now almost 11 pm and nothing has...
Thanks for the responses. Ive been taking a mixture of pills and suppositories. Following my first flare last summer I'd just been on mesalamine but had another flare over Christmas. Hoping the...
Hello, I've recently had my second colitis flare up, after being stable for a few months on a high dose of mesalamine. This time I have been put on a 4 week course of methylprednisolone (3 weeks to...